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Patienters upplevelse av delaktighet i vård i livets slut: En systematisk litteraturstudie
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
2014 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Bakgrund: Palliativ vård utförs i hela vårdkedjan, från hemsjukvård till specialistvård på institution. Palliativ vård bygger på en helhetssyn som tryggas genom patientcentrerad vård där patientens delaktighet har en central roll.

Syfte: Belysa vuxna patienters upplevelser av delaktighet då de vårdas i livets slutskede.

Metod: Studien är en systematisk litteraturstudie främst baserad på metodik beskriven av Forsberg och Wengström (2013).

Resultat: Temat möjligheter och hinder i upplevelsen av sin delaktighet växte fram, med fyra kategorier under sig: hantering av sin sjukdomssituation, överväldigande ny levnadssituation, bli sedd som individ och inte bli sedd som individ. Det framkom att patienter i livets slutskede fann möjligheter att vara delaktiga i sin vård genom införskaffandet av kunskap om sin sjukdom och sin framtid. Denna kunskap skapade förståelse över situationen hos patienterna, vilket gav dem redskap att lättare hantera och delta i sin vård. Upplevda hinder till delaktighet visade sig vara då patienterna upplevde sig förbisedda av vårdpersonal.

Slutsats: Vuxna patienters upplevelser av delaktighet då de vårdas i livets slutskede går inte att beskriva som ett ensamt fenomen, utan behöver beskrivas utifrån en helhetssyn av patienten.  Den unika patienten bildar en dynamisk helhet, och behöver bemötas som den unika individ den är.

Abstract [en]

Background: Palliative care is performed throughout the continuum of care, from home care to specialized care in an institution. Palliative care is buildt on a holistic approach that is secured through patient-centered care where the patient's participation is central.

Objective: Highlighting adult patients' experiences of participation when they are cared for in late stage palliative care.

Method: The study is a systematic literature review mainly based on the methodology described by Forsberg and Wengström (2013).

Results: The theme opportunities and obstacles in the experience of their participation emerged, with four categories below: the management of their disease situation, overwhelming new living situations, be seen as an individual and not to be seen as an                                    individual. It was discovered that patients in the late stage palliative phase found opportunities to participate in their care by gathering knowledge about their disease and their future. This knowledge created understanding, giving them the tools to manage and participate in their care. An obstacle to patients’ participation appeared to be when the patients experienced neglect by health professionals.

Conclusion: Adult patients' experiences of participation when they are cared for in late stage palliative care cannot be described as a single phenomenon, but needs to be described by an integrated approach of the patient. The unique patient forms a dynamic whole, and needs to be treated as the unique individual he/she is.

Place, publisher, year, edition, pages
2014.
Keyword [en]
Palliative care, terminal care, person-centered, participation, sense of coherence
Keyword [sv]
Palliativ vård, vård i livets slutskede, personcentrerad, delaktighet, känsla av sammanhang
National Category
Nursing
Identifiers
URN: urn:nbn:se:lnu:diva-39616OAI: oai:DiVA.org:lnu-39616DiVA, id: diva2:784902
Subject / course
Vårdvetenskap
Educational program
Nursing Programme, 180 hp
Supervisors
Examiners
Available from: 2015-02-06 Created: 2015-01-31 Last updated: 2015-02-06Bibliographically approved

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