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Sleep of Parents Living With a Child Receiving Hospital-Based Home Care: A Phenomenographical Study.
Linköping University, Faculty of Health Sciences. Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care.
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences.
Linköping University, Department of Social and Welfare Studies, Division of Health, Activity and Care. Linköping University, Faculty of Medicine and Health Sciences. Östergötlands Läns Landsting, Center of Paediatrics and Gynaecology and Obstetrics, Department of Paediatrics in Linköping.ORCID iD: 0000-0002-3256-5407
2015 (English)In: Nursing Research, ISSN 0029-6562, E-ISSN 1538-9847, Vol. 64, no 5, 372-380 p.Article in journal (Refereed) Published
Abstract [en]

Background: Caring for an ill child at home gives the family the chance to be together in a familiar environment. However, this involves several nocturnal sleep disturbances, such as frequent awakenings and bad sleep quality, which may affect parents' ability to take care of the child and themselves.Objectives: The aim of this study was to describe parents' perceptions of circumstances influencing their own sleep when living with a child enrolled in hospital-based home care (HBHC) services.Method: This is a phenomenographical study with an inductive, exploratory design. Fifteen parents (11 mothers and 4 fathers) with children enrolled in HBHC services were interviewed. Data were analyzed to discover content-related categories describing differences in ways parents experienced sleep when caring for their children receiving HBHC.Results: Four descriptive categories were detected: sleep influences mood and mood influences sleep; support influences safeness and safeness influences sleep; the child's needs influence routines and routines influence sleep; and "me time" influences sleep.Discussion: Sleep does not affect only the parents' well-being but also the child's care. Symptoms of stress may limit the parents' capacity to meet the child's needs. Support, me time, and physical activity were perceived as essential sources for recovery and sleep. It is important for nurses to acknowledge parental sleep in the child's nursing care plan and help the parents perform self-care to promote sleep and maintain life, health, and well-being.

Place, publisher, year, edition, pages
Lippincott-Ravn Publisher , 2015. Vol. 64, no 5, 372-380 p.
Keyword [en]
children, chronic illness, home care services, parents, qualitative research, sleep
National Category
URN: urn:nbn:se:liu:diva-121085DOI: 10.1097/NNR.0000000000000108ISI: 000361361000006PubMedID: 26325279OAI: diva2:851600
Parents’ stress and sleep quality when their children need medical care
Östergötland County CouncilMedical Research Council of Southeast Sweden (FORSS)

Funding text: Medical Research Council of South East Sweden (FORSS); County Council of Ostergotland, Sweden

Available from: 2015-09-07 Created: 2015-09-07 Last updated: 2016-11-07Bibliographically approved

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Angelhoff, CharlotteEdéll-Gustfsson, UllaMörelius, Evalotte
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Faculty of Health SciencesDivision of Health, Activity and CareDivision of Nursing ScienceFaculty of Medicine and Health SciencesDepartment of Paediatrics in Linköping
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Nursing Research

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