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Ständigt i skuggan av sin döende närstående: Anhörigas upplevelse av palliativ vård i hemmet
Ersta Sköndal University College, Department of Health Care Sciences.
Ersta Sköndal University College, Department of Health Care Sciences.
2012 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Stuck in the shadow of the dying relative : Next of kins’ experiences of palliative care in the home (English)
Abstract [sv]

Bakgrund: Palliativ hemsjukvård är en växande vårdform i Sverige som ställer höga krav på involveringen av anhöriga. De anhöriga inom palliativ hemsjukvård befinner sig i en utsatt och omvälvande situation där vårdbördan kan upplevas mycket stor. Stödet från vården har en stor del i hur de anhöriga upplever situationen och ifall den sjuke kan erhålla vård i sitt hem. För att vården ska kunna stödja de anhöriga på ett lämpligt sätt krävs insyn i hur de anhöriga upplever sin situation.

Syfte: Att beskriva anhörigas upplevelse av att ha en svårt sjuk närstående som vårdas med palliativ hemsjukvård.

Metod: En litteraturstudie baserad på åtta kvalitativa studier publicerade mellan år 2002-2010. Använda databaser är CINAHL, PubMed, Academic Search Premier samt Nursing & Allied Health Source. Även en manuell sökning gjordes. Dataanalysen utfördes enligt metoden beskriven av Friberg som är inspirerad av metaanalys.

Resultat: Fem övergripande teman identifierades. Dessa är upplevelsen av en påverkad självbild och identitet, upplevelsen av stöd, upplevelsen av att sätta sig själv i andra hand, upplevelsen av att bli sviken av hemsjukvården samt upplevelsen av att vara tillsammans i dödens närhet. Huvudfyndet som är genomgående i alla teman är de anhörigas påverkade självbild.

Diskussion: Resultatet diskuterades utifrån värdighetsbegreppets fyra delar meritvärdighet, den moraliska resningens värdighet, identitetsvärdighet och den universella mänskliga värdigheten. I resultatet blir de anhöriga inte sedda som en egen person, de upplever sig inte ha något val och de tvingas sätta sig själva i andra hand när de vårdar den sjuke. Författarna diskuterar hur detta kan påverka den anhörigas meritvärdighet, identitetsvärdighet och moraliska resningsvärdighet.

Abstract [en]

Background: In Sweden palliative home care is expanding rapidly and implies high demands on the next of kins’ involvement. Next of kin of relatives enrolled in palliative home care often find themselves in a demanding position and the burden of the care is experienced as heavy to bear. The support from professional caregivers’ can have an influence on how the next of kin experience his or her situation and if the sick relative can receive care at home. It is important for professional caregivers to understand how the next of kin can experience their situation to be able to support them adequately.

Aim: To describe lived experiences as narrated by the next of kin of a relative with a severe condition who is cared for by palliative home care.

Method: This article is a literature review based on eight qualitative studies published 2002-2010. The studies were found in the databases CINAHL, PubMed, Academic Search Premier and Nursing & Allied Health Source and by a manual search. A data analysis inspired by meta analysis described by Friberg was performed.

Result: In the result five main themes were identified; the experience of one’s affected self image and identity, experiences of support, the experience of putting yourself second, the experience of being let down by professional caregivers and the experience of being together close to death. The key finding in the result is the next of kins’ affected self image which can be found in all themes.

Discussion: The concept dignity and its four components merit dignity, identity dignity, morale dignity and human dignity led the way in the discussion of the result. In the result the next of kin is not seen as an individual person, they experience that they do not have a choice whether to care or not and they always put themselves second. The writers discuss how these experiences can affect the next of kins’ merit dignity, identity dignity and morale dignity.

Place, publisher, year, edition, pages
2012. , 35 p.
Keyword [en]
Next of kin, dignity, lived experiences, palliative care, home care
Keyword [sv]
Anhöriga, värdighet, upplevelser, palliativ vård, hemsjukvård
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-1550OAI: oai:DiVA.org:esh-1550DiVA: diva2:527490
Educational program
Bachelor of Science in Nursing
Uppsok
Medicine
Supervisors
Examiners
Available from: 2012-05-23 Created: 2012-05-21 Last updated: 2012-05-23Bibliographically approved

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