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Can, Want and Try: Parents’ Viewpoints Regarding the Participation of Their Child with an Acquired Brain Injury
Curtin University.
Curtin University.
University of Western Australia.
University of Western Australia.
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2016 (English)In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 11, no 7, e0157951Article in journal (Refereed) Published
Abstract [en]

Background 

Acquired brain injury (ABI) is a leading cause of permanent disability, currently affecting 20,000 Australian children. Community participation is essential for childhood development and enjoyment, yet children with ABI can often experience barriers to participation. The factors which act as barriers and facilitators to community participation for children with an ABI are not well understood. 

Aim

To identify the viewpoints of parents of children with an ABI, regarding the barriers and facilitators most pertinent to community participation for their child. 

Methods 

Using Q-method, 41 parents of children with moderate/severe ABI sorted 37 statements regarding barriers and facilitators to community participation. Factor analysis identified three viewpoints. 

Results 

This study identified three distinct viewpoints, with the perceived ability to participate decreasing with a stepwise trend from parents who felt their child and family "can" participate in viewpoint one, to "want" in viewpoint two and "try" in viewpoint three. 

Conclusions 

Findings indicated good participation outcomes for most children and families, however some families who were motivated to participate experienced significant barriers. The most significant facilitators included child motivation, supportive relationships from immediate family and friends, and supportive community attitudes. The lack of supportive relationships and attitudes was perceived as a fundamental barrier to community participation. 

Significance 

This research begins to address the paucity of information regarding those factors that impact upon the participation of children with an ABI in Australia. Findings have implications for therapists, service providers and community organisations.

Place, publisher, year, edition, pages
2016. Vol. 11, no 7, e0157951
Keyword [en]
Cerebral-palsy, Q-methodology, Physical-disabilities, Youth, Intervention, Qualifier, Therapy, Working, Life
National Category
Medical and Health Sciences Occupational Therapy Social Work
Identifiers
URN: urn:nbn:se:hj:diva-31507DOI: 10.1371/journal.pone.0157951ISI: 000378914900015PubMedID: 27367231Local ID: HHJCHILDISOAI: oai:DiVA.org:hj-31507DiVA: diva2:955447
Available from: 2016-08-25 Created: 2016-08-25 Last updated: 2016-08-25Bibliographically approved

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