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  • 1.
    Fallgren, Belinda
    et al.
    Umeå University, Faculty of Medicine, Department of Nursing.
    Edholm Valter, Lina
    Umeå University, Faculty of Medicine, Department of Nursing.
    Erfarenheter av att vara anhörig till en närstående med tidigt debuterande demenssjukdom: - En litteraturstudie om famlijens upplevelser2015Independent thesis Advanced level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Early-onset dementia, affecting people under the age of 65, is a growing disease world-wide. The symptoms occurs as changes in personality, concentration difficulties and memory losses. The disease leads to a life-long need of care and support, which often requires that the relatives contribute with.

    Aim: The aim of this literature study was to explore the experiences of being a relative to a close one with early-onset dementia.

    Method: Eight qualitative studies were included in this literature review. Friberg’s model for literature reviews was used for the analysis.

    Result: The sub-categories who emerged were divided into 5 categories which highlights experiences of being a relative to a close one with early-onset dementia; The horrible diagnosis, emotional reactions, coping with the difficult situation, changes in the life-situation, support and lack of support.

    Conclusion: Overall the relatives experienced a lack of support from health-care services. They felt unseen and misunderstood which led them to be unable to contribute accurate help to the person with early-onset dementia. This feeling of being inadequate could impair their health. Therefore it is important for nurses to focus on the entire family when giving care.

     

    Key-words: Early-onset dementia, family, care-giver, experience, needs

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