PULSE survey: population survey on knowledge, gaps and perception of heart rhythm disorders: an initiative of the scientific initiatives committee of the European heart rhythm associationDepartment of Cardiology and Intensive Care Medicine, Asklepios Hospital St. Georg, Lohmühlenstrasse 5, Hamburg, Germany; Department of Cardiology, University Hospital Giessen, Rudolf-Buchheim-Straße 8, Giessen, Germany.
Division of Cardiology, Medical University of Graz, Graz, Austria.
Assistance Publique − Hôpitaux de Marseille, Centre Hospitalier Universitaire La Timone, Service de Cardiologie, Marseille, France; C2VN, Aix Marseille Université, Marseille, France.
ASKLEPIOS proresearch Institute, Lohmühlenstrasse 5, Hamburg, Germany.
ASKLEPIOS proresearch Institute, Lohmühlenstrasse 5, Hamburg, Germany.
Department of Cardiology, Hospital Sta Cruz, Lisboa, Portugal.
Department of Cardiology, Unidade Local de Saúde do Alto Ave, Guimarães, Portugal.
Department of Cardiology, Karolinska University Hospital, Stockholm, Sweden; Department of Heart and Lung Diseases, Karolinska Institute, Huddinge, Stockholm, Sweden.
European Society of Cardiology Patient Forum, Sophia Antipolis, France.
Division of Cardiology, Department of MedicalSciences, ‘Città della Salute e della Scienza di Torino’ Hospital, University of Turin, Turin, Italy.
Cardiovascular Research Institute, Mater Private Hospital, The Royal College of Surgeons in Ireland, Eccles Street, Ireland.
Department for Internal Medicine, Faculty of Medical Sciences, University of Kragujevac, Kragujevac, Serbia; Clinic for Cardiology, University Clinical Centre Kragujevac, Kragujevac, Serbia.
Department of Cardiology, Medical University of Silesia, Katowice, Poland; Interventional Cardiac Electrophysiology Group, International Clinical Research Center, St. Anne’s University Hospital Brno, Brno, Czech Republic; Heart Rhythm Centre, Royal Brompton and Harefield Hospitals, Guy’s and St Thomas’ NHS Foundation Trust, Hill End Road, Harefield, London, United Kingdom; School of Biomedical Engineering and Imaging Sciences, Faculty of Life Sciences and Medicine, King’s College London, London, United Kingdom.
Arrhythmia Unit, Vall d’Hebron University Hospital, Barcelona, Spain.
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine.
Department of Cardiology, St. Antonius Hospital, Nieuwegein, Netherlands.
German Center for Cardiovascular Research (DZHK), Partner Site Hamburg/Kiel/Lübeck, Lübeck, Germany; Department of Rhythmology, University Heart Center Lübeck, University Hospital Schleswig-Holstein, Lübeck, Germany.
Cardioangiologic Center Bethanien (CCB), Frankfurt am Main, Germany.
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2025 (English)In: Europace, ISSN 1099-5129, E-ISSN 1532-2092, Vol. 27, no 4, article id euaf032Article, review/survey (Refereed) Published
Abstract [en]
Aims: Despite increasing prevalence, the general population lacks knowledge regarding diagnosis, implications, and management of cardiac arrhythmias (CA). This study aims to assess public perception of CA and identify knowledge gaps.
Methods and results: The 36-item PULSE survey was disseminated via social media to the general population and conducted under the auspices of and results the European Heart Rhythm Association Scientific Initiatives Committee (EHRA SIC) with EHRA patient committee support. Among 3924 participants (2177 healthy, 1747 with previously diagnosed CA; 59% female, 90% European), 81% reported fear of CA. Females were more likely to be ‘very’ or ‘moderately afraid’ than males [odds ratio (OR) 1.159 (1.005, 1.337), P = 0.046]. While most recognized complications of CA—heart failure (82%), stroke (80%), and death (75%)—43% were unaware that CA can be asymptomatic. Those with cardiopulmonary resuscitation (CPR) training in the past 5 years were 2.6 times and 4.7 times more confident identifying sudden cardiac death and initiating CPR (P < 0.001). Confidence was lower in retired participants [OR 0.574 (0.499, 0.660), P < 0.001] and Southern Europeans [OR 0.703 (0.600, 0.824), P < 0.001]. Without CPR training, only 15% felt confident initiating CPR. Among CA participants, 28% reported severe to disabling daily symptoms. Males were more often asymptomatic (20% vs. 9%, P < 0.001). Treatment rates were comparable between sex categories (81% vs. 79%, P = 0.413). Interdisciplinary shared decision-making processes were reported by 4%. Notably, 1 in 10 CA cases was self-diagnosed using a wearable device, and 30% of CA participants used smartwatches for self-monitoring.
Conclusion: Significant knowledge gaps regarding CA exist in the general population. Targeted educational initiatives could be a viable tool to enhance public knowledge, confidence in detecting and managing arrhythmias, particularly for women, who experience greater fear and symptom severity despite similar treatment rates.
Place, publisher, year, edition, pages
Oxford University Press, 2025. Vol. 27, no 4, article id euaf032
Keywords [en]
Atrial fibrillation, Awareness, Cardiac arrhythmias, Cardiac resuscitation, Pulse, Sudden cardiac death
National Category
Cardiology and Cardiovascular Disease
Identifiers
URN: urn:nbn:se:umu:diva-238239DOI: 10.1093/europace/euaf032ISI: 001456268900001PubMedID: 40163514Scopus ID: 2-s2.0-105002541140OAI: oai:DiVA.org:umu-238239DiVA, id: diva2:1955235
2025-04-292025-04-292025-05-05Bibliographically approved