Narrating narcolepsy: centering a side effect
2015 (English)In: Medical Anthropology, ISSN 0145-9740, E-ISSN 1545-5882, Vol. 34, no 2, 150-165 p.Article in journal (Refereed) Published
The mass-vaccination with Pandemrix was the most important preventive measure in Sweden during the A(H1N1) influenza pandemic of 2009–2010, and covered 60% of the population. From 2010, an increased incidence of the neurological disease narcolepsy was reported, and an association with Pandemrix was affirmed for more than 200 children and young adults. The parental experience of this side effect provided a starting point for a collectively shaped critical narrative to be acted out in public, but also personalized narratives of continual learning about the disease and its consequences. This didactic functionality resulted in active meaning-making practices about how to handle the aftermath—using dark humor, cognitive tricks, and making themselves and their children’s bodies both objects and subjects of knowledge. Using material from interviews with parents, this mixing of knowledge work and political work, and the potential for reflective consciousness, is discussed.
Place, publisher, year, edition, pages
Taylor and Francis Online , 2015. Vol. 34, no 2, 150-165 p.
A(H1N1), mass-vaccination, narcolepsy, parents´ narratives, side effects
Research subject Ethnology
IdentifiersURN: urn:nbn:se:umu:diva-97016DOI: 10.1080/01459740.2014.962694ISI: 000351434100005ScopusID: 2-s2.0-84915822489OAI: oai:DiVA.org:umu-97016DiVA: diva2:769743
ProjectsEpidemics, Vaccination and the Power of Narratives
FunderMarcus and Amalia Wallenberg Foundation