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Exploring quality improvement integrating coproduction: Experiences from a Swedish healthcare system
Jönköping University, School of Health and Welfare, The Jönköping Academy for Improvement of Health and Welfare.ORCID iD: 0000-0001-9049-6254
2025 (English)Doctoral thesis, comprehensive summary (Other academic)
Sustainable development
00. Sustainable Development, 3. Good health and well-being
Abstract [en]

In the context of healthcare improvement and research, interest in and the perceived importance of coproduction are evolving. Existing theories and models in quality improvement (QI) are being revised to acknowledge coproduction and new models and tools are being tested—inviting learning from both research and practice.

The aim of this thesis is to explore QI integrating coproduction, both as part of a quality strategy in a Swedish region and through the application of a co-value model in multiple sclerosis (MS) care.

The thesis consists of four studies, conducted with an interactive research approach using qualitative and mixed methods. The studies explore the development of coproduction in a regional healthcare system, the lived experiences of people with MS, levels of contact frequency in healthcare, and the use of documented shared agreements (DSA) between patients and healthcare providers. Data sources included interviews, documents, patient records, and registry data.

A theoretical coproduction framework, structured around four interdependent perspectives—patients, professionals, systems, and science-informed practice—guided the synthesis of findings across studies.

In the patient perspective, findings include the evolution of patient roles in QI over time, from individual storytelling to more formalized and diverse roles. In MS care three overarching qualitative themes were identified: balancing health, illness, and daily life; responsibility and participation in care; and being recognized and met with care that is responsive. Mean and median distribution of variables between contact levels suggest an increase in symptoms, reduced function, and declining experiences of health from the lowest to the highest contact frequency. The variables age, gender, overall health, and functional status were significant predictors of belonging to a certain contact level, with each variable contributing differently across the different levels.

In the professional perspective, findings include perceptions of QI initiatives integrating coproduction—such as views on patient roles and changes in attitudes over time—as well as concerns about shared responsibility and evaluation. The use of DSA was influenced by organizational routines, access to information, and technical constraints. Adaptive practices emerged, such as developing the content of documentation.

In the system perspective, approaches to QI integrating coproduction evolved across micro-, meso-, and macro-systems, with growing attention to patients’ lived experiences and diverse needs. In MS care, both shared and differing perspectives were described within the population, and responding to this variation was challenging for the system. Relational aspects of coproduction sometimes required facilitation, and over time networks and formalized processes helped build a more sustainable relational infrastructure. DSA were used system-wide but often lacked relational integration.

In the science-informed practice perspective, several QI initiatives reflected characteristics of improvement science. Different methods and approaches for coproduction in QI brought together knowledge from patient experiences, professional expertise, and improvement science theory. Data such as quality registry and administrative data were combined with qualitative insights to explore variation in patient experiences and healthcare use.

While many of the findings reflect known dynamics of change in complex adaptive systems, the contribution lies in how these dynamics are made explicit through a mixed methods design and a theory-informed approach.

Together, the findings highlight that furthering QI integrating coproduction requires developing meaningful ways to understand and represent different patient populations, as well as the ability to recognize and integrate diverse perspectives and logics.

Abstract [sv]

Intresset för, och betydelsen av samskapande (coproduction) i hälso- och sjukvård utvecklas både inom förbättringsarbete och forskning. Befintliga teorier och modeller inom förbättringsarbete videreutvecklas för att integrera samskapande, och nya modeller och verktyg testas – vilket möjliggör lärande från både praktik och forskning.

Syftet med denna avhandling är att utforska förbättringsarbete som integrerar samskapande, dels som en del av en kvalitetsstrategi i en svensk region, dels genom tillämpning av en samskapandemodell (co-value) inom multipel skleros (MS)-vården.

Avhandlingen omfattar fyra studier och har genomförts med en interaktiv forskningsansats samt kvalitativa och mixade metoder. Studierna undersöker samskapandets utveckling i ett regionalt hälso- och sjukvårdssystem, levda erfarenheter hos personer med MS, kontaktmönster med vården och hur gemensamma dokumenterade överenskommelser mellan patient och vård används. Datakällor inkluderar intervjuer, dokument, patientjournaler och registerdata.

