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Suffering caused by care - elderly patients’ experiences in community care
University of Skövde, School of Life Sciences.ORCID iD: 0000-0002-4503-9916
University of Skövde, School of Life Sciences. School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.ORCID iD: 0000-0002-9194-3244
University of Skövde, School of Life Sciences.ORCID iD: 0000-0002-2671-1041
University of Skövde, School of Life Sciences.ORCID iD: 0000-0003-3404-3431
2013 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 8, no 1, 20603Article in journal (Refereed) Published
Abstract [en]

Background: Growing old involves many changes in life and implies an increased risks of illness and different forms of disabilities. Life may change in a radical way when a person gets a disease like dementia or moves to a nursing home due to disabilities or needs. In both cases, it often leads to an increased dependency on care where the patient becomes exposed and vulnerable and thereby at a higher risk for experiencing different forms of suffering.

Aim: The aim of this study was to elucidate and gain a deeper understanding of elderly patients’ experiences of suffering in relation to community care in nursing homes and home care services.

Materials and methods: A lifeworld hermeneutical approach was used. Phenomenological interviews and conversations with an open approach were conducted and analysed with a focus on meanings.

Findings: The findings were presented in four main themes; an absence of the other in care, an absence of dialogues, a sense of alienation and a sense of insecurity. The findings in this study revealed that persons who were cared for in nursing homes and home care services sometimes were exposed to an unnecessary suffering. The suffering sometimes was caused by various caring actions, that is, unnecessary suffering. The suffering caused by care that aroused was due to caregiver’s inability to be present, to show their face, and truly meet the patient.

Conclusion: Suffering from care increased the elderly patients’ feelings of insecurity, loneliness, and alienation; this seemed to be the foundation for patients’ experiences of being outside a human community. There was a lack of knowledge and understanding about the patient’s lifeworld.

Place, publisher, year, edition, pages
CoAction Publishing, 2013. Vol. 8, no 1, 20603
Keyword [en]
Elderly, care, dementia, lifeworld, patient experiences, suffering
National Category
Research subject
Medical sciences
URN: urn:nbn:se:his:diva-8657DOI: 10.3402/qhw.v8i0.20603ISI: 000327497600001PubMedID: 24262375ScopusID: 2-s2.0-84888356601OAI: diva2:668086
Available from: 2013-11-28 Created: 2013-11-28 Last updated: 2016-10-19Bibliographically approved

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Svanström, RuneJohansson Sundler, AnnelieBerglund, MiaWestin, Lars
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