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Promoting participation in healthcare situations for children with JIA: a grounded theory study
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).ORCID iD: 0000-0003-0711-3457
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health promotion and disease prevention.ORCID iD: 0000-0001-5647-086X
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health promotion and disease prevention.ORCID iD: 0000-0002-3576-2393
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health promotion and disease prevention.ORCID iD: 0000-0003-4438-6673
2016 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 11, 30518Article in journal (Refereed) Published
Abstract [en]

Children’s right to participate in their own healthcare has increasingly become highlighted in national and international research as well as in government regulations. Nevertheless, children’s participation in healthcare is unsatisfactorily applied in praxis. There is a growing body of research regarding children’s participation, but research from the children’s own perspective is scarce. The aim of this study was thus to explore the experiences and preferences for participation in healthcare situations among children with juvenile idiopathic arthritis (JIA) as a foundation for creating strategies to promote their participation in pediatric healthcare. Twenty children, aged 8 to 17 years, with JIA were interviewed individually and in focus groups. In order to increase the children’s opportunities to express their own experiences, different interview techniques were used, such as draw-and-tell and role play with dolls. The analysis was conducted with a constructivist grounded theory. The result explores children’s perspective of influencing processes promoting their participation in healthcare situations. The core category that emerged was, “Releasing fear and uncertainty opens up for confidence and participation,” and the categories related to the core category are, “surrounded by a sense of security and comfort,” and “strengthened and supported to become involved.” In conclusion, the knowledge gained in this study offers new insights from the perspective of children themselves, and can constitute a valuable contribution to the understanding of necessary conditions for the development of specific interventions that promote participation among children in healthcare situations.

Place, publisher, year, edition, pages
Järfälla: Co-Action Publishing , 2016. Vol. 11, 30518
Keyword [en]
Children, healthcare, participation, constructivist grounded theory, Juvenile Idiopathic Arthritis
National Category
Nursing Rheumatology and Autoimmunity
Identifiers
URN: urn:nbn:se:hh:diva-30525DOI: 10.3402/qhw.v11.30518OAI: oai:DiVA.org:hh-30525DiVA: diva2:912174
Note

This study was supported by grants from Region Halland, Norrbacka-Eugenia foundation, The Swedish Rheumatism Association, and the Stig-Thunes foundation.

Available from: 2016-03-15 Created: 2016-03-15 Last updated: 2016-10-24Bibliographically approved

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Gilljam, Britt-MariArvidsson, SusannNygren, JensSvedberg, Petra
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Centre of Research on Welfare, Health and Sport (CVHI)Health promotion and disease prevention
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International Journal of Qualitative Studies on Health and Well-being
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