Ett teoretisk ramverk för samskapande inom hälso- och sjukvård, med fyra ömsesidigt beroende perspektiv – patienter, professionella, system och vetenskapligt informerad praktik – har väglett syntesen av resultaten.

I patientperspektivet framträder en utveckling av patienternas roller i förbättringsarbete över tid – från att dela personliga berättelser till mer formaliserade och varierade former av deltagande. Inom MS-vården identifierades tre övergripande teman: att balansera hälsa, sjukdom och vardagsliv; ansvar och delaktighet i vården; samt att bli sedd och bemött med en vård som är lyhörd. Analys av medel- och medianvärden mellan olika kontaktnivåer med vården visar på ökade symtom, försämrad funktion och en nedgång i upplevd hälsa från lägsta till högsta kontaktfrekvens. Variablerna ålder, kön, allmän hälsa och funktionsnivå var signifikanta prediktorer för tillhörighet till en viss kontaktnivå, där varje variabel bidrog på olika sätt vid de olika nivåerna av kontaktfrekvens.

Ur professionens perspektiv framkommer olika uppfattningar om förbättringsinitiativ med samskapande – till exempel synen på patientroller och hur attityder förändrats över tid – men också farhågor kring delat ansvar och utvärdering. Användningen av dokumenterade överenskommelser (DSA) påverkades av organisatoriska rutiner, tillgång till information och tekniska begränsningar. Samtidigt utvecklades anpassningar, exempelvis genom att innehållet i dokumentationen förändrades över tid.

Ur ett systemperspektiv utvecklades arbetssätt för kvalitetsförbättring med samskapande på mikro-, meso- och makronivå, med ökad uppmärksamhet på patienters levda erfarenheter och varierande behov. Relationella aspekter av samskapande krävde ibland särskild facilitering och över tid bidrog nätverk och mer formaliserade processer till en mer hållbar och relationell infrastruktur. Inom MS-vården beskrevs både gemensamma och skilda behov inom populationen, och vårdsystemet hade utmaningar att möta denna variation. DSA användes på systemnivå men saknade ofta en relationell förankring.

Inom vetenskapligt informerad praktik återfanns exempel på olika metoder och angreppsätt för samskapande, där patienters erfarenheter, professionell kunskap och kvalitetsförbättringsteori sammanfördes. Kvalitetsregisterdata och administrativa data kombinerades med kvalitativa insikter för att undersöka variationer i patienters upplevelser och kontakter.

Även om flera av resultaten speglar kända förhållanden vid förändring i komplexa adaptiva system, ligger avhandlingens bidrag i hur dessa görs explicita genom tillämpning av mixade metoder och ett teoretiskt ramverk.

Sammantaget pekar resultaten på att fortsatt utveckling av förbättringsarbete som integrerar samskapande bör inriktas på två områden: att utveckla kunskap och metoder för en meningsfull förståelse och representation av olika patientgrupper och deras behov, samt att stärka förmågan att integrera olika perspektiv och logiker.

Place, publisher, year, edition, pages
Jönköping: Jönköping University, School of Health and Welfare , 2025. , p. 110
Series
Hälsohögskolans avhandlingsserie, ISSN 1654-3602 ; 147
Keywords [en]
quality improvement, coproduction, co-value, multiple sclerosis
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:hj:diva-69768ISBN: 978-91-88669-69-8 (print)ISBN: 978-91-88669-70-4 (electronic)OAI: oai:DiVA.org:hj-69768DiVA, id: diva2:1998057
Public defence
2025-10-03, Forum Humanum, School of Health and Welfare, Jönköping, 10:00 (Swedish)
Opponent
Supervisors
Available from: 2025-09-15 Created: 2025-09-15 Last updated: 2025-10-13Bibliographically approved
List of papers
1. Quality as strategy, the evolution of co-production in the Region Jönköping health system, Sweden: A descriptive qualitative study
Open this publication in new window or tab >>Quality as strategy, the evolution of co-production in the Region Jönköping health system, Sweden: A descriptive qualitative study
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2021 (English)In: International Journal for Quality in Health Care, ISSN 1353-4505, E-ISSN 1464-3677, Vol. 33, no Supplement 2, p. II15-II22Article in journal (Refereed) Published
Abstract [en]

Background: Pursuing the vision 'for a good life in an attractive region,' the Region Jönköping County (RJC) in Sweden oversees public health and health-care services for its 360 000 residents. For more than three decades, RJC has applied 'quality as strategy,' which has included increasing involvement of patients, family and friends and citizens. This practice has evolved, coinciding with the growing recognition of co-production as a fundamental feature in health-care services. This study views co-production as an umbrella term including different methods, initiatives and organizational levels. When learning about co-production in health-care services, it can be helpful to approach it as a dynamic and reflective process.

