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Condition-related knowledge among children and adolescents with spina bifida in a Swedish county
Östergötlands Läns Landsting, Anaesthetics, Operations and Specialty Surgery Center, Pain and Rehabilitation Center.
Linköping University, Department of Clinical and Experimental Medicine, Division of Inflammation Medicine. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Heart and Medicine Center, Department of Dermatology and Venerology. Östergötlands Läns Landsting, Local Health Care Services in West Östergötland, Research & Development Unit in Local Health Care.ORCID iD: 0000-0001-8336-9767
Linköping University, Department of Medical and Health Sciences, Division of Nursing Science. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Local Health Care Services in West Östergötland, Research & Development Unit in Local Health Care.
Linköping University, Department of Science and Technology, Media and Information Technology. Linköping University, The Institute of Technology. (Visual learning and communication)ORCID iD: 0000-0003-1032-2145
2014 (English)In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 16, no 2, 127-140 p.Article in journal (Refereed) Published
Abstract [en]

Spina bifida is a congenital birth defect, resulting in physical and cognitive dysfunctions. Condition-related knowledge among children and adolescents with spina bifida is essential to facilitate independent management of their condition. The aim was to describe the condition-related knowledge among children and adolescents with spina bifida in a Swedish county. Thirteen persons with spina bifida (10 to 17 years) participated. Condition-related knowledge was assessed (n = 13) using a questionnaire (KOSB) and a semi-structured interview (n = 8). Interview data were analyzed using qualitative content analysis. The participants had well-developed knowledge concerning proper bladder management, but were lacking knowledge of signs of shunt malfunctioning and etiology. Some participants were uninterested in learning about their condition, despite being aware that they lacked knowledge. The findings indicate potential areas that may be included in local educational initiatives. It should be considered that persons with spina bifida may not be motivated to learn more about their condition.

Place, publisher, year, edition, pages
Taylor & Francis Group, 2014. Vol. 16, no 2, 127-140 p.
Keyword [en]
spina bifida, children, adolescents, condition knowledge, qualitative content analysis
National Category
Psychology
Identifiers
URN: urn:nbn:se:liu:diva-84979DOI: 10.1080/15017419.2012.735202OAI: oai:DiVA.org:liu-84979DiVA: diva2:563349
Available from: 2012-10-29 Created: 2012-10-29 Last updated: 2017-12-07

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Falk, LarsWilhelmsson, SusanHöst, Gunnar E.
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Pain and Rehabilitation CenterDivision of Inflammation MedicineFaculty of Health SciencesDepartment of Dermatology and VenerologyResearch & Development Unit in Local Health CareDivision of Nursing ScienceMedia and Information TechnologyThe Institute of Technology
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