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  • 1.
    Lindqvist, Olav
    et al.
    Umeå universitet, Medicinska fakulteten, Institutionen för omvårdnad.
    Tishelman, Carol
    Going public: reflections on developing the DöBra research program for health-promoting palliative care in Sweden2016Ingår i: Progress in Palliative Care, ISSN 0969-9260, E-ISSN 1743-291X, Vol. 24, nr 1, s. 19-24Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Introduction: Public health approaches to end-of-life (EoL) research and care are relatively rare in Sweden, and health-promoting palliative care (HPPC) remains a foreign concept for most. We recently consolidated our HPPC endeavors into a cohesive research program, DöBra, to promote constructive change and awareness to support better quality of life and death among the general population, in specific sub-groups, and in interventions directed to professional groups caring for dying individuals, their friends and families.

    Objectives: In this article, we aim to share ideas, experiences, and reflections from the early stages of this research program, particularly in relation to how we try to work with new 'publics', to contribute to the development of HPPC as a new research field.

    Methods and Results: We discuss some considerations which arise in the Swedish context, and present the underlying ideas and approaches used in the research program, with examples of their application. HPPC, based on ideas from new public health, is essential as an umbrella for the DöBra program. Action research, experience-based co-design, and knowledge exchange, all aim to bring together a variety of stakeholders to exchange ideas and expertise, and co-create experience-based evidence through knowledge generation, dissemination, and sharing.

    Discussion: In reflecting on what we have learned about publics and partnerships in EoL research to date, we question distinctions made between professionals and publics, concluding that including publics in public health research, means also including ourselves and making public many of the reflections, the mistakes, and the experiences we all have, to foster collective learning.

    Ladda ner fulltext (pdf)
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  • 2.
    Sallnow, Libby
    et al.
    St Joseph’s Hospice and University of Edinburgh, UK.
    Tishelman, Carol
    Karolinska University Hospital, Sweden.
    Lindqvist, Olav
    Umeå universitet, Medicinska fakulteten, Institutionen för omvårdnad. Karolinska University Hospital, Sweden.
    Richardson, Heather
    St Christopher’s Hospice, UK.
    Cohen, Joachim
    Brussel (VUB) & Ghent University, Belgium.
    Research in public health and end-of-life care: building on the past and developing the new2016Ingår i: Progress in Palliative Care, ISSN 0969-9260, E-ISSN 1743-291X, Vol. 24, nr 1, s. 25-30Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Introduction: Public health approaches offer the opportunity to move beyond clinical and health services approaches to end-of-life (EoL) care, to focus on whole populations, individuals and communities rather than patients and carers. They also allow concepts such as capacity, resilience, and wellbeing to come to the fore. Methods: This paper, drawing on the experience of a diverse group of academics and practitioners from three countries in Europe, considers the research challenges related to examining new public health approaches to EoL care and how learning from more traditional or classic public health research can influence a future research agenda. Additional opportunities provided by the new public health approach to broaden learning and participation in research are considered. Results: By bringing together strong traditional methods such as analysis of longitudinal population-level data with participatory approaches that draw on communities' experience and aspirations for care, the authors suggest that new and improved opportunities exist to evaluate the impact of participatory approaches. Discussion: In conclusion, the paper urges researchers from classic and new public health to work in partnership to generate and respond to the emerging research agenda around new public health initiatives. There is much to be learned from both.

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