Objective: This study aims to describe the examples of key developmental steps toward co-production as a system property and to highlight 'lessons learned' from a Swedish health system's journey.

Method: This qualitative descriptive study draws on interviews with key stakeholders and on documents, such as local policy documents, project reports, meeting protocols and presentations. Co-production initiatives were defined as strategies, projects, quality improvement (QI) programs or other efforts, which included persons with patient experience and/or their next of kin (PPE). We used directed manifest content analysis to identify initiatives, timelines and methods and inductive conventional content analysis to capture lessons learned over time.

Results: The directed content analyses identified 22 co-production initiatives from 1997 until today. Methods and approaches to facilitate co-production included development of personas, storytelling, person-centered care approaches, various co-design methods, QI interventions, harnessing of PPEs in different staff roles, and PPE-driven improvement and networks. The lessons learned included the following aspects of co-production: relations and structure; micro-, meso-And macro-level approaches; attitudes and roles; drivers for development; diversity; facilitating change; new perspectives on current work; consequences; uncertainties; theories and outcomes; and regulations and frames.

Conclusions: Co-production evolved as an increasingly significant aspect of services in the RJC health system. The initiatives examined in this study provide a broad overview and understanding of some of the RJC co-production journey, illustrating a health system's approach to co-production within a context of long-standing application of QI and microsystem theories. The main lessons include the constancy of direction, the strategy for improvement, engaged leaders, continuous learning and development from practical experience, and the importance of relationships with national and international experts in the pursuit of system-wide health-care co-production.

Place, publisher, year, edition, pages
Oxford University Press, 2021
Keywords
co-design, co-production, health-care organization, patient involvement, quality improvement
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:hj:diva-55399 (URN)10.1093/intqhc/mzab060 (DOI)000755791300006 ()34849965 (PubMedID)2-s2.0-85121036165 (Scopus ID)HOA;;785478 (Local ID)HOA;;785478 (Archive number)HOA;;785478 (OAI)
Available from: 2021-12-20 Created: 2021-12-20 Last updated: 2025-10-13Bibliographically approved
2. Lived experience of persons with multiple sclerosis: A qualitative interview study
Open this publication in new window or tab >>Lived experience of persons with multiple sclerosis: A qualitative interview study
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2023 (English)In: Brain and Behavior, E-ISSN 2162-3279, Vol. 13, no 7, article id e3104Article in journal (Refereed) Published
Abstract [en]

INTRODUCTION: Multiple sclerosis (MS) is a chronic autoimmune disease with a substantial impact on quality of life and functional capability. The prognosis of MS has changed over time due to the development of increasingly effective therapies. As the knowledge and perceptions of persons living with chronic conditions increasingly have been acknowledged, it has become important to understand lived experiences with a focus on everyday events and experiences as a way of knowing and interpreting the world. Exploring context-specific lived experiences as a source of knowledge about the disease and care may contribute to more precision in designing care services. The aim of this study was to explore the lived experience of persons living with MS in a Swedish context.

MATERIALS AND METHODS: A qualitative interview study was conducted with both purposeful and random sampling strategies, resulting in 10 interviews. Data were analyzed using inductive thematic content analysis.

RESULTS: The analysis generated 4 overarching themes with 12 subthemes, the 4 themes were: perspectives on life and health, influence on everyday life, relations with healthcare, and shared healthcare processes. The themes are concerned with the patients' own perspectives and context as well as medical and healthcare-related perspectives. Patterns of shared experiences were found, for example, in the diagnosis confirmation, future perspectives, and planning and coordination. More diverse experiences appeared concerning relations with others, one's individual requirements, symptoms and consequences, and knowledge building.

