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How to listen and give voice to First Nations children in BC, Canada, diagnosed with Autism Spectrum Disorder – ethnography in practice
Karlstad University, Faculty of Arts and Social Sciences (starting 2013), Department of Educational Studies. forskarstuderande vid University of Eastern Finland.ORCID iD: 0000-0002-9637-5338
2014 (English)Conference paper, Presentation (Refereed)
Abstract [en]

The purpose of this paper presentation is to discuss some of the opportunities and challenges I have met as a PhD candidate. My work has involved conducting ethnographic fieldwork regarding the meaning of music for First Nations children in British Columbia, Canada, diagnosed with Autism Spectrum Disorder, ASD. The idea and research plan looked good in theory, but the reality presented various challenges. I am a Swedish researcher, who grew up in Canada, so having a stepmother and sisters who are First Nations has provided me access to the field. One major obstacle I encountered was the scarcity of First Nations children diagnosed with ASD. The focus of this paper presentation, however, is on ethical aspects of being accepted in Indigenous communities and welcomed into people’s homes. It can be challenging to interpret and portray people’s life stories. My interest lies in the impact of the interaction, both on the participant and the researcher. Finally, I will examine how the researcher can listen and give voice to First Nations children with ASD and their families, thus acknowledging and honoring the unique opportunity and privilege afforded her.

Place, publisher, year, edition, pages
Keyword [en]
Indigenous research, autism, music, ethnography, ethics, First Nations, Canada
National Category
Social Sciences
Research subject
URN: urn:nbn:se:kau:diva-34451OAI: diva2:757384
American Indigenous Research Association Conference in Pablo Montana, USA, October 10 2014
Available from: 2014-10-22 Created: 2014-10-21 Last updated: 2014-12-30Bibliographically approved

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