Digitala Vetenskapliga Arkivet

Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
“A space to be myself ”: Music and self-determination in the lives of autistic adults
Royal College of Music in Stockholm, Department of Music Education. Institution of Neurobiology, Care Sciences and Society, Karolinska Institute, Stockholm, Sweden;Department of Education, Royal College of Music, Stockholm, Sweden.ORCID iD: 0000-0002-2238-7889
Royal College of Music in Stockholm, Department of Music Education. Department of Education, Royal College of Music, Stockholm, Sweden.
Royal College of Music in Stockholm, Department of Music Education. Institution of Neurobiology, Care Sciences and Society, Karolinska Institute, Stockholm, Sweden;Department of Education, Royal College of Music, Stockholm, Sweden.ORCID iD: 0000-0002-2377-1815
2025 (English)In: Psychology of Music, ISSN 0305-7356, E-ISSN 1741-3087Article in journal (Refereed) Published
Abstract [en]

Despite many decades of academic interest in music and autism, we know little about what music means to autistic adults and how they experience it. The few existing studies lack a common theoretical basis and are therefore difficult to compare and integrate. To address this gap, we investigated whether Self-Determination Theory can be used as a common framework for understanding the functions of music as experienced by autistic adults. We focused specifically on the support and thwarting of the basic psychological needs (autonomy, competence, and relatedness). Thirteen autistic adults (seven women and six men; aged between 24 and 69 years) described their experiences with musicking in a one-to-one semi-structured online interview. We analyzed the transcripts using directed qualitative content analysis (DQCA). We found that music engagement can thwart as well as support autonomy, competence, and relatedness and that Self-Determination Theory indeed offers a robust starting point for understanding the functions of music as seen by autistic adults. We illustrate how basic psychological needs provide a red thread connecting all previous studies that investigated the experience of music in autistic adults.

Place, publisher, year, edition, pages
2025.
Keywords [en]
adults, arts and health, autism spectrum, functions of music, meaning, self-determination, well-being
National Category
Music Psychology
Identifiers
URN: urn:nbn:se:kmh:diva-5774DOI: 10.1177/03057356241305558OAI: oai:DiVA.org:kmh-5774DiVA, id: diva2:1951395
Available from: 2025-04-10 Created: 2025-04-10 Last updated: 2025-04-25Bibliographically approved
In thesis
1. The roles of music in the well-being of autistic adults
Open this publication in new window or tab >>The roles of music in the well-being of autistic adults
2024 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

While music-based support services have been widely implemented for autistic people, their subjective experiences with music remain underexplored. This thesis investigates the roles of music in the lives of autistic adults, emphasising its impact on well-being. Drawing on Self-Determination Theory (SDT), particularly the basic psychological needs for autonomy, relatedness, and competence, it aims to provide a framework for understanding both the positive and negative effects of music, thereby advancing research and informing future interventions.

The thesis consists of three empirical studies. The first two studies aimed to explore autistic people's musical experiences and establish a framework that could provide a theoretical common ground for the existing exploratory studies. Studies I and II involved in-depth interviews with 13 autistic adults (aged 24–69). In the first study, a bottom-up thematic analysis identified emergent themes, while the second study applied a top-down approach using predefined categories derived from SDT. The aim of the third study was to develop and test a questionnaire assessing how people engage with music to support their well-being. Using a mixed-methods design, we analysed the answers of 63 autistic adults who filled out our questionnaire, as well as gave qualitative feedback on how clear the items were and how well the items reflected their experiences of music and well-being. 

Findings show that autistic adults experience musicking as both beneficial and detrimental, depending on the context. SDT seems to be a promising theory for investigating the mentioned context, given how important a sense of self-determination is in music engagement. Furthermore, the thesis provides an example of how we can extend and adapt models and theories developed on the general population to its sub-populations and use them to create assessment tools. By integrating autistic perspectives into existing theories and models, such as SDT, this work calls for a more pluralistic approach to understanding music engagement, one that respects the heterogeneity of people and agency of individuals and actively considers the potential for harms and negative experiences.

Place, publisher, year, edition, pages
Stockholm: Karolinska Institutet, 2024. p. 108
Keywords
autism, music, musicking, well-being, self-determination, harm, negative effects, interview, questionnaire, neurodiversity, autonomy, relatedness, competence, adults, accessibility, representation, cultural citizenship, basic psychological needs
National Category
Health Sciences Psychology Music
Identifiers
urn:nbn:se:kmh:diva-5777 (URN)978-91-8017-792-4 (ISBN)
Public defence
2024-11-15, Nathan Milstein hall, Valhallavägen 105, Stockholm, 09:30 (English)
Opponent
Supervisors
Available from: 2025-04-29 Created: 2025-04-25 Last updated: 2025-04-29Bibliographically approved

Open Access in DiVA

Korošec et al. - 2025 - “A space to be myself ” Music and self-determinat(282 kB)24 downloads
File information
File name FULLTEXT01.pdfFile size 282 kBChecksum SHA-512
54faaef2cff31287f22db1aa294eaf669ca77981d5a63aabbd1e6c2563febfc0851cd2f554198fbda9c0ceefec229ab025046333fde1c1bb0cc8f2220b7026e8
Type fulltextMimetype application/pdf

Other links

Publisher's full text

Search in DiVA

By author/editor
Korošec, KajaBojner Horwitz, Eva
By organisation
Department of Music Education
In the same journal
Psychology of Music
MusicPsychology

Search outside of DiVA

GoogleGoogle Scholar
Total: 25 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
urn-nbn

Altmetric score

doi
urn-nbn
Total: 13 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf