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Participation of children and young people with cerebral palsy in life contexts
Psychology, Faculty of Psychology and Educational Sciences of Porto University;Center of Psychology of Porto University.ORCID iD: 0000-0003-4675-6279
Psychology, Faculty of Psychology and Educational Sciences of Porto University.ORCID iD: 0009-0007-2846-2812
Center of Psychology of Porto University; Department of Social and Behavioral Sciences, University of Maia.ORCID iD: 0000-0002-3741-0885
2025 (English)In: International Journal of Developmental Disabilities, ISSN 2047-3869Article in journal (Refereed) Epub ahead of print
Abstract [en]

Understanding how children and young people with disabilities perceive their participation is essential for promoting inclusive and person-centred practices. This study investigates how children and youth with Cerebral Palsy (CP) perceive their participation and compares these perspectives with those of their caregivers, using Picture My Participation to analyse attendance and involvement across diverse life contexts. It also examines key activities and identifies perceived facilitators and barriers to participation. Participants included 40 children and young people with CP (5–20 years) and 40 caregivers, all from the Porto Cerebral Palsy Association, Portugal. Results show notable differences in the perceptions of children and their caregivers regarding attendance and involvement. Children and young people most frequently highlighted Celebrations, Playing with Others, and Family Time, while caregivers prioritised Family Time and School. Facilitators included family support, accessibility, and positive attitudes from peers and community members. Barriers were related to Individual Characteristics and Attitudes, which included negative social interactions and perceived exclusion. Caregivers prioritised Individual Characteristics, giving less weight to Attitudes and more to Environmental Context. The study highlights the need to empower children and youth with CP and foster their inclusion by valuing their perspectives.

Place, publisher, year, edition, pages
Taylor & Francis, 2025.
Keywords [en]
Participation, children and young people, cerebral palsy, picture my participation, facilitators/barriers
National Category
Pediatrics
Identifiers
URN: urn:nbn:se:hj:diva-73387DOI: 10.1080/20473869.2025.2590000ISI: 001627658500001Scopus ID: 2-s2.0-105023386915OAI: oai:DiVA.org:hj-73387DiVA, id: diva2:2087884
Projects
CHILD-PMPAvailable from: 2026-07-23 Created: 2026-07-23 Last updated: 2026-07-23

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Grande, CatarinaCunha, FranciscaCoelho, Vera
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CiteExportLink to record
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  • apa
  • ieee
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  • de-DE
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