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National Human Research Ethics: A Preliminary Comparative Case Study of Germany, Great Britain, Romania, and Sweden
Karolinska Institutet.
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2016 (English)In: Ethics & Behavior, ISSN 1050-8422, ESSN: 1532-7019, Vol. 26, no 7, 586-606 p.Article in journal (Refereed) Published
Abstract [en]

Although international research is increasing in volume and importance, there remains a dearth of knowledge on similarities and differences in “national human research ethics” (NHREs), that is, national ethical guidelines (NEGs), Institutional Review Boards (IRBs), and research stakeholder’ ethical attitudes and behaviors (EABs). We begin to address this situation by reporting upon our experiences in conducting a multinational study into the mental health of children who had a parent/carer in prison. The study was conducted in 4 countries: Germany, Great Britain, Romania, and Sweden. Data on NHREs were gathered via a questionnaire survey, two ethics-related seminars, and ongoing contact between members of the research consortium. There was correspondence but even more so divergence between countries in the availability of NEGs and IRBs and in researcher’ EABs. Differences in NHREs have implications particularly in terms of harmonization but also for ethical philosophy and practice and for research integrity.

Place, publisher, year, edition, pages
2016. Vol. 26, no 7, 586-606 p.
Keyword [en]
Ethical attitudes, Ethical behavior, Ethical guidelines, Institutional Review Boards, National human research ethics
National Category
Other Social Sciences not elsewhere specified
URN: urn:nbn:se:esh:diva-4954DOI: 10.1080/10508422.2015.1096207PubMedID: 27746664OAI: diva2:878169
Available from: 2015-12-08 Created: 2015-12-08 Last updated: 2016-11-15Bibliographically approved

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Schiratzki, Johanna
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Department of Social Sciences
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