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Derformitetskirurgi i växande barns ryggar: En intervjustudie om föräldrars upplevelser
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
2012 (Swedish)Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
Abstract [en]

Introduction:

Children in early age diagnosed with scoliosis and in need of surgery will grow up to undergo several operations in the back. Parents play a major role in the care of their children during hospitalization.

Purpose:

The purpose of this study was to investigate parents´ experiences of having a child diagnosed with scoliosis before the age of five undergoing repeated surgeries in the back.

Method:

The study had a qualitative descriptive design. Five parents with children aged 5-15 years, who have undergone several operations were interviewed about there experiences of the child’s illness and treatment. Phenomenological-hermeneutical analyze where used.

Results:

The parents felt a sense of shock when they were told about their child’s diagnose and treatment. Continuity of personnel and clear information about there child’s illness and treatment has been considered important. The repeated operations and hospital stays have given them experience of their children’s reactions and needs, which has created a sense of calm with the parents

Conclusion:

Information and continuity were important component to make the parents feel included and confident. The experiences of the recurring operations provided some form of security as they recognized the child’s reactions as the same time the parents concern about the child relating to the operations will always be.

Abstract [sv]

Inledning:

Barn som i tidig ålder får diagnos skolios och behöver opereras, kommer under uppväxten att genomgå flera operationer i ryggen. Föräldrarna har en stor roll vid vården av deras barn.

Syfte:

Syftet med studien var att undersöka föräldrars upplevelser av att ha ett barn som före fem års ålder diagnostiserats med skolios och genomgått upprepade operationer i ryggen.

Metod:

Studien har en kvalitativ deskriptiv design. Fem föräldrar med barn i ålder 5-15 år som genomgått upprepade skoliosoperationer intervjuades om sina upplevelser av barnets sjukdom och behandling. Fenomenologisk-hermeneutisk analysmetod användes.

Resultat:

Föräldrarna upplevde en känsla av chock när de fick beskedet att deras barn hade skolios och behövde operera ryggen. Kontinuitet hos personalen och tydlig information om barnets sjukdom och behandling har upplevts viktig av föräldrarna. De upprepade operationerna och sjukhusvistelserna har gett föräldrarna erfarenheter om barnets reaktioner och behov under vårdtillfället vilket skapat en trygghet. Sina egna känslor av oro, rädsla och maktlöshet har de försökt att undanhålla barnet.

Slutsats:

Informationen och kontinuitet var viktiga komponenter för att föräldrarna skulle känna sig delaktiga och trygga. Erfarenheten av de upprepade operationerna gav trygghet då föräldrarna kände igen barnets reaktioner samtidigt som oron över barnet i samband med operationerna aldrig försvinner.

Place, publisher, year, edition, pages
2012. , 36 p.
Keyword [sv]
Tidigt upptäckt skolios, infantil skolios, juvenil skolios, föräldrars upplevelser
National Category
Nursing
Identifiers
URN: urn:nbn:se:uu:diva-177044OAI: oai:DiVA.org:uu-177044DiVA: diva2:538949
Subject / course
Caring Sciences
Educational program
Freestanding course
Uppsok
Medicine
Supervisors
Examiners
Available from: 2012-07-03 Created: 2012-07-02 Last updated: 2012-07-03Bibliographically approved

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