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Use of the ‘patient journey’ model in the internet-based pre-fitting counseling of a person with hearing disability: lessons from a failed clinical trial
Linköping University, Department of Behavioural Sciences and Learning, Disability Research. Linköping University, The Swedish Institute for Disability Research. Linköping University, Faculty of Arts and Sciences. Department of Vision and Hearing Sciences, Anglia Ruskin University, Cambridge, UK . (Linnaeus Centre HEAD)
Linköping University, Department of Behavioural Sciences and Learning, Disability Research. Linköping University, Faculty of Arts and Sciences. Linköping University, The Swedish Institute for Disability Research. (Linnaeus Centre HEAD)
Linköping University, Department of Behavioural Sciences and Learning, Psychology. Linköping University, Faculty of Arts and Sciences. Department of Clinical Neuroscience, Division of Psychiatry, Karolinska Institutet, Stockholm, Sweden . (Linnaeus Centre HEAD)ORCID iD: 0000-0003-4753-6745
Linköping University, Department of Behavioural Sciences and Learning, Disability Research. Linköping University, Faculty of Arts and Sciences. Linköping University, The Swedish Institute for Disability Research. Eriksholm Research Centre, Snekkersten, Denmark. (Linnaeus Centre HEAD)
2014 (English)In: BMC Ear, Nose and Throat Disorders, ISSN 1472-6815, E-ISSN 1472-6815, Vol. 14, no 3Article in journal (Refereed) Published
Abstract [en]

Background

Persons with a hearing impairment have various experiences during their ‘journey’ through hearing loss. In our previous studies we have developed ‘patient journey’ models of person with hearing impairment and their communication partners (CPs). The study was aimed to evaluate the effectiveness of using the patient journey model in the internet-based pre-fitting counseling of a person with hearing disability (ClinicalTrials.gov Protocol Registration System: NCT01611129, registered 2012 May 14).

Method

The study employed a randomized controlled trial (RCT) with waiting list control (WLC) design. Even though we had intended to recruit 158 participants, we only managed to recruit 80 participants who were assigned to one of two groups: (1) Intervention group; and (2) WLC. Participants from both groups completed a 30 day internet-based counseling program (group 2 waited for a month before intervention) based on the ‘patient journey’ model. Various outcome measures which focus on self-reported hearing disability, self-reported depression and anxiety, readiness to change and self-reported hearing disability acceptance were administered pre- and post-intervention.

Results

The trial results suggest that the intervention was not feasible. Treatment compliancy was one of the main problems with a high number of dropouts. Only 18 participants completed both pre- and post-intervention outcome measures. Their results were included in the analysis. Results suggest no statistically significant differences among groups over time in all four measures.

Conclusions

Due to the limited sample size, no concrete conclusions can be drawn about the hypotheses from the current study. Furthermore, possible reasons for failure of this trial and directions for future research are discussed.

Place, publisher, year, edition, pages
2014. Vol. 14, no 3
Keyword [en]
Hearing disability; Patient journey; Pre-fitting counseling; Failed clinical trial; Dropouts; Treatment compliancy
National Category
Other Health Sciences
Identifiers
URN: urn:nbn:se:liu:diva-114523DOI: 10.1186/1472-6815-14-3PubMedID: 24708677Scopus ID: 2-s2.0-84899483090OAI: oai:DiVA.org:liu-114523DiVA: diva2:790771
Available from: 2015-02-25 Created: 2015-02-25 Last updated: 2017-12-04

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Kumar Channapatna Manchaiah, VinayaRönnberg, JerkerAndersson, GerhardLunner, Thomas
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