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You Need to Know More to Understand My Scoring on the Survey: Free-Text Comments as Part of a PROM-Survey of Men with Prostate Cancer
Umeå University, Faculty of Medicine, Department of Nursing.
Department of Health Sciences, Lund University, Lund, Sweden.
Umeå University, Faculty of Medicine, Department of Nursing.
2016 (English)In: Open Journal of Nursing, ISSN 2162-5336, E-ISSN 2162-5344, Vol. 6, no 5, 365-375 p.Article in journal (Refereed) Published
Abstract [en]

Prostate cancer and its treatment have long-term implications for men's lives. We aimed to describe the content, extent, and frequency of written comments to the open-ended question, "Further comments?" in the patient-reported outcome measures questionnaire. During the study period, 897 men participated; 372 wrote 747 free-text comments in the questionnaire. These comments were analysed using qualitative content analysis and were grouped into four categories: 1) prostate cancer's influence on health; 2) clarifications of answers to the survey; 3) descriptions of well-being despite the cancer; and 4) experiences of care and the need for contact with health care. The distribution of the comments shifted over time. The open-ended question not only allowed the participants to explain their other responses and describe important aspects of their lives during and after treatment, something not normally covered by a questionnaire, but it also indicated their experiences of health care services along the patients' PC-trajectory. This further raises the issue of including an open-ended item in a forced-choice survey into the ethical realm to ensure that proper care is taken of participants’ answers and thoughts.

Place, publisher, year, edition, pages
2016. Vol. 6, no 5, 365-375 p.
Keyword [en]
Prostate Cancer, Questionnaire, Open-Ended Question, Information, Feedback, Quality of Life, Nursing
National Category
URN: urn:nbn:se:umu:diva-121988DOI: 10.4236/ojn.2016.65038OAI: diva2:936092
Available from: 2016-06-13 Created: 2016-06-13 Last updated: 2016-10-07Bibliographically approved

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Hajdarevic, SenadaRasmussen, Birgit HFransson, Per
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