Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Everyday life in families with a child with ADHD and public health nurses’ conceptions of their role
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
2014 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

ADHD is one of the most common behavioral disorders diagnosed in children. These children have difficulties regarding the regulation of emotions, maintaining attention and impulse control, all of which influence family and social life. The aim of this study was to describe and explore the everyday life of families with a child with ADHD and public health nurses’ role in relation to these families. The parents were contending with- and adapting to the parental role and social network. The family attempted to safeguard a functioning family in managing their everyday life, tuning themselves in on the child’s shifting moods, using strict boundaries and developing special skills. The family fought for acceptance and inclusion when interacting with their social network and professionals. Parents with ADHD and families with non-medicated children reported more problems in family functioning. Characteristics in parents and the child with ADHD, as well as support from the social network and community health services, all influenced family functioning. The PHNs described their role as both a peripheral and collaborating partner, asking for guidelines and multidisciplinary collaboration. The public health nurse is in a unique position to support and supervise these families.

Abstract [en]

Aim: The overall aim of this thesis was to describe and explore everyday life in families with a child with ADHD and public health nurses’ role in relation to these families.

Methods: An explorative and descriptive design with qualitative and quantitative methods was used. In Study I, data was collected with individual interviews with nine parents, and analyzed using phenomenology. In Study II, the data was collected with individual interviews with 17 family members, and analyzed with phenomenography. In Study III, data was collected with a questionnaire responded by 265 parents, and analyzed with statistics. In Study IV, data was collected with group- and individual interviews with 19 public health nurses, and analyzed with phenomenography.                                                                                                 

Main findings: The families’ everyday life was influenced by living in unpredictability, though they were striving for predictability. The experience of being a parent was described as contending and adapting every day, like windsurfing in unpredictable waters (I). The family tried to safeguard a functioning family in managing their everyday life and developing special skills, within the family and the society. They fought for acceptance and inclusion in relation to the social network and professionals (II). Parents’ sense of coherence, children’s behavior, support from social networks and community health services had all an impact on family functioning (III). The PHNs described their role as both a peripheral and a collaborating partner and they asked for guidelines and multidisciplinary collaboration (IV).

Conclusions: Everyday life in families with ADHD is both demanding and giving. Acceptance and support from the social network and supervision from the professionals are essential. The public health nurse is in a unique position to support and supervise these families.

 

Place, publisher, year, edition, pages
Karlstad: Karlstads universitet, 2014. , 66 p.
Series
Karlstad University Studies, ISSN 1403-8099 ; 2014:9
Keyword [en]
ADHD, children, everyday life, family, family functioning, parents, public health nurse, support
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:kau:diva-30940ISBN: 978-91-7063-538-0 (print)OAI: oai:DiVA.org:kau-30940DiVA: diva2:697269
Public defence
2014-04-04, Lagerlöfsalen, 1A 305, Karlstads universitet, Karlstad, 11:00 (Norwegian)
Opponent
Supervisors
Available from: 2014-03-14 Created: 2014-01-20 Last updated: 2014-03-14Bibliographically approved
List of papers
1. Contending and adapting every day: Norwegian parents' lived experience of having a child with ADHD
Open this publication in new window or tab >>Contending and adapting every day: Norwegian parents' lived experience of having a child with ADHD
2011 (English)In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 17, 441-462 p.Article in journal (Refereed) Published
National Category
Medical and Health Sciences Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-12708 (URN)10.1177/1074840711423924 (DOI)000296981600002 ()
Available from: 2012-04-01 Created: 2012-04-01 Last updated: 2017-12-07Bibliographically approved
2. Living in a family with a child with attention deficit hyperactivity disorder: a phenomenographic study
Open this publication in new window or tab >>Living in a family with a child with attention deficit hyperactivity disorder: a phenomenographic study
2014 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, no 21-22, 3166-3176 p.Article in journal (Refereed) Published
Abstract [en]

This study contributes to knowledge of the parents, siblings and children with attention deficit hyperactivity disorder experiences of everyday life with a child with attention deficit hyperactivity disorder. All family members need support before their problems become too severe.

Attention deficit hyperactivity disorder is a highly prevalent, clinically heterogeneous disorder characterised by behavioural symptoms of inattention, hyperactivity and impulsivity that creates impairments for the child and affects the family life. The impairments vary with age and context, and the same symptoms do not necessarily have the same effects in different contexts and persons.

