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Är himlen grön, så är den grön: Erfarenheter av att leva med och vårda en anhörig med Alzheimers sjukdom
Halmstad University, School of Social and Health Sciences (HOS).
Halmstad University, School of Social and Health Sciences (HOS).
2011 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
If the sky is green, it’s green : Experiences of living with and caring for a relative with Alzheimer’s disease (English)
Abstract [sv]

Alzheimers är en sjukdom som ökar i Sverige. När någon diagnostiseras med Alzheimers sjukdom förändras även anhörigas liv och därför kallas Alzheimers för ”de anhörigas sjukdom”. Sjuksköterskan behöver förståelse för hur anhörigas livssituation förändras och vad det innebär att ta rollen som anhörigvårdare. Då anhöriga innehar stor kunskap om individen de vårdar skall sjuksköterskan beakta anhörigas kompetens och erfarenhet för att optimera vårdrelationen. Syftet var att beskriva anhörigvårdares erfarenheter av att leva och vårda en anhörig med Alzheimers sjukdom. Arbetet utfördes som en litteraturstudie utifrån 13 vetenskapliga artiklar som granskades, analyserades samt färgkodades. Vid kodningen framkom fem kategorier som var de mest karaktäristiska erfarenheterna. I resultatet framkom det att anhöriga saknade kunskap om sjukdomen, att den nya rollen innebar en förändrad relation och nya prioriteringar. Att känna förlust av den tidigare relationen mellan anhörigvårdaren och personen med Alzheimers var en erfarenhet som delades av många anhörigvårdare. Bristen på egentid och minskat socialt umgänge kunde ses som negativa erfarenheter men resultatet visar att anhörigvårdare lär sig att leva i nuet och uppskatta vardagliga ting. Sjuksköterskan behöver mer utbildning i att möta och stödja anhöriga för att få förståelse. Vidare forskning bör fokusera på manliga anhörigvårdares erfarenheter då de är underrepresenterade i forskningen.

Abstract [en]

Alzheimer's is a disease that is increasing in Sweden. When a person is diagnosed with Alzheimer's disease it change the lives of their relatives, this is why Alzheimer's is called ”the relatives’ illness”. The nurses need a greater understanding in how the families living situation is changed by the disease and means to take on the role as a caregiver. The caregivers have great knowledge about the person they care for. The nurse has to pay attention to the knowledge and the experience of caregivers to optimize the care relationship. The aim of this study was to describe the caregivers’ experiences of living with and caring for a relative with Alzheimer's disease. The work was carried out as a literature study where 13 scientific articles were examined, analyzed and coded in colours. The most prominent experiences that arose were divided into five categories. The results showed that relatives felt a lack of knowledge about the disease, that the new role meant a changed relationship and new priorities. The feeling of having lost the previous relationship between the caregiver and the person with Alzheimer's disease was an experience shared by many carers. The lack of leisure time and reduced social interaction could be seen as negative factors, but the result shows that family caregivers learn to live in the moment and appreciate the everyday things. The nurses are in need of more training in how to meet and support the affected families to get a deeper understanding in the outcome of the disease. Further research should focus on male caregivers and their experiences because they are underrepresented in research.

Place, publisher, year, edition, pages
2011. , 18 p.
Keyword [sv]
Alzheimers sjukdom, anhörigvårdare, upplevelser
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-16890OAI: oai:DiVA.org:hh-16890DiVA: diva2:475375
Subject / course
Nursing
Uppsok
Medicine
Supervisors
Examiners
Available from: 2012-01-17 Created: 2012-01-10 Last updated: 2012-01-17Bibliographically approved

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