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Barn och ungdomars upplevelser och känslor av att ha ett syskon med cancer
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
2024 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Introduktion: I Sverige insjuknar cirka 350 barn per år i cancer vilket medför en ny situation och påfrestning för hela familjen. Sjuksköterskor och föräldrar har uppgett att syskon ofta blir åsidosatta vid vården av det sjuka barnet, vilket kan påverka syskonets hälsa negativt. 

Syfte: Syftet var att undersöka barns och ungdomars upplevelser och känslor av att ha ett syskon med cancer.

Metod: Litteraturstudie med en beskrivande design baserat på 13 kvalitativa originalartiklar. Litteratursökningen genomfördes i databaserna PubMed och CINAHL. Artiklarna granskades utifrån SBU:s granskningsmall för bedömning av studier med kvalitativ design och resultatanalysen genomfördes med hjälp av Popenoe ́s modell vid analys av kvalitativa studier.

Resultat: Resultatanalysen genererade fyra kategorier:Upplevelser av en förändrad vardag, Känslan av att vara ensam i sina tankar, Sjukdomens upplevda påverkan på familjen samt Upplevelser av vården. Syskon upplevde ett flertal nya situationer och bemötande de fick anpassa sig efter, och många upplevde flera svåra känslor som ensamhet och känslan att vara bortglömd. Den nya situationen de befann sig i var en stor påfrestning som syskonen hade svårt att hantera själva.

Slutsats: De huvudsakliga upplevelserna hos syskon till barn som har fått en cancerdiagnos var starka känslor som var svårhanterliga, till följd av syskonens föreställning av att vara tvungen att hantera dessa på egen hand. Detta berodde främst på upplevelsen av brist på information och stöd från föräldrar och sjukvården. Vikten av att inkludera hela familjen i vården av det sjuka barnet, och behovet av ett familjefokuserat förhållningssätt belystes. 

Abstract [en]

Background: In Sweden, approximately 350 children are diagnosed with cancer each year, which brings a new situation and strain on the whole family. Nurses and parents have stated that siblings are often neglected in the care of the sick child, which can negatively affect the sibling's health.

Aim: The aim of this study was to investigate childrens' and adolescents' experiences and feelings of having a sibling with cancer.

Methods: Literature review with a descriptive design based on 13 qualitative original articles. The literature search was conducted in the databases PubMed and CINAHL. The articles were reviewed on the basis of SBU's review template for assessing studies with qualitative design and the results analysis was carried out using Popenoe's model when analysing qualitative studies.

Results: The result analysis generated four categories: Experiences of a changed everyday life, The feeling of being alone in one's thoughts, The disease's perceived impact on the family and Experiences of care. Siblings experienced a number of new situations and treatment they had to adapt to, and many experienced several difficult feelings such as loneliness and the feeling of being forgotten. The new situation they found themselves in was also a great strain that the siblings found difficult to handle themselves.

Conclusion: The main experiences of siblings of children who have been diagnosed with cancer were strong emotions that were difficult to handle, as a result of the siblings' perception of having to deal with them on their own. This was mainly due to the experience of a lack of information and support from parents and the healthcare system. The importance of including the whole family in the care of the sick child, and the need for a family-focused approach were highlighted.

Place, publisher, year, edition, pages
2024. , p. 30
Keywords [en]
Experience, nurse, nursing, pediatric cancer, sibling
Keywords [sv]
Omvårdnad, pediatrisk cancer, sjuksköterska, syskon, upplevelser
National Category
Nursing
Identifiers
URN: urn:nbn:se:uu:diva-520661OAI: oai:DiVA.org:uu-520661DiVA, id: diva2:1827467
Subject / course
Caring Sciences
Educational program
Registered Nurse Programme
Supervisors
Examiners
Available from: 2024-01-30 Created: 2024-01-14 Last updated: 2024-01-30Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
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