The findings include two descriptive categories ‘safeguarding a functioning family’ and ‘fighting for acceptance and inclusion’. To create a stable and structured family life to avoid conflicts within the family and manage their daily life were crucial. The child with attention deficit hyperactivity disorder and their parents developed special skills and strategies to live with attention deficit hyperactivity disorder in the family sphere and the social context. To apply for help before the problems in the family become too severe and to share responsibility with professionals, who have competence, to meet the families in their worries were stressed. The striving in the family strengthened the companionship in the families, and they conceived growth.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2014
Keyword
attention deficit hyperactivity disorder; child; family; life situation; phenomenography
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-31581 (URN)10.1111/jocn.12559 (DOI)000343835300018 ()25453121 (PubMedID)
Available from: 2014-02-27 Created: 2014-02-27 Last updated: 2017-12-05Bibliographically approved
3. Parental perception of family functioning in everyday life with a child with ADHD
Open this publication in new window or tab >>Parental perception of family functioning in everyday life with a child with ADHD
2015 (English)In: Scandinavian Journal of Public Health, ISSN 1403-4948, E-ISSN 1651-1905, Vol. 43, no 1, 10-17 p.Article in journal (Refereed) Published
Abstract [en]

Aim: The aim of this study was to describe and investigate family characteristics in relation to support, behaviour of the child, family functioning and sense of coherence from the parents' perspective in families with a child with attention deficit hyperactivity disorder (ADHD). A further aim was to explore predictors of family functioning.

Methods: The study population consisted of 1964 parents of children with ADHD aged 15 years old and younger. In all, 265 parents responded to a questionnaire (response rate 48.2%; 217 mothers and 48 fathers). In addition to questions about the parents, children, family characteristics and support from health services, the questionnaire included the Family Assessment Device (FAD), the Strengths and Difficulties Questionnaire (SDQ), Sense of Coherence (SOC) and Social Cohesion and Support Index (SCS). Data were analysed with descriptive, comparative and standard multiple regression analyses.

Results: Parents with ADHD reported a weaker SOC and poorer FAD in the family than parents without ADHD. Parents with children medicated for ADHD were significantly more satisfied with social support (SCS), rated their children's behaviour as less problematic and reported better family functioning. Parents' age, SOC, SCS, SDQ and support from the community health services explained 46.2% of the variation in FAD.

Conclusions: A strong SOC, social support and support from the community health services were strongly associated with a positive effect on family functioning. Parents with ADHD reported a weaker SOC and poorer family functioning than parents without ADHD. This knowledge may be useful and should be taken into account when planning support for such families.

Place, publisher, year, edition, pages
Sage Publications, 2015
Keyword
ADHD, children, family, family functioning, parents, support
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-31582 (URN)10.1177/1403494814559803 (DOI)000347444800003 ()
Note

The article was still in manuscript form when the thesis was defended.

Available from: 2014-02-27 Created: 2014-02-27 Last updated: 2017-12-05Bibliographically approved
4. Public health nurses' conceptions of their role related to families with a child having attention-deficit/hyperactivity disorder
Open this publication in new window or tab >>Public health nurses' conceptions of their role related to families with a child having attention-deficit/hyperactivity disorder
2014 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 28, no 3, 515-522 p.Article in journal (Refereed) Published
Abstract [en]

Attention-deficit/hyperactivity disorder is one of the most common behavioural disorders diagnosed in children. Children who have this disorder have difficulties regarding regulation of their emotions, maintaining attention and impulse control. Parents may need guidance in creating structure and predictable boundaries. One of the personnel who meet these families is the public health nurse. The aim of this study was to explore the public health nurses role in relation to these families. A qualitative explorative design with a phenomenographic approach was used. Interviews were performed with 19 nurses, six in group and one individual. In the data analyses, three descriptive categories emerged: 'supporting the family-unit', which describes the nurses supervising the parents and the child in everyday challenges; 'understanding the child', which describes how the public health nurses use professional competence and choose the time and arena to observe the child and; 'collaborating multidisciplinary', which describes how the public health nurses define their own role and conceive their collaboration with other professionals. The public health nurse (PHN)'s support for the parents and the entire family is important, and the PHN is the first encounter and trustful follower throughout the course of diagnosis and care.

Place, publisher, year, edition, pages
John Wiley & Sons, 2014
Keyword
attention-deficit/hyperactivity disorder, conceptions, phenomenography, public health nurse, role
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-31584 (URN)10.1111/scs.12076 (DOI)000340288100011 ()24015931 (PubMedID)
Available from: 2014-02-27 Created: 2014-02-27 Last updated: 2017-12-05Bibliographically approved

Open Access in DiVA

Everyday_life_in_families_with_a_child_with_ADHD...(1604 kB)4657 downloads
File information
File name FULLTEXT01.pdfFile size 1604 kBChecksum SHA-512
5fd672d431f853fb8aac0c0fa655b507d05fe3bc2286ea3f18078fa12338baf9b533a62c3daa97de2e6f790389ad13da6909bcbb558f4f018fc48a18b7ef1f9d
Type fulltextMimetype application/pdf

Authority records BETA

Larsen Moen, Øyfrid

Search in DiVA

By author/editor
Larsen Moen, Øyfrid
By organisation
Department of Health Sciences
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 4657 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

isbn
urn-nbn

Altmetric score

isbn
urn-nbn
Total: 4672 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf