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  • 1. Ducharme, Francine
    et al.
    Lévesque, Louise
    Caron, Chantal
    Hanson, Elizabeth
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Nolan, Janet
    Nolan, Mike
    Validation d'un outil pour les proches-aidants2009Inngår i: Recherche en soins infirmiers, ISSN 0297-2964, Vol. 97, s. 63-73Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The purpose of this transcultural study was to translate and adapt for the province of Quebec (Canada) a tool for assessing the support needs of family caregivers of aging persons, as well as to validate the relevance and feasibility of its utilization in Quebec homecare services. Developed jointly in the United Kingdom and Sweden and based on a caregiver-service provider partnership process, the Carers Outcome Agreement Tool (COAT) is presently the focus of a large-scale implementation study in Sweden. Following parallel back-translation and adaptation, the tool, entitled Entente sur le Soutien aux Proches-Aidants (ESPA) in French, was validated in terms of relevance and feasibility via focus groups with service providers and interviews with family caregivers. Results show the ESPA to be a culturally sensitive tool that systematically identifies the support needs of caregivers and indicates the type of help best suited to meet these needs. As with other European studies, the results suggest that the caregiver role comprises a common core of needs and highlights the tool's potential for transfer to the cultural context of French-speaking Europe.

  • 2.
    Hanson, E
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Arvidsson, H
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Keady, J
    Magnusson, L
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Claesson, A
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Nolan, M
    Working together with persons with early stage dementia and their family members to design a user-friendly technology based support service2007Inngår i: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 6, nr 3, s. 411-434Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This article describes how researchers, practitioners and technicians in West Sweden worked together with older people with early stage dementia and their family members to develop a user-friendly technology-based information, education and support service, based on the generic ACTION participatory design model. Ways of working in partnership with older people with early stage dementia and their family members are explored, and key lessons learned are highlighted. The overriding message is that elders with early stage dementia can be actively involved throughout the entire research and development process. Essential prerequisites are time and ongoing support by skilled practitioners and family members. Preliminary findings reveal that older people with early stage dementia can learn and benefit from user-friendly technology, especially when used together with others in a similar situation.

  • 3.
    Hanson, E
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, L
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Amilon, K
    E-tjänster öppnar nya världar2009Inngår i: Tidningen Äldreomsorg, ISSN 1403-7025, nr 3, s. 38-41Artikkel i tidsskrift (Annet (populærvitenskap, debatt, mm))
  • 4.
    Hanson, E
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, L
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Torp, S
    Hauge, S
    Ulstein, I
    A Pilot study of how information and communication technology may contribute to health promotion amongst older spousal carers in Norway2008Inngår i: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 16, nr 1, s. 75-85Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The objective of this pilot Norwegian intervention study was to explore whether use of information and communication technology (ICT) by informal carers of frail elderly people living at home would enable them to gain more knowledge about chronic illness, caring and coping, establish an informal support network and reduce stress and related mental health problems. Potential participants were close relatives of an elderly person with a diagnosis of a chronic illness dwelling in the same household who wished to continue caring for their relative at home, were 60 years of age or older, had been caring for less than 2 years, were a computer novice and had Norwegian as their first language. Nineteen elderly spousal carers participated in the study from two municipalities in eastern Norway. The project commenced in January 2004 and consisted of a multimethod evaluation model. Outcomes measured included carers’ social contacts (measured by the Family and Friendship Contacts scale); burden of care (measured by the Relative Stress scale); and knowledge about chronic disease and caring, stress and mental health and use of ICT (examined via a composite carer questionnaire). These quantitative data were collected immediately prior to the study and at 12 months. Qualitative data were also collected via focus group interviews with participant carers at 7 months. At follow-up, quantitative measures did not reveal any reduction in carer stress or mental health problems. However, carers reported extensive use of the ICT service, more social contacts and increased support and less need for information about chronic illness and caring. Contact with and support from other carers with similar experiences was particularly valued by participants. The intervention also enhanced contacts with family and friends outside the carer network. Thus, it can be seen that ICT has the potential to contribute to health promotion among elderly spousal carers.

  • 5.
    Hanson, E
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Svensson, P
    Arvevik, F
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, L
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Nolan, M ()
    Grant, G ()
    Keady, J ()
    ACTION: (Assisting Carers using Telematic Interventions to meet Older People’s Needs): from idea to reality.2007Inngår i: User Participation in Health and Social Care Research: voices, values and evaluation. / [ed] M Nolan, E Hanson, G Grant, J Keady, Maidenhead : Open University, 2007 , 2007Kapittel i bok, del av antologi (Annet vitenskapelig)
  • 6.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Informations- och kommunikationsteknologi i vård och omsorg för äldre: en etisk översikt2004Inngår i: Helse og helhet : etiske og tverrfaglige perspektiver på helsefaglig teori og praksis / [ed] Jon Vegar Hugaas, Jan Kåre Hummelvoll, Hans Magnus Solli, Unipub forlag, Oslo , 2004Kapittel i bok, del av antologi (Annet vitenskapelig)
  • 7.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    The role of ICT support services to promote ageing in place: The ACTION service2011Inngår i: Eurohealth, ISSN 1356-1030, Vol. 17, nr 2-3, s. 24-26Artikkel i tidsskrift (Annet vitenskapelig)
    Abstract [en]

    ACTION (Assisting Carers using Telematics Interventions to meet Older people’s Needs) is an innovative example of an Information and Communication Technology (ICT) based support service that is currently running in Sweden to help empower older people with chronic conditions and their family carers in their daily lives. The service is outlined and the main evaluation findings are presented. Sirpa explains how ACTION has been of direct benefit in her caring situation. The main lessons learned over a fourteen year period of implementing ACTION in Sweden are highlighted, concluding with the main challenges facing researchers, policy makers and decision makers in the immediate future

  • 8.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Brovall, Carita
    Gustafsson, Gunilla
    Alexandersson, Erik
    Alexandersson, Sven
    Benjaminsson, Anneli
    Berg, Åsa
    Blomqvist, Alice
    Johansson, Leni
    Lagerqvist, Gunnel
    Lehtiranta, Lena
    Lundgren, Gunvor
    Skattberg, Vivian
    Sundqvist, Nanny
    Wernering, Göran
    Eriksson, Inger
    Mål och policy vid palliativ vård och vård i livets slutskede för äldre och deras närstående i Tranemo: Ett gemensamt synsätt2004Rapport (Annet vitenskapelig)
    Abstract [sv]

    Rapporten beskriver ett utvecklingsprojekt med målsättningen att arbeta fram ett mål- och policyprogram för vård i livets slutskede i Tranemo, i samverkan med representanter för medborgare, frivilligorganisationer, kyrka och egen vårdpersonal.

  • 9.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Karlsson, Per-Åke
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Arvevik, Fredrik
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Svensson, Paul
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Arvidsson, Helen
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Claesson, Anette
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Brukarens roll i välfärdsforskning och utvecklingsarbete2011Rapport (Annet vitenskapelig)
    Abstract [sv]

    På 1980-talet blev ”brukare” ett modeord i offentlig förvaltning och förvaltningsforskning. Termen betecknar den som använder sig av välfärdsservice (jfr. engelskans service user), eller ”slutmottagare” av offentlig nyttighet eller åtgärd. Brukare av välfärdstjänster vet hur hjälp och service fungerar i praktiken och kan därför ge synnerligen viktig återkoppling enligt devisen: ”Den som har skorna på fötterna vet var de skaver”. Välfärdsorganisationer har all anledning att involvera brukare i planering och policyarbete i syfte att utveckla förmågan att göra rätt saker. Det finns inte mycket dokumentation och forskning kring brukarmedverkan i utvecklingsarbete och forskning på välfärdsområdet. I synnerhet saknas kunskap om hur välfärdstjänster tas emot och realiseras i brukarens livssammanhang. En ambition i doktorandkursen ”brukarmedverkan i forskning och utvecklingsarbete inom hälso- och sjukvård, socialt arbete och omsorg” var att samla och presentera kunskaper på området. Kursen genomfördes våren 2009 i ett unikt samarbete mellan Karlstads Universitet, Sheffield University i England, Högskolan i Hedmark i Norge, Hälsohögskolan i Jönköping och Högskolan i Borås/FoU Sjuhärad Välfärd. Texterna i denna bok härrör från kursens föreläsningar och paperarbeten. De ger många exempel på hur brukare kan involveras i forskning och utvecklingsarbete, och presenterar en rad praktiska metoder för brukarsamverkan. Boken rekommenderas till välfärdens politiker och yrkespersoner, till studenter som förbereder sig för välfärdens yrken liksom till forskare och utvecklingsarbetare som vill utveckla samarbete med brukare och brukarorganisationer. Den vänder sig givetvis även till brukare och brukarorganisationer som vill engagera sig i forskning och utvecklingsarbete.

  • 10.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Nolan, Janet
    Swedish experiences of negotiated approach to carer assessment: The Carers Outcome Agrement Tool.2008Inngår i: Journal of Research in Nursing, ISSN 1744-9871, E-ISSN 1744-988X, Vol. 13, nr 5, s. 391-407Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Given that the majority of frail older people living at home are cared for by family members, ensuring appropriate and sensitive support services for family carers is a major policy priority globally. Such assessment of the needs and situation of individual carers is a crucial first step towards ensuring that they receive flexible, quality support services. However, existing assessment practice is still inadequate in many countries. This paper describes a negotiated approach to carer assessment, the Carers Outcome Agreement Tool (COAT) and briefly considers its development with carers and practitioners in an Anglo-Swedish development project (2003–2005) and subsequent implementation within five municipalities in Sweden (2006–2008). A participatory research design was adopted in both projects building on the ÄldreVäst Sjuhärad model, which is a user-focused approach to research and development. This paper provides a short summary of the COAT development before presenting the qualitative findings from the Swedish implementation project (2006–2008), which emerged from focus group interviews with COAT practitioners and telephone follow-up interviews with carers who had a first and second COAT assessment. The findings clearly highlight the value of COAT in enabling partnerships to be developed between carers and practitioners, which recognise the expertise of both parties. They also challenge providers to invest sufficient time and ‘ear-marked' resources for family care support so that COAT becomes an integral part of a comprehensive long-term carer strategy, which feeds directly into local developments in service delivery and organisation.

  • 11.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Nolan, Janet
    Johansson, Lennarth
    Sennemark, Eva
    Planeringsinstrument för anhörigstöd2005Rapport (Annet vitenskapelig)
    Abstract [sv]

    Detta arbete har syftat till att utveckla och pröva ett instrument för planering, uppföljning och utvärdering av stöd till anhörigvårdare. Arbetet har genomförts i Sverige och England och bygger på tidigare forskning avseende anhörigstöd, brukarmedverkan och partnerskap vid ÄldreVäst Sjuhärad, Högskolan i Borås och Universitetet i Sheffield. Instrumentet benämns COAT (Carers´ Outcome Agreement Tool). Det färdiga instrumentet består av fyra frågeformulär och baseras på områden identifierade som viktiga av anhöriga som vårdar en närstående. Varje formulär innehåller ett antal påståenden som den anhöriga i diskussion med den som svarar för planeringen får möjlighet att värdera. Till varje område hör en stödplan för planering av åtgärder, uppföljning och utvärdering av den överenskomna hjälpen. En användarguide som vänder sig till de anhöriga och en manual som vänder sig till vård- och omsorgspersonalen har utarbetats. Omfattande konsultationer i form av fokusgrupper med anhöriga och vård- och omsorgspersonal har använts för att arbeta fram instrumentet. Instrumentet har prövats i tre svenska kommuner, Göteborg, Ulricehamn och Härnösand, av vård- och omsorgspersonal med erfarenhet av anhörigstöd. Efter varje samtal med anhöriga dokumenterades hur instrumentet hade fungerat och hur anhöriga och de själva upplevt samtalet samt förslag på förbättringar. Uppföljande telefonintervjuer genomfördes med de anhöriga och fokusgruppsintervjuer genomfördes med vård- och omsorgspersonalen. Testarbetet visade att majoriteten av anhörigvårdarna upplevde hembesöket och möjligheten att få tala om sin situation som mycket positivt. De kände sig involverade och lyssnade till. Personalen uppgav att de fick ny kunskap och nya insikter även om det var anhörigvårdare som de känt länge. De synpunkter som framkom har åtgärdats i det instrument som medföljer denna rapport. Anhörigvårdarna och personalen som deltagit i utvecklingsarbetet bedömer nu att instrumentet är färdigt att användas. Det stora intresse och positiva gensvar som framkommit från alla berörda grupper under projektets gång talar för att det finns en ökande vilja att möta anhörigvårdare där de är och att arbeta tillsammans med dem. Planeringsinstrumentet för anhörigstöd, COAT, kan vara till stor nytta i ett sådant arbete.