CONCLUSION: The findings suggest a need for a more diverse and coproduced development of healthcare services to meet diverse needs in the population with greater acknowledgement of the person's lived experience, including consideration of the complexity of the disease, personal integrity, and different ways of knowing. Findings from this study will be further explored together with other quantitative and qualitative data.

Place, publisher, year, edition, pages
John Wiley & Sons, 2023
Keywords
coproduction, multiple sclerosis care, patient experience, quality improvement
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:hj:diva-60518 (URN)10.1002/brb3.3104 (DOI)000995986100001 ()37246453 (PubMedID)2-s2.0-85160921603 (Scopus ID)GOA;;882813 (Local ID)GOA;;882813 (Archive number)GOA;;882813 (OAI)
Funder
Futurum - Academy for Health and Care, Jönköping County Council, Sweden
Available from: 2023-05-30 Created: 2023-05-30 Last updated: 2025-10-13Bibliographically approved
3. Exploring Different Levels of Contact Frequency in Multiple Sclerosis Care
Open this publication in new window or tab >>Exploring Different Levels of Contact Frequency in Multiple Sclerosis Care
2025 (English)In: Brain and Behavior, E-ISSN 2162-3279, Vol. 15, no 7, article id e70634Article in journal (Refereed) Published
Abstract [en]

Introduction: Previous studies have identified differences in healthcare contacts, needs, and cost of care among persons living with multiple sclerosis (MS). The need for a deeper understanding of factors influencing healthcare contacts has been highlighted. The aim of this study was to explore different levels of healthcare contact frequency among persons living with MS.

Method: Both quantitative and qualitative data were collected, analyzed, and integrated in a parallel mixed-methods approach with data integration through joint display. Data were retrieved from the hospital administrative system, the Swedish national MS registry, and a previously conducted interview study. The population was divided into four segments based on healthcare contact frequency, ranging from Segment 1, with the fewest visits, to Segment 4, representing those with the most frequent contacts. Analyses were conducted using descriptive statistics, statistical tests on differences between segments, multinomial logistic regression, deductive content analysis, and integration.

Results: The mean and median distribution of individual study variables increased or decreased (depending on scale direction) between segments for most variables toward more symptoms, reduced function, and declining experiences of health from the lowest to the highest contact frequency. The probability of belonging to a certain segment was influenced by the explanatory variables age, gender, overall health, and expanded disability status with the different variables playing different roles for each segment. Qualitative findings also suggested increased physical limitations with increased level of healthcare contacts. This was not necessarily due to MS and influence of comorbidities was sometimes expressed. Both requests of less and more healthcare contacts existed and content of healthcare contacts could have more personalized design overall, health care was perceived positively across all segments. Data integration with merged interpretation included eight themes, characteristics of the population, neurological assessment and gait function, symptoms and consequences, fatigue and cognition, perspectives on health, examinations, interactions with health care, and disease duration and future. The merged interpretation confirmed patterns of symptoms, reduced function, and declining experiences of health from the lowest to the highest contact frequency and expanded on individual variation within segments and influenced by comorbidities. Discord in data regarded relations with others, aspects of medication, and knowledge building and type of MS.

Conclusion: The findings on distribution of variables and experiences across segments, were increase in symptoms, loss of function, and deterioration of health experience correlating with increased levels of contact frequency from Segments 1 to 4. The explanatory variables found were age, gender, overall health, and expanded disability. The merged interpretation, expand on individual differences on how symptoms were experienced and influenced by comorbidities. Discord found, regarding for example personal context and aspects of self-care where areas that may be overlooked in healthcare contacts. The explanatory variables identified in this study are suggested to be further explored together with the knowledge of persons living with MS and professionals.

Place, publisher, year, edition, pages
John Wiley & Sons, 2025
Keywords
care contacts, contact frequencies, multiple sclerosis care
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-69362 (URN)10.1002/brb3.70634 (DOI)001523656000001 ()40619983 (PubMedID)2-s2.0-105009825144 (Scopus ID)HOA;;1026903 (Local ID)HOA;;1026903 (Archive number)HOA;;1026903 (OAI)
Funder
Futurum - Academy for Health and Care, Jönköping County Council, SwedenMedical Research Council of Southeast Sweden (FORSS)
Available from: 2025-07-16 Created: 2025-07-16 Last updated: 2025-10-13Bibliographically approved

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