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En kartläggning av dietistkontakten hos personer med celiaki i Sverige
Umeå University, Faculty of Social Sciences, Department of Food and Nutrition.
Umeå University, Faculty of Social Sciences, Department of Food and Nutrition.
2012 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Mapping of the dietitian contact among persons with Celiac Disease in Sweden (English)
Abstract [sv]

Bakgrund Celiaki är en autoimmun sjukdom som påverkar tunntarmen. Prevalensen i Sverige uppskattas till 1 %. Mycket forskning har gjorts kring celiaki men gällande den faktiska dietistkontakten, vilka som får träffa dietist, hur ofta och i vilken form kontakten sker, har lite forskning av relevans hittats. Därför kan en kartläggning vara viktig för att få en överblick på hur det ser ut i Sverige idag. Uppsatsen skrevs på uppdrag av Svenska Celiakiförbundet. Syfte Syftet med studien var att kartlägga dietistkontakten och se hur den överensstämmer med upplevda behov hos vuxna med celiaki i Sverige. Metod En enkätstudie genomfördes där 348 personer med celiaki, varav 273 kvinnor och 75 män, besvarade webbenkäten som skickades ut via Svenska Celiakiförbundets nyhetsbrev. Data bearbetades och analyserades i statistiska program och signifikansnivån sattes till p < 0.05. Resultatet sammanställdes i form av deskriptiv statistik.  Resultat Åttiotvå procent av respondenterna hade varit i kontakt med dietist angående sin celiaki och vanligast var individuellt mottagningsbesök (88 %). Majoriteten ansåg att tiden från diagnostillfälle till första dietistkontakt var lagom. Männen var mer nöjda med antalet dietistkontakter jämfört med kvinnorna och signifikanta skillnader kunde ses mellan åldersgrupperna där den yngre gruppen önskade fler dietistkontakter. Sextiofem procent ansåg att informationen från dietist hjälpt dem till att äta glutenfritt. Angående informationsinnehållet var 51 % nöjda med helheten, medan 50 % menade att de inte fått tillräcklig information om att hantera sin celiaki i sociala sammanhang. Slutsats Majoriteten fick dietistkontakt inom en månad efter diagnos i form av individuellt mottagningsbesök, däremot var täta uppföljningsbesök ovanliga. Många var nöjda med antalet dietistkontakter, informationen som getts under dessa samt ansåg att dietistkontakten hjälpt dem att äta glutenfritt. Däremot fanns en betydande andel som uttryckte motsatsen. Männen var mer nöjda än kvinnorna gällande antalet dietistkontakter och den äldre gruppen var mest nöjd i sin helhet.

Abstract [en]

Background Celiac disease is autoimmune and affecting the small intestine. Prevalence in Sweden counts to 1 %. Research regarding celiac disease has been done but patients’ experiences of dietary provision are a quite unexplored area. A mapping is therefore important to get a general view over the situation in Sweden today. This essay was assigned by The Swedish Society for Coeliacs. Objective The aim was to make a general view over appointments with clinical dietitians and investigate how they correspond with experience of needs in adults with celiac disease in Sweden. Method A web-based questionnaire was conducted where 348 individuals, 273 women and 75 men participated. The questionnaire was distributed in the newsletter of The Swedish Society for Coeliacs. Data was analyzed in statistical programs. Results were presented in descriptive statistics, p-value <0.05. Results Eighty-two percent had been in contact with clinical dietitians concerning their celiac disease, most common type of contact was individual appointments (88 %). The majority found the duration between diagnosis and first dietitian contact satisfying. Men were more satisfied with number of appointments compared to women. The youngest age group wanted significantly more contact. Fifty-one percent were satisfied with the content of the information, 50 % claimed a lack of information on how to manage the gluten free diet in social contexts. Sixty-five percent considered the information had helped them follow the gluten free diet. Conclusion Individual dietitian contact within a month after diagnosis was common, but frequent follow-ups were unusual. Respondents were satisfied with dietetic provision regarding number of appointments, general information and considered it had helped them follow the gluten free diet. But there were a considerable amount who expressed opposite opinion. Men were more satisfied compared to women concerning number of appointments and in general persons > 60 years were most satisfied. 

Place, publisher, year, edition, pages
2012.
Keyword [sv]
Celiaki, dietistkontakt
National Category
Food Science
Identifiers
URN: urn:nbn:se:umu:diva-60861OAI: oai:DiVA.org:umu-60861DiVA: diva2:563929
External cooperation
Svenska Celiakiförbundet
Subject / course
Uppsats i kostvetenskap
Educational program
Degree of Bachelor in Dietetics
Uppsok
Medicine
Available from: 2012-11-21 Created: 2012-10-31 Last updated: 2013-12-19Bibliographically approved

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