  • 12.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Nolan, Janet
    Nolan, Mike
    Developing a model of participatory research involving researcher, practitioners, older people and their family carers: An internationel collaboration2006Inngår i: Journal of Research in Nursing, ISSN 1744-9871, E-ISSN 1744-988X, Vol. 11, nr 4, s. 325-342Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The care of frail older people and their family carers present significant challenges for welfare systems throughout the world. In order to address their needs, policy initiatives are promoting partnership working between service users, family carers and providers, whereby the former are increasingly involved in the design and evaluation of services. However, participatory models of working raise fundamental issues about power relations and pose important questions about what constitutes ‘evidence’. Several authors identify tensions between movements such as evidencebased practice and initiatives designed to increase the active participation of service users suggesting that there is a need for a new approach to research that reconciles potentially conflicting goals. This paper describes the evolution of a model of participatory research resulting from a collaboration between Sweden and the United Kingdom, which actively involved older people, family carers, service providers and voluntary organisations. The model is underpinned by constructivist principles that have been adapted by the authors so as to be more intellectually accessible to a nonacademic audience. The conceptual basis for the model is described and a case study illustrates how it is applied in practice. It is argued that the approach could be adopted widely as a means of more fully engaging older people, their families and a range of service providers in important debates about future health and social care provision.

  • 13.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Nolan, Mike
    Sennemark, Eva
    Nolan, Janet
    Johansson, Lennarth
    Carers Outcome Agreement Tool, A new approach to working with family carers2006Rapport (Annet vitenskapelig)
    Abstract [en]

    This report describes a joit Anglo-Swedish project to develop and pilot both a new instrument, the Carers Outcome Agreement Tool (COAT), and a new model of working with family carers based om creating partnership between carers, practitioners and service systems. Most countries are pursuing a policy of community care for older people and vast majority of the help that older need to remain at home is provided by their family. Ensuring appropriate and senitive support sevices for family carers is therefore a major policy priority. COAT has been designed to help overcome existing limitations by promoting a new approach to carer assesement and service provision. It builds om several years of research om carer assement, and is based om a model that views the carer as a `co-expert`. Carers and practitioners therefore work together to agree the type of goals and outcomes that carers see as important, and the support needed to achieve these.

  • 14.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Sennemark, Eva
    Blended Learning Networks Supported by Information and Communication Technology: An Intervention for Knowledge Transformation Within Family Care of Older People2011Inngår i: The Gerontologist, ISSN 0016-9013, E-ISSN 1758-5341, Vol. 51, nr 4, s. 561-570Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This article describes an innovative practice called Blended Learning Networks (BLNs) whose aim is to enable older people, their families, and care providers to exchange knowledge, learn together, and support each other in local development work so that care is improved for older people. BLNs were established in 31 municipalities, headed up by a local facilitator. They were supported by a national themed network consisting of virtual meetings between local facilitators and national facilitators at the Swedish National Family Care Competence Centre. Design and Methods: An evaluation was conducted to explore the utility of the BLNs so that any improvements to the model could be instigated. Focus group interviews were conducted with members of 9 BLNs, and self-evaluation questions were discussed in 16 BLNs. Limitations are that not all BLN members participated in the evaluation, and local facilitators conducting self-evaluations were not trained in focus group dynamics. Virtual focus groups were carried out with 26 of the 31 local facilitators and with the national facilitators. Results: Participants reported an increased understanding of caregiver issues and of each group’s roles. Of particular value were the stories shared by caregivers and the potential for change locally due to the involvement of decision makers. The practice demanded considerable skills of the local facilitators. An initialeducation for new local facilitators was deemed necessary. Implications: BLNs is a unique practice of community communications and knowledge transfer as it creates partnerships among all key stakeholder groups that act as a catalyst for improving care for older people

  • 15.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Sennemark, Eva
    "Jag har ju barnen som kommer..." Äldres hälsa och levnadsvillkor; en intervjuundersökning med vård och omsorgsberoende i Sjuhäradsbygden2005Rapport (Annet vitenskapelig)
    Abstract [sv]

    Hälsan och livskvaliteten har förbättrats för den äldre befolkningen, samtidigt som ohälsan ökar med stigande ålder. Antalet äldre ökar, liksom behovet av vård och omsorg, samt stöd till anhöriga. För att möta dessa krav och utveckla vård och omsorg för äldre och deras anhöriga krävs ökad kunskap inom området. Rapporten är en del av ett projekt om äldres hälsa och levnadsvillkor i Sjuhärad och Västra Götaland. Syftet med studien är att kartlägga äldre hälsa och livssituation, bidra med viktigt underlag för planering av vård och omsorg för äldre och identifiera de områden inom vård och omsorg som bör vidareutvecklas.

