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Upplevelser av palliativ vård i hemmet under livets slutskede – ur ett anhörigperspektiv: En litteraturöversikt
Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
Dalarna University, School of Education, Health and Social Studies, Caring Science/Nursing.
2015 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
Experiences of palliative home care during the final stage of life – from relative’s perspective : A Literature Review (English)
Abstract [sv]

Bakgrund: Palliativ vård handlar om att ge stöd till patienten och anhöriga under och efter

vårdtiden. De ”6 s:n” är en arbetsmodell inom palliativ vård där patienten har rätt till

självbestämmande och att upprätthålla sina sociala relationer, även stöd till anhöriga ingår.

Anhöriga har en betydelsefull roll i den palliativa vården, deras närvaro skapar möjlighet för

den döende att vara hemma i livets slutskede.

Syfte: Syftet var att beskriva anhörigas upplevelse av palliativ vård i hemmet under livets

slutskede.

Metod: Litteraturöversikt baserad på 15 vetenskapliga artiklar från fem olika länder med

kvalitativ ansats.

Resultat: Fem kategorier identifierades kopplade till anhörigas upplevelser:

Palliativa teamets inträde i hemmet, anhörigas vårdansvar, den medicintekniska utrusningens

inverkan på vardagslivet, känslor och konsekvenser för anhöriga samt förbättringsmöjligheter

och anhörigas uppfattning om palliativ vård.

Slutsats: Anledningen till anhörigas vårdansvar var löftet att få dö hemma, uppgiften

upplevdes krävande och gav konsekvenser på sömnen och deras fysiska och psykiska mående.

Detta var genomgående i hela litteraturöversikten. Vården i hemmet sågs som den rätta

platsen att dö på för alla parter, endast en anhörig uttryckte avsky för situationen. Enligt

anhöriga var stödet bra dock fanns det ett ökat behov av mer resurser för fullständig trygghet.

Abstract [en]

Background: Palliative care is about providing support to both the patient and family during

and after the time of care. The “6 s:n” is a working model in palliative care where the patient

has the right to self-determination and to maintain their social relationships, which includes

support to relatives. Relatives have an important role in palliative care, their present creates

opportunity for the dying person to be at home in the final stages of life.

Aim: The aim of this study was to describe relative’s experiences of palliative home care

during the final stage of life.

Methods: A literature review based on 15 scientific articles from five different countries

with a qualitative approach.

Results: Five categories were identified related to relatives experiences: The entry of

palliative home care, relatives caring role, the impact of medical technology on everyday life,

feelings and consequences for relatives and also improvement opportunities and relatives

comprehend about palliative home care.

Conclusions: The promise was the reason for relatives caring role, the caring role was an

demanding task and gave impacts on their sleep and their physical and mental needs. This was

consistently throughout the whole literature review. For all parties the home was seen as the

right place to die, only one relative expressed disgust for the situation. According to relatives

the support was good, but to complete full security for them it was an increased need for more resources.

Place, publisher, year, edition, pages
2015.
Keyword [en]
Close relative, experience, family member, palliative home care, palliative home care team.
Keyword [sv]
Anhörig, familjemedlem, palliativ hemsjukvård, palliativa teamet, upplevelser.
National Category
Nursing
Identifiers
URN: urn:nbn:se:du-20934OAI: oai:DiVA.org:du-20934DiVA: diva2:900733
Available from: 2016-02-05 Created: 2016-02-05

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