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It takes two to tango: information-sharing with offspring among heterosexual parents following identity-release sperm donation
Uppsala University, Sweden.
Uppsala University, Sweden.
Linköping University, Department of Clinical and Experimental Medicine, Division of Clinical Sciences. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Center of Paediatrics and Gynaecology and Obstetrics, Department of Gynaecology and Obstetrics in Linköping.
Karolinska University Hospital, Sweden.
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2016 (English)In: Human Reproduction, ISSN 0268-1161, E-ISSN 1460-2350, Vol. 31, no 1, 125-132 p.Article in journal (Refereed) PublishedText
Abstract [en]

How do heterosexual parents reason about and experience information-sharing with offspring following identity-release sperm donation? Sharing information about using donor-conception with offspring is a complex process at several levels, with the parents personal beliefs and the childs responses serving as driving or impeding forces for the information-sharing process. The overall view of disclosure in gamete donation has shifted from secrecy to openness, but there is still uncertainty among parents concerning how and when to tell the child about his/her genetic origin. Most research on donor-conceived families has focused on donation treatment under anonymous or known circumstances, and there is a lack of studies in settings with identity-release donations. A qualitative interview study among 30 parents following identity-release sperm donation treatment. Interviews were conducted from February 2014 to March 2015. The present study is part of the prospective longitudinal Swedish Study on Gamete Donation (SSGD), including all fertility clinics performing gamete donation in Sweden. A sample of participants in the SSGD, consisting of heterosexual parents with children aged 7-8 years following identity-release sperm donation, participated in individual semi-structured interviews. The analysis revealed one main theme: information-sharing is a process, with three subthemes; (i) the parent as process manager, (ii) the child as force or friction and (iii) being in the process. The first two subthemes were viewed as being linked together and their content served as driving or impeding forces in the information-sharing process. The fact that the study was performed within the context of the Swedish legislation on identity-release donation must be taken into consideration as regards transferability to other populations, as this may affect parents reasoning concerning their information-sharing with the child. The present findings highlight the role of the donor-conceived child in the information-sharing process and may contribute to develop counselling that increases parents confidence in handling childrens reactions to information about their genetic origin. Financial support from The Swedish Research Council, The Family Planning Fund in Uppsala and Ferring Pharmaceuticals. There are no conflicts of interest to declare. N/A.

Place, publisher, year, edition, pages
OXFORD UNIV PRESS , 2016. Vol. 31, no 1, 125-132 p.
Keyword [en]
assisted reproduction; sperm donation; identity-release; information-sharing; heterosexuals; donor conception; donor offspring; qualitative
National Category
Clinical Medicine
URN: urn:nbn:se:liu:diva-126858DOI: 10.1093/humrep/dev293ISI: 000371148900017PubMedID: 26637490OAI: diva2:917144

Funding Agencies|Swedish Research Council; Family Planning Fund in Uppsala; Ferring Pharmaceuticals

Available from: 2016-04-05 Created: 2016-04-05 Last updated: 2016-04-26

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Sydsjö, Gunilla
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Division of Clinical SciencesFaculty of Medicine and Health SciencesDepartment of Gynaecology and Obstetrics in Linköping
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