Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Sjukdomsrelaterad oro hos personer med Crohns sjukdom- en intervjustudie
Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science.
2015 (Swedish)Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesisAlternative title
Disease-related worries in persons with Crohn´s disease - an interview study (English)
Abstract [sv]

Bakgrund: En kronisk oförutsägbar sjukdom som Crohns sjukdom framkallar fysisk, psykologisk och social stress. Sjukdomen påverkar vardagen, försämrar livskvalitet och skapar oro. För att bedriva personcentrerad vård krävs insikt i hur denna oro upplevs.

Syfte: Syftet med studien var att belysa sjukdomsrelaterad oro hos personer med Crohns sjukdom.

Metod: Åtta kvinnor och fyra män mellan 30 och 64 år som skattat sin sjukdomsrelaterade oro som hög eller mycket hög identifierades. Intervjuer genomfördes och analyserades med kvalitativ innehållsanalys.

Resultat: Analysen genererade tre kategorier: (1) Oro för sjukdomen i sig, (2) känslor runt oron, (3) samt hantering av oron. Sjukdomens oförutsägbarhet samt nedsatt funktion till följd av trötthet och bristande kontroll över tarmfunktionen var de mest framträdande orsakerna till oro. Oron skapade känslor av stress, skuld och besvikelse. Deltagarna uttryckte önskemål att få prata om och synliggöra oron men hade också funnit egna sätt att hantera denna.

Slutsats: Det finns ett kvarstående behov av att ventilera och få förståelse för sjukdomsrelaterad oro, även efter många års sjukdom. Personer med Crohns sjukdom måste få prata om sin oro, vara en aktiv partner i vården och tillsammans med vårdgivaren finna sätt att hantera oron så att denna kan lindras.

Abstract [en]

Background: A chronic, unpredictable disease as Crohn's disease provides physical, psychological and social stress. The disease affects everyday life, impairs quality of life and create worries. To conduct person-centered care requires insight into how this worry is experienced.

Objective: To explore disease-related worries in persons with Crohn´s disease.

Method: Eight women and four men between 30 and 64 who estimated their disease-related worries high or very high were identified. Interviews were conducted and analyzed with content analysis.

Results: The analysis generated three categories: (1) Worries about the disease itself, (2) feelings around the worries, (3) management of the worries. The unpredictable course of the disease and the impaired function due to fatigue and lack of control of bowel function were the most prominent causes of worries. The worries created feelings of stress, guilt and disappointment. The participants expressed the wish to talk about and make the worries visible but had also found their own ways to handle it.

Conclusion: There is a persistent need to vent and get an understanding of disease-related worries, even after many years of disease. Persons with Crohn's disease need to talk about their worries, be an active partner in healthcare and together with the health-care providers find ways to handle the worries so it can be relieved.

Place, publisher, year, edition, pages
2015. , p. 27
Keyword [en]
Crohn´s disease, inflammatory bowel disease, patient-centered care, qualitative research, worries
Keyword [sv]
Crohns sjukdom, inflammatorisk tarmsjukdom, kvalitativ forskning, oro, patientcentrerad vård
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-27404OAI: oai:DiVA.org:hj-27404DiVA: diva2:825340
Subject / course
HHJ, Nursing Science
Supervisors
Examiners
Available from: 2015-06-24 Created: 2015-06-23 Last updated: 2015-06-24Bibliographically approved

Open Access in DiVA

Sjukdomsrelaterad oro hos personer med Crohns sjukdom(413 kB)251 downloads
File information
File name FULLTEXT01.pdfFile size 413 kBChecksum SHA-512
08cdd34572b9feec1bb154e42046e600464604fb9fb38cd19e31cf37d06fbbd24437b253a1a5088236428d7505bbe0c39d5845cccc4e61542af15e223ddd10c9
Type fulltextMimetype application/pdf

By organisation
HHJ, Dep. of Nursing Science
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 251 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

urn-nbn

Altmetric score

urn-nbn
Total: 277 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf