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Caregiver burden and need of support among family members of persons living with HIV: A qualitative study
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
2012 (English)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
Abstract [en]

Abstract

Introduction: Vietnam has one of the fastest growing HIV- epidemics in the world. In Vietnam the primary caregivers are the family.

Aim:  The aim was to examine caregiver burden and need of support among family members of persons living with HIV [PLHIV] in Ho Chi Minh City, and also to investigate the differences in these matters between genders.

Method:  A descriptive cross-sectional study with quantitative method was used. The study was carried out at the Hospital of Tropical Diseases, Ho Chi Minh City, Vietnam where people living with HIV are treated. A convenience sample was used. Seventy one of 87 questionnaires were completed.

Result: The largest groups reported “mild to moderate” (35%) and moderate to severe” (42%) caregiver burden. The caregivers felt that they should do more for their relative and a better job in caring for them. They also expressed that the financial situation added to the burden. The needs of support most requested were economic support, knowledge about caring, and mental support to cope. Concerning caregiver burden scale only one significant difference was found, male participants found it more embarrassing to have friends over than female participants. High caregiver burden was strongly associated with depression (p=0.00).

Conclusion: High caregiver burden and feeling of depression was strongly associated. The caregivers of PLHIV are in need of different kinds of support to cope with their situation. Intervention including care plan should be given to caregivers to minimize risk of burden and depression and increase their quality of life.

Abstract [sv]

Sammanfattning

Introduktion: Vietnam har en av de snabbaste växande HIV-epidemierna i världen. De primära vårdgivarna vid sjukdom är familjemedlemmar.

Syfte: Syftet med studien var att undersöka känslan av vårdgivarbelastning hos familjemedlemmar till personer som lever med HIV när de vårdar sin anhörig och vilka stödinsatser de behöver. Vidare var syftet att se om några skillnader mellan män och kvinnor föreligger.

Metod: En deskriptiv tvärsnitts studie med en kvantitativ metod användes. Studien genomfördes på Hospital of Tropical Diseases i Ho Chi Minh City, Vietnam. Ett bekvämlighets urval användes. Sjuttioen av 87 enkäter var fullständigt ifyllda och användes för analys.

Resultat:Den största delen av deltagarna upplevde ”mild till lindrig” (35%) och ”lindrig till svår” (42%) belastning. Familjevårdgivarna kände att de skulle vilja göra mer för sin anhörig och vårda dem på ett bättre sätt. De uttryckte också att den svåra ekonomiska situationen ökade belastningen. Stödinsatser som efterfrågades mest var ekonomiskt stöd, kunskap om hur man vårdar och mentalt stöd för att klara av situationen som vårdgivare. Gällande vårdgivarbelastning fanns en signifikant skillnad, män var mer generade än kvinnor när de hade besök av vänner. Hög vårdgivarbelastning var starkt associerad med känslan av depression (p=0.000).

Slutsats: Hög vårdgivarbelastning och känslan av depression var starkt associerade. Vårdgivarna är i behov av stödinsatser av olika slag för att klara av sin situation. Åtgärder som inkluderar en omvårdnadsplan skulle kunna erbjudas till vårdgivarna för att minimera risken av vårdgivar- belastning, depression och öka deras livskvalité.

Place, publisher, year, edition, pages
2012. , 32 p.
Keyword [en]
HIV, family members, needs of support caregiver burden, Vietnam
Keyword [sv]
HIV, familjemedlemmar, stödinsatser, vårdgivarbelastning, Vietnam
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:uu:diva-174879OAI: oai:DiVA.org:uu-174879DiVA: diva2:529304
Subject / course
Caring Sciences
Educational program
Registered Nurse Programme
Uppsok
Medicine
Supervisors
Examiners
Available from: 2012-05-30 Created: 2012-05-29 Last updated: 2012-05-30Bibliographically approved

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