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"It's Like an Oxygen Mask": A Self-Care Tool Addressing Family Caregivers' Unmet Needs in Colorectal Cancer Care
Malmö University, Faculty of Technology and Society (TS), Department of Computer Science and Media Technology (DVMT). Malmö University, Sustainable Digitalisation Research Centre (SDRC).ORCID iD: 0000-0001-9899-0265
Malmö University, Faculty of Health and Society (HS), Department of Care Science (VV). Malmö University, Sustainable Digitalisation Research Centre (SDRC).ORCID iD: 0000-0001-8700-4490
Malmö University, Faculty of Health and Society (HS), Department of Care Science (VV).ORCID iD: 0000-0002-1735-9437
Malmö University, Faculty of Health and Society (HS), Department of Care Science (VV). Malmö University, Sustainable Digitalisation Research Centre (SDRC).ORCID iD: 0000-0001-9443-8473
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2026 (English)In: IH 2026 - Proceedings of the 2026 ACM Interactive Health Conference, ACM Digital Library, 2026, article id 44Conference paper, Published paper (Refereed)
Abstract [en]

Family caregivers play a critical role in chronic conditions care, yet digital support for their well-being remains limited. While prior HCI work has focused on task coordination, value elicitation, and information management, this project supports family caregivers in identifying and making sense of their own needs. Building on a clinical screening instrument in colorectal cancer care, we explore how such a tool can be adapted through an iterative, HCI-led process to provide value in everyday life. Through informed internal design sessions with Care Science, Computer Science, and HCI researchers, and a workshop and prototype testing with family caregivers, we integrate the screening instrument into a family caregiver-oriented self-care platform. This process addresses framing, data representation, and interaction flow, acknowledging family caregivers' demands and needs. As work in progress, we indicate how formative HCI evaluation can be combined with health-oriented outcome assessment to adapt clinical instruments into caregiver-centered digital health interventions.

Place, publisher, year, edition, pages
ACM Digital Library, 2026. article id 44
Keywords [en]
cancer care, colorectal cancer, family caregivers, informal caregivers, need-tracking, self-care
National Category
Nursing
Identifiers
URN: urn:nbn:se:mau:diva-87359DOI: 10.1145/3786579.3804926Scopus ID: 2-s2.0-105045246248ISBN: 9798400724220 (electronic)OAI: oai:DiVA.org:mau-87359DiVA, id: diva2:2089614
Conference
1st ACM Interactive Health Conference, IH 2026, 05-08 Jul 2026, Porto, Portugal.
Available from: 2026-08-04 Created: 2026-08-04 Last updated: 2026-08-17Bibliographically approved

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Maus, BenjaminSamuelsson, MariaJakobsson, JennyMöllerberg, Marie-LouiseSalvi, DarioOlsson, Carl Magnus
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Department of Computer Science and Media Technology (DVMT)Sustainable Digitalisation Research Centre (SDRC)Department of Care Science (VV)
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