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Parents’ experiences of caring responsibility for their adult child with schizophrenia
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Sociology. (Välfärd och Livslopp)ORCID iD: 0000-0002-3870-6426
Karolinska Institutet, Division of Nursing, Department of Neurobiology, Care Science and Society.
2016 (English)In: Schizophrenia Research and Treatment, ISSN 2090-2085, E-ISSN 2090-2093, 1958198Article in journal (Refereed) Published
Abstract [en]

As a consequence of the latest psychiatry-related reform in Sweden and its implementation, relatives and family members have taken over from the formal healthcare system significant responsibility for the care of persons with a mental disability and illness. The aim of this study was to systematically describe and analyze the experiences of parents’ informal care responsibility. The questions were: what are the experiences around parents’ informal care activities and responsibilities; how do parents construct and manage their caring responsibility and with what consequences? Semi-structured in-depth interviews were conducted (16 hours of recorded material) with eight parents who were all members of the Interest Association for Schizophrenia [Intresseföreningen för schizofreni IFS)] in Sweden. A mixed hermeneutic deductive and inductive method was used for the interpretation of the material. The parents endow their informal caring responsibility with meaning of being a good, responsible and accountable parent with respect to their social context and social relationships as well with respect to the psychiatric care representatives. In this tense situation parents compromise between elements of struggle, cooperation, avoidance and adaption in their interaction with the world outside, meaning the world beyond the care provision for their child as well as with the world inside themselves.

Place, publisher, year, edition, pages
2016. 1958198
Keyword [en]
Parents, informal care, responsibility, mentally ill family member, psychiatric care, schizophrenia.
National Category
Research subject
Caring Sciences in Social Sciences
URN: urn:nbn:se:uu:diva-271207DOI: 10.1155/2016/1958198OAI: diva2:891388
Sociology of caring - appropriate relation between informal and formal care?
Available from: 2016-01-07 Created: 2016-01-07 Last updated: 2016-05-31Bibliographically approved

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Blomgren Mannerheim, AnnHellström Muhli, Ulla
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