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Unfulfilled rehabilitation needs and dissatisfaction with care 12 months after a stroke: an explorative observational study
Dalarna University, School of Education, Health and Social Studies, Medical Science.ORCID iD: 0000-0003-0581-2895
Karolinska Institutet, Institutionen för Neurobiologi, vårdvetenskap och samhälle.
Karolinska Institutet, Institutionen för Neurobiologi, vårdvetenskap och samhälle.
Karolinska Institutet, Institutionen för Neurobiologi, vårdvetenskap och samhälle.
2012 (English)In: BMC Neurology, ISSN 1471-2377, E-ISSN 1471-2377, Vol. 12, 40Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: People who have suffered a stroke commonly report unfulfilled need for rehabilitation. Using a model of patient satisfaction, we examined characteristics in individuals that at 3 months after stroke predicted, or at 12 months were associated with unmet need for rehabilitation or dissatisfaction with health care services at 12 months after stroke.

METHODS: The participants (n = 175) received care at the stroke units at the Karolinska University Hospital, Sweden. The dependent variables "unfulfilled needs for rehabilitation" and "dissatisfaction with care" were collected using a questionnaire. Stroke severity, domains of the Stroke Impact Scale (SIS), the Sense of Coherence scale (SOC) and socio demographic factors were used as independent variables in four logistic regression analyses.

RESULTS: Unfulfilled needs for rehabilitation at 12 months were predicted by strength (SIS) (odds ratio (OR) 7.05) at three months, and associated with hand function (SIS) (OR 4.38) and poor self-rated recovery (SIS) (OR 2.46) at 12 months. Dissatisfaction with care was predicted by SOC (OR 4.18) and participation (SIS) (OR 3.78), and associated with SOC (OR 3.63) and strength (SIS) (OR 3.08).

CONCLUSIONS: Thirty-three percent of the participants reported unmet needs for rehabilitation and fourteen percent were dissatisfied with the care received. In order to attend to rehabilitation needs when they arise, rehabilitation services may need to be more flexible in terms of when rehabilitation is provided. Long term services with scheduled re-assessments and with more emphasis on understanding the experiences of both the patients and their social networks might better be able to provide services that attend to patients' needs and aid peoples' reorientation; this would apply particularly to those with poor coping capacity.

Place, publisher, year, edition, pages
2012. Vol. 12, 40
Keyword [en]
Stroke, Needs, Patient satisfaction, Rehabilitation, Health care services, Long-term
National Category
Health Sciences
Research subject
Health and Welfare, Behov av, nyttjande av och tillfredsställelse med hälso- och sjukvård första året efter en stroke
URN: urn:nbn:se:du-10806DOI: 10.1186/1471-2377-12-40ISI: 000310363400001PubMedID: 22708545OAI: diva2:555868

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Available from: 2013-01-07 Created: 2012-09-21 Last updated: 2016-05-31Bibliographically approved

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