  • 16.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Sennemark, Eva
    Practice Concepts and Policy Analysis2011Inngår i: The Gerontologist, ISSN 0016-9013, E-ISSN 1758-5341, Vol. 51, nr 2, s. 261-272Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This article describes an innovative practice called Blended Learning Networks (BLNs) whose aim is to enable older people, their families, and care providers to exchange knowledge, learn together, and support each other in local development work so that care is improved for older people. BLNs were established in 31 municipalities, headed up by a local facilitator. They were supported by a national themed network consisting of virtual meetings between local facilitators and national facilitators at the Swedish National Family Care Competence Centre. Design and Methods: An evaluation was conducted to explore the utility of the BLNs so that any improvements to the model could be instigated. Focus group interviews were conducted with members of 9 BLNs, and self-evaluation questions were discussed in 16 BLNs. Limitations are that not all BLN members participated in the evaluation, and local facilitators conducting self-evaluations were not trained in focus group dynamics. Virtual focus groups were carried out with 26 of the 31 local facilitators and with the national facilitators. Results: Participants reported an increased understanding of caregiver issues and of each group's roles. Of particular value were the stories shared by caregivers and the potential for change locally due to the involvement of decision makers. The practice demanded considerable skills of the local facilitators. An initial education for new local facilitators was deemed necessary. Implications: BLNs is a unique practice of community communications and knowledge transfer as it creates partnerships among all key stakeholder groups that act as a catalyst for improving care for older people.

  • 17.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Wingqvist, Ingegerd
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Sennemark, Eva
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Meningsfull vardag i särskilt boende2006Rapport (Annet vitenskapelig)
    Abstract [sv]

    Rapporten presenterar huvudfynden från ett samverkansprojekt mellan ÄldreVäst Sjuhärad och en kommun i Sjuhäradsbygden. Syftet var att i samarbete med boende, närstående samt vård- och omsorgspersonal undersöka innehållet i en meningsfull vardag för äldre på ett särskilt boende i Sjuhärad. Vidare att ge rekommendationer inför det framtida vård –och omsorgsarbetet för att därigenom öka de boendes livskvalitet och vård –och omsorgskvalitet, de närståendes tillfredsställelse med denna samt att öka arbetstillfredsställelsen för vård –och omsorgspersonal.

  • 18.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Ärnström, Ulf
    Teknik för anhöriga som hjälper och vårdar: en behovsstudie2009Rapport (Annet vitenskapelig)
    Abstract [sv]

    Det är vanligt att äldres anhöriga hjälper och vårdar närstående. Utvecklingen av hjälpmedel utgår dock sällan från att även anhöriga ofta använder hjälpmedlen. Syftet med denna skrift är att öka kunskapen om vilka behov och lösningar det finns i dag.

  • 19.
    Hanson, Elizabeth
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Ärnström, Ulf
    Utbildningsmaterial om partnerskap och anhörigvård, lärdomar och röster från lärande nätverk i sex kommuner2009Annet (Annet vitenskapelig)
  • 20. Lévesque, Louise
    et al.
    Ducharme, Francine
    Caron, Chantal
    Hanson, Elizabeth
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Nolan, Janet
    Nolan, Mike
    A partnership approach to service needs assessment with family caregivers of an aging relative living at home: A qualitative analysis of the experiences of caregivers and practitioners2010Inngår i: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 47, nr 7, s. 876-887Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background As the global population ages, support for family caregivers who provide the bulk of care to community-dwelling older people is becoming ever more important. However, in many countries, homecare-service practitioners currently do not follow a systematic approach to assessing and responding to caregiver needs. Objectives The aim of this study was to explore the experiences of caregivers and practitioners who took part in a field test of the Family Caregivers Support Agreement (FCSA) tool, a modified version of the Carers Outcome Agreement Tool (COAT) initially developed as the result of an Anglo-Swedish study. Both the COAT and the FCSA are designed to facilitate partnerships between caregivers and practitioners so that needs assessment and subsequent support services are negotiated and agreed so as to meet caregiver expectations. Design and participants A qualitative design was adopted and data were collected through focus groups with six practitioners (nurses and social workers) working in two Local Community Service Centres in the province of Quebec (Canada). These practitioners had previously completed the FCSA tool with 17 primary caregivers of frail elderly relatives who were clients of homecare services. Individual interviews were conducted with the caregivers to explore their experiences. Data were analyzed to identify significant themes, from the perspectives of caregivers and practitioners, which provided insights into their experiences and the strategies used by practitioners to facilitate partnership working. Findings To facilitate meaningful exchanges, practitioners adopted strategies such as sensitive listening and the use of enabling questions to identify and contextualize caregiver needs and to highlight the ability of caregivers to find their own creative solutions to the challenges they face. The caregivers described experiencing a climate of trust that allowed them to express their concerns, to reflect upon their situation and to participate in the development of an action plan for their support. Conclusions The study reaffirms findings from Sweden and UK that the use of a tool such as the FCSA enhances partnership working and creates a caregiver–practitioner relationship based on a genuine alliance. As a result, both parties gain new insights into the caring situation. The approach underpinning the FCSA tool has potential for a more widespread application in different contexts.

