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Living with children who have coeliac disease: a parental perspective
Stockholm University, Sweden .
Linköping University, Department of Behavioural Sciences and Learning, Disability Research. Linköping University, Faculty of Arts and Sciences.
Linköping University, Department of Clinical and Experimental Medicine, Pediatrics. Linköping University, Faculty of Health Sciences. Östergötlands Läns Landsting, Centre of Paediatrics and Gynecology and Obstetrics, Department of Paediatrics in Linköping.
2012 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 38, no 4, 484-489 p.Article in journal (Refereed) Published
Abstract [en]

Background This study explores how a childs coeliac disease (CD) influences the daily life of families because such knowledge can enhance the understanding of how to support family adjustment to a gluten-free diet (GFD). Methods We used an interpretative phenomenological approach, interviewing 20 parents of 14 children diagnosed with CD about their individual thoughts and beliefs. Results Once parents know, especially when their children are young, they seem to have the capacity to rapidly adapt to GFD, mainly because they notice how quickly their children recover. Parents may have problems controlling how staff at daycare and at school complies with their information about a GFD. Conclusions To ensure that children with CD are given a GFD at daycare and school, it is necessary for municipalities to educate staff about the disease and to give them the prerequisites for serving a GFD. There is also a need of early identification of children who may have CD. When parents express their worries, not just at the hospital but also at the well-baby clinic and primary care units, supporting treatment could prevent children from suffering from inappropriate food.

Place, publisher, year, edition, pages
Blackwell Publishing , 2012. Vol. 38, no 4, 484-489 p.
Keyword [en]
adaption process, children, coeliac disease, parental perspective
National Category
Medical and Health Sciences
URN: urn:nbn:se:liu:diva-78804DOI: 10.1111/j.1365-2214.2011.01273.xISI: 000304753900005OAI: diva2:536063

Funding Agencies|Swedish Society for Coeliacs||FORSS||Swedish Research Council||

Available from: 2012-06-21 Created: 2012-06-21 Last updated: 2017-12-07

Open Access in DiVA

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