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Patients’ experiences of patient participation prior to and within multimodal pain rehabilitation
Luleå University of Technology, Department of Health Sciences, Health and Rehab.
2013 (English)Licentiate thesis, comprehensive summary (Other academic)
Abstract [en]

Patient participation is a concept used to describe the patients’ involvement in their healthcare. The aim of this licentiate thesis was to explore primary healthcare patients’ experiences of patient participation prior to and within multimodal pain rehabilitation. Qualitative interviews were conducted with seventeen patients, 14 women and 3 men, who had completed multimodal pain rehabilitation for persistent pain. Data was analyzed using qualitative content analysis.The findings show that patient participation can be understood as a complex and individualized interaction between the patient and the healthcare professionals. There were both positive and negative experiences of patient participation prior to, as well as within the multimodal rehabilitation. Experiences prior to the multimodal pain rehabilitation indicated a lack of patient participation including a search of recognition and an alienation from the healthcare system. Patients experienced satisfying patient participation within the multimodal rehabilitation, which was described as a continuous exchange of emotions and cognitions between the patients and the healthcare professionals. Patients’ emotions and cognitions were important in the patient – healthcare interaction and for patient participation. A confidence-inspiring alliance with the healthcare professionals, built on mutual trust and respect, was experienced as a basis for patient participation. The patients experienced unfulfilled medical needs, being unconfirmed, and having their point of view disregarded by healthcare professionals, to limit patient participation. Insufficient communication with the healthcare professionals was also perceived restricting patient participation. The patients emphasized that healthcare professionals needed to play an active role to include the patients in dialogue and to build common ground in the interaction. The healthcare professionals’ expertise, empathy and personal qualities were important for patient participation.In conclusion, patients with persistent pain had experiences of poor patient participation from encounters with healthcare professionals prior to multimodal pain rehabilitation. In contrast, these patients then experienced satisfying patient participation within the multimodal pain rehabilitation. Healthcare professionals need to play an active role in developing a relationship and finding common ground, through confirmation and dialogue, to increase patient participation in rehabilitation planning and decision-making.

Place, publisher, year, edition, pages
Luleå: Luleå tekniska universitet, 2013.
Licentiate thesis / Luleå University of Technology, ISSN 1402-1757
Research subject
URN: urn:nbn:se:ltu:diva-25852Local ID: b6e80730-3910-465c-bdc1-e834fd4f03dbISBN: 978-91-7439-783-3ISBN: 978-91-7439-784-0 (PDF)OAI: diva2:999009
Godkänd; 2013; 20131111 (andbra); Tillkännagivande licentiatseminarium 2013-11-21 Nedanstående person kommer att hålla licentiatseminarium för avläggande av Filosofie licentiatexamen. Namn: Catharina Nordin Ämne: Sjukgymnastik/Physiotherapy Uppsats: Patient’s Experiences of Patient Participation Prior to and Within Multimodal Pain Rehabilitation Examinator: Professor Lars Nyberg, Institutionen för hälsovetenskap, Luleå tekniska universitet Diskutant: Docent Christina Ahlgren, Institutionen för Samhällsmedicin och Rehabilitering Umeå Universitet Tid: Torsdag den 12 december 2013 kl 13.00 Plats: D770, Luleå tekniska universitetAvailable from: 2016-09-30 Created: 2016-09-30Bibliographically approved

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