  • 21.
    Magnusson, L
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Hanson, E
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Savolainen, L
    Gustavsson, T
    An Internet based videoconferencing system for supporting frail elderly people and their carers2008Inngår i: Journal of Telemedicine and Telecare, ISSN 1357-633X, E-ISSN 1758-1109, Vol. 14, nr 2, s. 79-82Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The ACTION project uses information and communication technology to support frail elderly people and their family carers. The aims are to enhance their quality of life, independence and preparedness and to break social isolation. A videoconferencing system, connecting homes and a call centre, was used in a pilot study in 1997-2002. A re-designed system was brought into use in late 2004 and over 60 new units were introduced during the first six months. The new system was evaluated with an interview study and by data logging. Eight family users and four professional carers were interviewed. The family users had used the videophone at least six times and they had had the equipment at home for at least two months. The average number of initiated calls per user was 5.7 per month and the average call time per user was 40 min per month. Seven of the users (88%) reported that the system very much reduced their sense of loneliness and isolation. The results of the evaluation were encouraging. There were several frequent users of videoconferencing. System quality was acceptable although a shorter audio delay would be desirable. The system was used regularly by the participants and it fulfilled its purpose

  • 22.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Designing a responsive support service for family carers of frail older people using information and communication technology2005Doktoravhandling, monografi (Annet vitenskapelig)
  • 23.
    Magnusson, Lennart
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Hanson, Elizabeth
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Ethical issues arising from a research, technology and development project to support frail older people and their family carers at home2003Inngår i: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 11, nr 5, s. 431-439Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The present paper provides an overview of the application of the key ethical issues which arose in an EU-funded research, technology and development project, Assisting Carers using Telematics Interventions to meet Older Persons’ Needs (ACTION). The primary aim of the ACTION project was to support frail older people and their family carers in their own homes across England, Northern Ireland, the Republic of Ireland, Sweden and Portugal via the use of user-friendly information and communication technology. Ethical guidelines were developed in the project and used as a tool to enable the multidisciplinary project team to increase their awareness of ethical issues in their everyday work, and to act as a useful ethical framework for regular team discussions at international and local meetings across the partner countries. A range of ethical issues arose during the field-study phases of the project when the ACTION services were introduced into a number of families’ own homes. It can be argued that these ethical issues reflect factors relating both to the application of research into practice, as well as those relating more directly to the use of new technology by families and care professionals. Key issues centre upon the ethical concepts of autonomy, independence, quality of life, beneficence, non-maleficence and justice, and more specifically, on ethical issues of security, privacy and confidentiality, increased expectations, and withdrawal of the service. This paper is intended to facilitate dialogue and debate in the area of enabling (assistive) technology in home care for older people and their families.

  • 24.
    Magnusson, Lennart
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Hanson, Elizabeth
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    IT som stöd för närstående2004Inngår i: Närståendes behov : omvårdnad som akademiskt ämne III / [ed] Gerthrud Östlinder, Svensk sjuksköterskeförening , 2004Kapittel i bok, del av antologi (Annet vitenskapelig)
  • 25.
    Magnusson, Lennart
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Hanson, Elizabeth
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Supporting frail older people and their family carers at home using information and communication technology: cost analysis2005Inngår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 51, nr 6, s. 645-657Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Aim. This paper describes a cost analysis of a home-based support service for frail older people and their family carers in two municipalities in West Sweden and using information and communication technology. Background. A key challenge facing nurse managers across Europe is an increasingly aged population, combined with reduced numbers of young adults of working age. New solutions are needed to provide quality, cost-effective community care services to frail older people and their family carers. Methods. A case study methodology involving five families was used, and included a detailed cost description of the technology-based service compared with usual services. Cost data were collected in June 2002. This work formed part of a larger project exploring the impact of a technology-based service known as, Assisting Carers using Telematics Interventions to meet Older Persons’ Needs (ACTION). In addition to cost data, information was gathered on the quality of life of frail older people and their family carers, and the job satisfaction and work methods of nurses and other practitioners based in the community. The cost analysis comprised a description of the family and their caring situation, the perceived benefits of the telematic based support service and an assessment of its impact on the use of other care services. These analyses were carried out with the help of needs assessors who were known to the families, and nurses working in the ACTION call centre. All results were validated by the five participating families. Results. Cost savings were achieved in all cases, and the benefits to older people and their carers were also considerable. As a result of the cost analysis and overall evaluation data, ACTION has been implemented as a mainstream service in the municipalities involved. Conclusion. Researchers, nurses, other practitioners and community care managers can work together with frail older people and their family carers to develop quality, cost-effective support services that reduce demands on staff whilst providing benefits to users.

