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Att leva med inflammatorisk tarmsjukdom. Upplevelser och livskvalitet hos unga människor.: En beskrivande litteraturstudie.
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences.
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences.
2014 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Syfte: Syftet med studien var att beskriva unga människors upplevelser av att leva med en inflammatorisk tarmsjukdom (IBD), samt att beskriva hur sjukdomen påverkar livskvaliteten. Vidare var syftet att beskriva artiklarnas kvalitet utifrån den metodologiska aspekten urval.Metod: Beskrivande litteraturstudie baserad på 14 vetenskapliga artiklar, som söktes i databaserna Cinahl och PubMed via Högskolan i Gävle. Sökorden som användes var: Inflammatory bowel disease, Quality of life, Chronic disease, Experience och Adolescents. Sökningarna var begränsade inom publiceringsåren 2009 - 2013.Huvudresultat: De unga människorna upplevde många olika besvärande symtom som sågs som ett hinder till ett ”normalt” liv, och symtomen visade sig ha ett samband med ungdomarnas sömnkvalitet samt ångest och depression. Sjukdomen påverkade ungdomarnas skolgång och deras fritidsaktiviteter på så vis att de ibland var tvungna att avstå. Detta kunde vara känsligt då ungdomarna ville vara som alla andra, och inte behöva sticka ut på grund av sin sjukdom. Ju mer symtom och sjukdomsaktivitet ungdomarna hade desto lägre var den hälsorelaterade livskvaliteten. Ungdomarna uppskattade den omsorg och stöd som familjen gav, speciellt stödet av föräldrarna. En relation till en högre makt/stöd av Gud, böner, meditation och avkoppling kunde även användas för att bidra till deras välmående.Slutsats: Unga människor med IBD har inte bara en kronisk tarmsjukdom, de befinner sig också i en kritisk utvecklingsperiod i livet. Upplevelserna av sjukdomen och påverkan på livskvaliteten var individuell och uppfattades på olika sätt. Fysiska, psykosociala och andliga upplevelser identifierades som kunde ge upphov till påverkan på det vardagliga livet. Avslutningsvis menar författarna till föreliggande litteraturstudie att sjuksköterskan kan ha stor nytta att känna till hur unga människor upplever sin sjukdom, och hur sjukdomen påverkar deras livskvalitet, för att på bästa sett kunna erbjuda dem god omvård.

Abstract [en]

Aim: The aim of the study was to describe young people's experiences of living with an inflammatory bowel disease (IBD), and to describe how the disease affects quality of life. A further aim was to describe the quality of the articles based on the methodological aspect selection.Methods: Descriptive literature review based on 14 scientific articles, which were searched in the databases Cinahl and PubMed via the University of Gävle. Keywords used were: Inflammatory bowel disease, Quality of life, Chronic Disease, Experience and Adolescents. The searches were limited within the publication period 2009 - 2013.Main results: The young people experienced many troubling symptoms that were seen as an obstacle to a "normal" life, and the symptoms were shown to be associated with young people's sleep quality, anxiety and depression. The disease affected young people's education and their leisure activities such that they sometimes had to abstain. This could be sensitive when young people wanted to be like everyone else, and not have to stand out because of their illness. The more symptoms and disease activity young people had, the lower was the health-related quality of life. The young people appreciated the care and support that the family gave, especially the support of the parents. A relationship to a higher power / support of God, prayers, meditation and relaxation could also be used to contribute to their well-being.Conclusion: Young people with IBD have not only a chronic bowel disease, they are also in a critical period of development in life. The experiences of the disease and the impact on quality of life were individual and perceived in different ways. Physical, psychosocial and spiritual experiences were identified that could give rise to the impact on everyday life. Finally, the authors of this literature wants to emphasize that nurses can greatly benefit from knowing how young people feel about their disease, and how the disease affects their quality of life, to provide them with good nursing.

Place, publisher, year, edition, pages
2014. , 25 p.
Keyword [en]
Quality of life, experiences, inflammatory diseases, IBD
Keyword [sv]
Livskvalitet, upplevelser, inflammatoriska tarmsjukdomar, IBD
National Category
Nursing
Identifiers
URN: urn:nbn:se:hig:diva-16771Archive number: SSKVk14- 33OAI: oai:DiVA.org:hig-16771DiVA: diva2:722458
Subject / course
Nursing science
Educational program
Nursing
Supervisors
Examiners
Available from: 2014-06-09 Created: 2014-06-08 Last updated: 2014-06-09Bibliographically approved

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