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Understanding the next of kin’s experience of their life situation in informal care giving of older persons
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Faculty of Health Sciences, Buskerud University College, Kongsberg, Norway.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. (Liedström, E., Skovdahl, K., Isaksson, A-K., Windahl, J., Kihlgren, A.)ORCID iD: 0000-0002-4226-6064
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2014 (Swedish)In: Clinical Nursing Studies, ISSN 2324-7959, Vol. 2, no 1, 53-63 p.Article in journal (Refereed) Published
Abstract [en]

The experience of their life situation of next of kin in informal caregiving needs to be followed as they may need support to maintain their own health and cope with continuing in their caregiving role. Many of these individuals, often the older person’s spouse, are elderly themselves. The aim of this study was to increase the understanding of the next of kin’s experience of their life situation in connection with their informal caregiving of older persons. The study had a qualitative approach, with an inductive explorative design. Informal conversational interviews were conducted. Twelve next of kin were interviewed, nine of them twice. In all, 21 interviews were performed, and subsequently subjected to latent content analysis. The theme that emerged from the data was “A balance or imbalance in next of kin’s daily life.” The three subthemes were: (1) Balance and imbalance in the relationship with the older person, other family members, and friends; (2) Balance and imbalance in the relationship with the staff from municipal care; and (3) Balance and imbalance in demands, affecting the caregiver’s own health. Communication with mutual respect was described as a tool for creating good relations. The results of this study highlight the strained life experiences of next of kin while caring for older persons. There is a need to give more attention to the next of kin’s life situation and to find the means to support them. To reduce worry and stress, health care staff need to understand the next of kin’s experience of their life situation, and good relations need to be created among all involved in the care.

Place, publisher, year, edition, pages
2014. Vol. 2, no 1, 53-63 p.
Keyword [en]
next of kin, informal caregiver, life situation, older person, municipal care
National Category
Nursing
Research subject
Caring sciences
Identifiers
URN: urn:nbn:se:oru:diva-34191DOI: 10.5430/cns.v2n1p53OAI: oai:DiVA.org:oru-34191DiVA: diva2:704334
Projects
Doktorandprojekt
Available from: 2014-03-11 Created: 2014-03-11 Last updated: 2017-10-17Bibliographically approved
In thesis
1. Life situation of next of kin to persons in need of care-cronic sorrow, burden, quality of life
Open this publication in new window or tab >>Life situation of next of kin to persons in need of care-cronic sorrow, burden, quality of life
2014 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Nursing research has been performed during the last 20-30 years, about the next of kin’s vulnerability. Despite this, the health care system has had difficulties to integrate the next of kin in a way that gives support. The overall aim of the thesis was to describe and further explore the life situation of the next of kin to persons who are long-term ill, disabled, and/or older, and in need of care. Method: Multiple methods were used. Study I had a descriptive design, 44 next of kin of patients with multiple sclerosis were interviewed, latent content analysis was used for the analysis. Study II had a mixed method approach; the descriptive core study was analyzed with directed content analysis. The supplementary study with descriptive, correlative design was analyzed with descriptive and correlative statistics. Forty-four next of kin of patients with multiple sclerosis were interviewed; thereafter 37 of them answered a questionnaire about Quality of Life. Study III had a descriptive, explorative design. Twelve next of kin of older persons were interviewed with repeated informal conversational interviews, analyzed with latent content analysis. Study IV was cross-sectional with a descriptive, correlative design. Eighty-four next of kin of persons who were long-term ill, disabled, and/or older answered two questionnaires about Burden and Quality of Life that were analyzed with descriptive and correlative statistics. Results and Conclusions: Next of kin described a balance/imbalance in their relations to others and a high burden, but in general a good Quality of Life. Some next of kin also experienced chronic sorrow. Significant correlations were found between interpersonal relations and Quality of Life as a whole. Love and obligations were two anchor points on a continuum, describing the next of kin’s relationship to the ill/disabled person. The relationship with the health care personnel was described through cooperation and obligations. Good communication was seen as the key to balance the relationship with others. One possibility to achieve symmetrical communications is to adapt the Partnership Model, as a tool for creating good relationships. Honest and specific communication between the health care personnel, the next of kin, and the care receiver are necessary.

Place, publisher, year, edition, pages
Örebro: Örebro university, 2014. 84 p.
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 85
Keyword
life situation, next of kin, informal caregiving, chronic sorrow, burden, quality of life, Partnership model
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-33839 (URN)978-91-7529-009-6 (ISBN)
Public defence
2014-04-11, Hörsal P1, Prismahuset, Örebro universitet, Fakultetsgatan 1, 702 81 Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2014-02-19 Created: 2014-02-19 Last updated: 2017-10-17Bibliographically approved

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