  • 26.
    Magnusson, Lennart
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Hanson, Elizabeth
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Gough, Ritva
    Ett centrum för samlad kompetens2009Inngår i: Tidningen Äldreomsorg, ISSN 1403-7025, nr 3, s. 15-20Artikkel i tidsskrift (Annet (populærvitenskap, debatt, mm))
  • 27.
    Magnusson, Lennart
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Hanson, Elizabeth
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Nolan, Mike
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    The impact of information and communication technology on family carers of older people and professionals in Sweden2005Inngår i: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 25, nr 5, s. 693-713Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Government policy in Sweden, as in other developed countries, pays increasing attention as to how best to support the family carers of older people. New and innovative means of support, such as information and communication technology, are emerging. This paper explores the perceived benefits of, and barriers to, information technology as a means of supporting family carers of older people. Following a brief overview of the care-giving literature, with particular reference to the Swedish context, interview and questionnaire data collected from 34 families who took part in the Swedish ACTION project are used to explore the role of user-friendly information and communication technology to inform and enable family carers of older people to exercise choice, to care more effectively and to work in partnership with professionals. Interview data from two groups of professionals that utilised ACTION are also examined to throw light on its potential benefits for both carers and professionals. Consideration is given to the barriers to using information technology, and to identifying those carers most likely to benefit. Areas for further development are the need for practitioners’ education and a wider range of programmes to address carers’ diverse needs. Clearly, lessons learned from the Swedish project have wider relevance, given that new forms of support are being developed in most technically advanced countries.

  • 28.
    Magnusson, Lennart
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Nilsson, Martin
    Hälsa och levnadsvillkor i relation till fallolyckor bland äldre personer i Sjuhäradsbygden2003Rapport (Annet vitenskapelig)
    Abstract [sv]

    Rapporten handlar om hur man kan förebygga v fallolyckor hos personer över 65 år. Antalet fallolyckor har ökat, vilket till viss del beror på ökat antal äldre människor och på minskning av fysisk aktivitet. Rapporten syftar till att beskriva hälsa och livssitauation för äldre personer som råkat ut för fallolycka under de tre senaste månaderna, samt till att beskriva riskfaktorer kring uppkomst av fallolyckor och förhindrande av uppkomsten av fallolyckor.

  • 29.
    Magnusson, Lennart
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Sandman, Lars
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Rosén, Karl G
    Högskolan i Borås, Institutionen Ingenjörshögskolan.
    Nyttoeffekter med mobila trygghetslarm för personer med demenssjukdom och deras anhöriga2013Rapport (Annet vitenskapelig)
    Abstract [sv]

    För kommunerna utgör kostnaderna för personer med demenssjukdom mer än 40 procent av deras totala kostnader för vård och omsorg och vi vet att samhällets insats förväntas öka framgent. Risken är att resurserna inte kommer att räcka till för att bevara en optimal livskvalité. Ett sätt att möta detta är att utnyttja olika tekniska lösningar. Mobila trygghetslarm är en möjliggörande teknologi med stor potential. Huvudsyftet med studien var att se på vilken grund mobila trygghetslarm kan vara ett verktyg som utvecklar vården och omsorgen för personer med demenssjukdom och underlättar för deras familjer i den dagliga tillvaron. Studien fokuserade på personer med demenssjukdom i eget boende.

  • 30.
    Sennemark, Eva
    et al.
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Hanson, Elizabeth
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Magnusson, Lennart
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Gemenskap på äldre da´r: En studie om äldre kinesers livsituation, behov och önskemål inför ålderdomen2005Rapport (Annet vitenskapelig)
    Abstract [sv]

    Syftet med den aktuella pilotstudien var att få en ökad kunskap om livssituationen och framtida behov av vård och omsorg för äldre med kinesiskt ursprung i Borås. Totalt deltog nitton personer i studien, de fl esta med sinovietnamesisk bakgrund. Intervjuer och fokusgrupper med äldre män och kvinnor har legat till grund för undersökningen. Resultatet visar att även om fl era av de intervjuade upplever att de tappat en del av sin kinesiska kultur så fi nns viktiga karaktärsdrag kvar som påverkar vardagslivet. Den kinesiska kulturen beskrivs som social, sällskaplig och hårt arbetande. Det fi nns också en tydlig önskan om att klara sig själv och att ta hand om sina föräldrar och barn. Status och buddistisk tro är andra delar av livet som beskrivs av de intervjuade. I hemlandet var tregenerationsfamiljer vanliga medan detta förändrats i Sverige, ofta mot de äldres vilja. Flera av de intervjuade äldre har inget barn i närområdet, vilket skapar oro inför framtiden. Livet i Sverige beskrivs på många sätt som kontrast till livet i Vietnam eller Kina. Bristande språkkunskaper i svenska blir ett praktiskt och socialt handikapp som går igen i stora delar av vardagslivet. Många av de äldre blir beroende av sina barn, som arbetar och har svårt att hjälpa till med allt som önskas. Kvinnogruppen som träffas i Vårt Norrbys lokaler i Borås är ett exempel på hur man lyckats förändra livssituationen till det bättre och skapat en social gemenskap. Dock säger de äldre kvinnorna att de är rädda för att bli sjuka och undviker att själva ta kontakt med sjukvården. Orsaker är – förutom rent språkliga – även tekniska, såsom svårigheter att knappa in telefonnummer och personnummer. Kunskapen om svensk äldreomsorg är bristfällig och ingen säger sig ha sett någon information på kinesiska. Språkbarriären och i viss mån den svenska mejerimaten framförs som skäl till att det idag är svårt att ta emot svensk äldreomsorg. Alla de intervjuade uttrycker önskemål om någon form av kinesiskt äldreboende och/eller dagverksamhet med kinesisktalande personal. Dels för att kunna få en god vård och omsorg som gamla men också för att kunna dela viktiga kulturella traditioner som mat, religion och sedvänjor med sina landsmän. Många är medvetna om att de utgör en liten grupp men kan tänka sig att bo i samma hyreshus eller på en asiatisk avdelning. De yngre önskar detta för sina föräldrars räkning och ibland även för sin egen räkning. Flera av de yngre kan dock tänka sig att i framtiden bo på ett svenskt äldreboende om inga andra alternativ fi nns. Studien visar att det fi nns ett behov av dialog mellan den kinesiska gruppen och primärvård/ äldreomsorg för att hitta alternativa lösningar. Bristen på information skapar idag misstänksamhet gentemot kommunal äldreomsorg och kommunens möjligheter att hjälpa till. Detta visar på ett behov att skapa ett förtroendefullt förhållande mellan kommun och äldre med kinesiskt ursprung.

  • 31. Torp, S
    et al.
    Hanson, E
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    Hauge, S
    Ulstein, I
    Magnusson, L
    Högskolan i Borås, Institutionen för Vårdvetenskap.
    A pilot study of how information and communication technology may contribute to health promotion amongst older spousal carers, Health and Social Care in the Community2007Inngår i: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 16, nr 1, s. 75-85Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The objective of this pilot Norwegian intervention study was to explore whether use of information and communication technology (ICT) by informal carers of frail elderly people living at home would enable them to gain more knowledge about chronic illness, caring and coping, establish an informal support network and reduce stress and related mental health problems. Potential participants were close relatives of an elderly person with a diagnosis of a chronic illness dwelling in the same household who wished to continue caring for their relative at home, were 60 years of age or older, had been caring for less than 2 years, were a computer novice and had Norwegian as their first language. Nineteen elderly spousal carers participated in the study from two municipalities in eastern Norway. The project commenced in January 2004 and consisted of a multimethod evaluation model. Outcomes measured included carers' social contacts (measured by the Family and Friendship Contacts scale); burden of care (measured by the Relative Stress scale); and knowledge about chronic disease and caring, stress and mental health and use of ICT (examined via a composite carer questionnaire). These quantitative data were collected immediately prior to the study and at 12 months. Qualitative data were also collected via focus group interviews with participant carers at 7 months. At follow-up, quantitative measures did not reveal any reduction in carer stress or mental health problems. However, carers reported extensive use of the ICT service, more social contacts and increased support and less need for information about chronic illness and caring. Contact with and support from other carers with similar experiences was particularly valued by participants. The intervention also enhanced contacts with family and friends outside the carer network. Thus, it can be seen that ICT has the potential to contribute to health promotion among elderly spousal carers.

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