Change search
ReferencesLink to record
Permanent link

Direct link
Being forced to live a different everyday life: the experiences of people with traumatic brain injury and those of their close relatives
Luleå University of Technology, Department of Health Sciences, Nursing Care.
2005 (English)Licentiate thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of the licentiate thesis was to elucidate the meaning of living with traumatic brain injury (TBI) in people with TBI and their close relatives. The data were collected by means of qualitative research interviews with people with moderate or severe TBI (n=12) and their close relatives (n=8), and were then analysed using a phenomenological hermeneutic interpretation. This study shows that living with moderate or severe TBI means living with a perpetually altered body that changed the whole life and caused deep suffering, where feelings of shame and dignity competed with each other. People with TBI lost their way and struggled to achieve a new normalcy. Losing one's way included experiences of waking up to unknown, missing relationships and experiencing the body as an enemy. Struggles to attain a new normalcy included searching for an explanation, recovering the self, wishing to be met with respect, and finding a new way of living. Living with a person with moderate or severe TBI means that close relatives fight not to lose their foothold when it becomes essential for them to take increased responsibility. They struggled with their own suffering and compassion for the person with TBI. Close relatives' willingness to fight for the ill person derived from their feeling of natural love and the ethical demand to care and be responsible for the other. Natural love between the person with TBI, close relatives and other family members gave them the strength to fight. The comprehensive understanding revealed that people with moderate and severe TBI and their close relatives were forced to live a different everyday life where enduring uncertainty, chronic sorrow and loneliness, but also retaining hope were all present. They were rather alone in their suffering and their need for help, both as individuals and as a family, remained great even many years after the injury.

Place, publisher, year, edition, pages
Luleå: Luleå tekniska universitet, 2005. , 65 p.
Series
Licentiate thesis / Luleå University of Technology, ISSN 1402-1757 ; 2005:52
Research subject
Nursing
Identifiers
URN: urn:nbn:se:ltu:diva-18711Local ID: 9f7058d0-baa2-11db-b560-000ea68e967bOAI: oai:DiVA.org:ltu-18711DiVA: diva2:991722
Projects
Att leva med en traumatisk hjärnskada
Note
Godkänd; 2005; 20061205 (andbra)Available from: 2016-09-29 Created: 2016-09-29Bibliographically approved

Open Access in DiVA

fulltext(2309 kB)7 downloads
File information
File name FULLTEXT01.pdfFile size 2309 kBChecksum SHA-512
0d728b71c0f29dc1620085a8710fa62650c9a7232daa4e10d45e343f799329564d0d405dfeeaff26c02e857abf8e3799b4ff660aa22bc6c70e414a2825aaa499
Type fulltextMimetype application/pdf

Search in DiVA

By author/editor
Jumisko, Eija
By organisation
Nursing Care

Search outside of DiVA

GoogleGoogle Scholar
Total: 7 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

Total: 12 hits
ReferencesLink to record
Permanent link

Direct link