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Jag har ALS, men ALS har inte mig: Analys av dokumentärer utifrån begreppet hopp.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
2016 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
I have ALS, but ALS doesen't have me : An analysis of documentaries based on the concept of hope. (English)
Abstract [sv]

Bakgrund: Amyotrofisk lateral skleros är en sjukdom som innebär att de motoriska nervcellerna i hjärnan och ryggmärgen som aktiverar den viljestyrda muskulaturen förtvinar och bryts ner. Konsekvenser av detta är minskad muskelkraft och förlamning. Amyotrofisk lateral skleros är en obotlig sjukdom vilket gör det intressant att studera hur dessa personer erfar hopp.

Syfte: Att beskriva hopp hos personer med amyotrofisk lateral skleros.

Metod: En kvalitativ studie med deduktiv inriktning genomfördes där dokumentärer analyserades.

Resultat: Olika hopp beskrevs vid olika tillfällen under sjukdomsförloppet. Framträdande i studien var att de flesta personer beskrev en önskan och ett hopp om att hitta ett botemedel tidigt i sjukdomsförloppet. När detta inte längre framstod som lika självklart blev hopp i form av socialt stöd och hopp om att leva i nuet mer framträdande i personernas beskrivningar.

Slutsats: Personer som drabbas av amyotrofisk lateral skleros initialt hoppas starkt på att finna ett botemedel, men sedan kretsar hoppet mer kring de sociala relationerna. Ur klinisk synpunkt är det viktigt att som vårdpersonal bli mer medvetna om hur dessa personer upplever hopp för att möjliggöra att den egna identiteten och förmågan bevaras.  

Abstract [en]

Background: Amyotrophic lateral sclerosis is a disease in which the motor nerve cells in the brain and spinal cord, that activates the involuntary muscles, atrophy and breaks down. Consequences of this are decreased muscle strength and paralysis. It is an incurable disease which makes it interesting to study these people and how they experience hope.

Aim: To describe hope in people with amyotrophic lateral sclerosis.

Method: A qualitative study of deductive orientation was conducted where documentaries were analyzed.

Results: Different types of hope were described at various times during the course of the disease. It was prominent that most people described a wish and a hope to find a cure early in the disease. Gradually hope in the form of social support and hope to live in the present appeared as more prominent.

Conclusion: People who suffer from amyotrophic lateral sclerosis initially strongly hopes of finding a cure, but then the hope revolves more around social relationships. From a clinical standpoint, it is important that healthcare professionals become more aware of how these people experience hope to enable their own identity and ability preserved.

 

Place, publisher, year, edition, pages
2016. , 21 p.
Keyword [en]
ALS, cure, hope, living in the present, social support.
Keyword [sv]
ALS, botemedel, hopp, leva i nuet, social stöd.
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-29123ISRN: JU-HHJ-OMA-1-20160022OAI: oai:DiVA.org:hj-29123DiVA: diva2:895581
Subject / course
HHJ, Nursing Science
Supervisors
Examiners
Available from: 2016-02-01 Created: 2016-01-19 Last updated: 2016-02-01Bibliographically approved

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