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Personers upplevelser av att leva med sjukdomen ALS (amyotrofisk lateralskleros): En litteraturöversikt
Ersta Sköndal University College, Department of Health Care Sciences.
Ersta Sköndal University College, Department of Health Care Sciences.
2015 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Persons’ experiences of living with ALS (amyotrophic lateral sclerosis) : A literature overview (English)
Abstract [sv]

Bakgrund: ALS är en ständigt progredierande sjukdom som medför att muskelfunktionen reduceras. Detta pågår tills personen inte längre kan röra sig eller tala och till slut drabbas andningsorganen. Det leder slutligen till att personen avlider. Att drabbas av en obotlig sjukdom är en livsförändrande omställning vilket utsätter både den drabbade personen och dennes anhöriga för psykisk ohälsa.

Syfte: Att beskriva personers upplevelser av att leva med ALS.

Metod: Denna litteraturöversikt har inkluderat elva vetenskapliga artiklar som hämtats från CINAHL Complete och PubMed. Vald metod har utformats efter Fribergs metod.

Resultat: I litteraturöversiktens resultat framkom fyra teman och två subteman. Dessa var: Upplevelsen av förlorad kontroll, Personers upplevelse av den fysiska förlusten och dess hantering (subtema), Personers upplevelse av att inte veta vad som kommer att hända (subtema), Personers upplevda sociala isolering, Hur hjälp och information upplevdes av personerna och Personers upplevelse av hur familjerelationer påverkas av ALS.

Diskussion: Resultatet diskuterades utefter vetenskapliga artiklar som diskuteras utifrån Travelbee’s definition av människa. De dominerande faktorerna berörde oro inför framtiden och en negativt förändrad självbild, att behålla en positiv syn relaterat till hopp samt isolering.

Abstract [en]

Background: ALS is a constant progressive disease that causes reduced muscle function. This continues until the person is no longer able to move or speak and eventually affects the respiratory organs. This will ultimately lead to the person’s death. To suffer from an incurable disease is a life-changing transformation that puts great mental distress on both the affected person and on the person's relatives.

Aim: The aim is to describe the experiences of people living with ALS.

Method: This literature study has included eleven scientific papers taken from the databases CINAHL Complete and PubMed. The method has been designed by Friberg. The consensus concept the human being has been used.

Results: The results of this literature study revealed four themes and two subthemes. These themes were The experience of not being in control, The experience of the physical loss and how to handle it (subtheme), The experience of not knowing what is going to happen (subtheme), The experience of social isolation, How help and information was perceived by the persons with ALS and Persons’ experience of how family relations are affected by ALS.

Discussions: The results were discussed based on relevant scientific papers linked to Travelbee's definition of the human being. The dominating factors that were discussed from the results were a concern regarding the future and a negatively changed self-image, to maintain a positive attitude related to hope and isolation.

Place, publisher, year, edition, pages
2015. , 32 p.
Keyword [en]
ALS, experience, human, person
Keyword [sv]
ALS, upplevelse, människa, person.
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-4595OAI: oai:DiVA.org:esh-4595DiVA: diva2:810650
Educational program
Bachelor of Science in Nursing
Uppsok
Medicine
Supervisors
Examiners
Available from: 2015-05-08 Created: 2015-05-07 Last updated: 2015-05-11Bibliographically approved

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