Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Web-based counselling to patients with haematological diseases
Jönköping University, School of Health Science, HHJ. ADULT.
2015 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Patients with haematological diseases are entitled to supportive care. Considering organisational and technological development, support in the form of caring communication provided through the web is today a possible alternative. The aim of this thesis was to examine the usefulness and importance of a web-based counselling service to patients with haematological diseases. The basis for the thesis was a development project funded by the Swedish Cancer Society, which provided an opportunity to offer patients communication with a nurse through a web-based counselling service.

Four studies were performed from a patient perspective. Study I had a cross-sectional design, measuring occurrence of anxiety and depression, and these variables’ associations to mastery, social support, and insomnia among patients with haematological diseases. Study II was a qualitative content analysis focusing on conditions for provision and use of the web-based counselling service. Study III used a qualitative hermeneutical approach to focus on patients’ experiences of using the counselling service. Study IV was a qualitative deductive analysis examining how communication within the web-based counselling service can be caring in accordance to caring theory.

The results revealed that females of 30-49 years of age are vulnerable to experiencing anxiety. Low sense of mastery and support are associated with anxiety and/or depression. Being able to self-identify the need for support as well as appreciate the written medium are necessary conditions for the web-based counselling service to be used. The counselling service must also be part of a comprehensive range of supportive activities and web-based services to be useful. The main importance of the communication is that the patient’s influence on the communication is strengthened, and that the constant access to individual medical and caring assessment can imply a sense of safety. When patients share their innermost concerns and search for support, nursing compassion and competence can substantiate in explicit written responses.

A conclusion is that there is a caring potential in communication within a web-based counselling service. To make this form of communication possible, nurses should take possession of and ensure that this medium for communication is offered to patients. Nurses should also increase their knowledge of caring communication in writing and how this possibly can impact patients.

Place, publisher, year, edition, pages
Jönköping: School of Health Sciences, Jönköping University , 2015. , 85 p.
Series
Hälsohögskolans avhandlingsserie, ISSN 1654-3602 ; 57
Keyword [en]
haematological disease, web-based counselling, caring communication
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-26454ISBN: 978-91-85835-56-0 (print)OAI: oai:DiVA.org:hj-26454DiVA: diva2:810758
Public defence
2015-05-29, Sparbankssalen, Borås, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2015-05-08 Created: 2015-05-08 Last updated: 2015-05-11Bibliographically approved
List of papers
1. Psychosocial factors associated with anxiety and depression in patients with hematological diseases
Open this publication in new window or tab >>Psychosocial factors associated with anxiety and depression in patients with hematological diseases
Show others...
(English)Manuscript (preprint) (Other academic)
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-26448 (URN)
Available from: 2015-05-08 Created: 2015-05-08 Last updated: 2015-05-08
2. Prerequisites required for the provision and use of web-based communication for psychosocial support in haematologic care
Open this publication in new window or tab >>Prerequisites required for the provision and use of web-based communication for psychosocial support in haematologic care
Show others...
2013 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 17, no 5, 596-602 p.Article in journal (Refereed) Published
Abstract [en]

Purpose

The purpose of this study was to describe the prerequisites required for the provision and use of web-based communication for psychosocial support within a haematology clinic, from a patient and family perspective.

Method

A qualitative design using content analysis was used. A strategically selected sample of patients (n = 11) and family members (n = 6) were offered access to a web-based communication capability with a nurse. After four months, individual interviews were conducted with all participants, in order to identify necessary prerequisites.

Results

Preferences and characteristics of the individual patient or family member are crucial as to whether web-based communication for support is perceived as useful. To feel comfortable with writing and to self-identify the need for support are fundamental in getting motivated to use web-based communication. An effective organization around psychosocial support in general is another prerequisite. Goals and responsibilities must be clearly defined for patients and family members to understand their rights and enable the transformation of opportunities into practice. The use of web-based communication must also be a convenient and naturally incorporated part of both individual and organizational use of the web in general.

Conclusions

Prerequisites of taking into account caretakers' different preferences and needs, providing highly structured psychosocial support activities and providing a congruent range of web services, are necessary for successful provision and use of web-based communication for psychosocial support.

Keyword
Social support; Supportive care; Communication; Internet; Cancer; Haematology
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-26450 (URN)10.1016/j.ejon.2013.01.005 (DOI)000325600800012 ()23453568 (PubMedID)
Available from: 2015-05-08 Created: 2015-05-08 Last updated: 2017-12-04Bibliographically approved
3. The meaning of web-based communication for support: From the patients' perspective within a hematological healthcare setting
Open this publication in new window or tab >>The meaning of web-based communication for support: From the patients' perspective within a hematological healthcare setting
Show others...
2015 (English)In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 38, no 2, 145-154 p.Article in journal (Refereed) Published
Abstract [en]

BACKGROUND:

Being critically ill with a hematological disease is a challenge, sometimes causing a need for support in the adjustment to the stressful life situation. By providing Web-based communication for support from a nurse, patients get access to an alternative and untraditional way to communicate their issues.

OBJECTIVE:

The aim was to describe the meaning of using Web-based communication for support from a patient perspective.

METHODS:

A comprehensive randomized pilot study (n = 30) was conducted, allowing 15 patients in the experimental group to have access to the Web-based communication, to evaluate feasibility. Of these 15 participants, 10 were interviewed, focusing on their experiences. An empirical hermeneutical approach was used and the interpretive analysis focused on the meanings.

RESULTS:

Web-based communication for support means a space for patients to have their say, consolidation of a matter, an extended caring relationship, access to individual medical assessment, and an opportunity for emotional processing. The main interpretation indicates that the patient's influence on the communication strengthens according to the asynchronous, faceless, and written communication. The increased, and in some sense constant, access to an individual medical and caring assessment, in turn, implies a feeling of safety.

CONCLUSION:

Web-based communication for support seems to have the potential to enhance patients' participation on their own terms.

IMPLICATIONS FOR PRACTICE:

To achieve the possible advantages of Web-based communication for support, nurses must acquire knowledge about caring writing. It requires respect for the patient and articulated accuracy and attention in the response given.

Keyword
Cancer, Communication, Hematology, Hermeneutics, Internet, Social support, Supportive care, Web
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-25553 (URN)10.1097/NCC.0000000000000145 (DOI)000349907900015 ()24831039 (PubMedID)
Available from: 2015-01-09 Created: 2015-01-09 Last updated: 2017-12-05Bibliographically approved
4. Caring through web-based counselling — A nursing intervention
Open this publication in new window or tab >>Caring through web-based counselling — A nursing intervention
2015 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122Article in journal (Other academic) Submitted
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-26452 (URN)
Available from: 2015-05-08 Created: 2015-05-08 Last updated: 2017-12-04

Open Access in DiVA

fulltext(564 kB)157 downloads
File information
File name FULLTEXT01.pdfFile size 564 kBChecksum SHA-512
dd19c95f2d60b6128762cb32cc8d79f4b0c464f4f17051fc5cd8632bc6741888cbcde71d56ba232a35b15729b1799c6d06092618edc9d5c792c359ce0e53c6c0
Type fulltextMimetype application/pdf

Search in DiVA

By author/editor
Högberg, Karin
By organisation
HHJ. ADULT
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 157 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

isbn
urn-nbn

Altmetric score

isbn
urn-nbn
Total: 2590 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf