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Implementering av familjeinterventionen The Family Talk Intervention när ett barn eller en förälder har en svår sjukdom: Hälso- och sjukvårdskuratorers perspektiv
Marie Cederschiöld University, Department of Health Care Sciences.ORCID iD: 0000-0002-6402-7304
2025 (Swedish)Licentiate thesis, comprehensive summary (Other academic)
Abstract [sv]

När ett barn eller en förälder i en familj får en svår sjukdom innebär det en psykosocial stress för alla familjemedlemmar. Trots kunskap om att välmående och livskvalitet kan främjas om psykosocialt stöd ges till varje individ samt familjen som helhet finns få utvärderade psykosociala interventioner för dessa familjer. Genom sin psykosociala expertis, har hälso och sjukvårdskuratorn (HSK) en betydande roll vad gäller stödet till dessa familjer. I arbetet utgår HSK främst från erfarenhetsbaserad kunskap samt teorier, snarare än evidensbaserad praktik. Det råder brist på kunskap kring implementering av evidensbaserade interventioner inom det psykosociala arbetet. The Family Talk Intervention (FTI) är en psykosocial familjebaserad intervention som är effektiv i att stödja familjer med svår sjukdom. FTI implementerades under 2021–2024 inom palliativ vård där antingen ett barn eller förälder har svår sjukdom. Det övergripande syftet med avhandlingen var att undersöka implementeringen av FTI både initialt och över tid utifrån HSK perspektiv inom olika vårdkontexter när ett barn eller en förälder har en svår sjukdom. Avhandlingens resultat visar att HSK tidigare erfarenhet av psykosocialt arbete var av betydelse både initialt och över tid. Användandet av interventionen underlättades genom att FTI matchade familjernas behov och uppmärksammade barnen. Kontextuella faktorer, såsom bristande chefsstöd, begränsande resurser samt faktorer relaterade till vårdens organisering visade sig försvåra det initiala användandet av FTI samt den fortsatta integreringen. Det faktum att FTI utfördes inom ramen för ett forskningsprojekt både hindrade och underlättande användandet. Trots implementeringssvårigheter rapporterade HSK en hög tilltro till FTI, samt att de fortsatt kommer att stödja interventionen.

Place, publisher, year, edition, pages
Stockholm: Marie Cederschiöld högskola , 2025. , p. 78
Series
Avhandlingsserie inom området Människan i välfärdssamhället, ISSN 2003-3699 ; 21
Keywords [sv]
Implementering, Hälso- och sjukvårdskurator, Psykosocial familjebaserad intervention, Palliativ vård, The Family Talk Intervention
National Category
Nursing Palliative Medicine and Palliative Care
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
URN: urn:nbn:se:esh:diva-11302Libris ID: l58vhmmljfl0wmqbISBN: 978-91-985807-0-9 (print)OAI: oai:DiVA.org:esh-11302DiVA, id: diva2:1950763
Presentation
2025-04-03, Aulan, Marie Cederschiöld högskola, Stigbergsgatan 30, Stockholm, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2025-04-09 Created: 2025-04-09 Last updated: 2025-04-09Bibliographically approved
List of papers
1. The Family Talk Intervention Among Families Affected by Severe Illness: Hospital Social Workers’ Experiences of Facilitators and Barriers to its Use in Clinical Practice
Open this publication in new window or tab >>The Family Talk Intervention Among Families Affected by Severe Illness: Hospital Social Workers’ Experiences of Facilitators and Barriers to its Use in Clinical Practice
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2024 (English)In: Journal of Social Work in End-of-Life & Palliative Care, ISSN 1552-4256, E-ISSN 1552-4264, Vol. 20, no 3, p. 235-253Article in journal (Refereed) Published
Abstract [en]

Hospital social workers (HSW) play an important role in health care, providing psychosocial support to families affected by severe illness, and having palliative care needs involving dependent children. However, there are few evidence-based family interventions for HSWs to apply when supporting these families. The Family Talk intervention (FTI), a psychosocial family-based intervention, was therefore evaluated in an effectiveness-implementation study. Within the study, HSWs were educated and trained in the use of FTI in clinical practice. This study examined HSWs’ experiences of barriers and facilitating factors during their initial use of FTI in clinical practice. Altogether, 10 semi-structured focus groups were held with HSWs (n = 38) employed in cancer care and specialized palliative home care for adults, pediatric hospital care, and a children’s hospice. Data were analyzed using content analysis. HSWs considered FTI to be a suitable psychosocial intervention for families affected by severe illness with dependent children. However, the way in which the care was organized acted either as a barrier or facilitator to the use of FTI, such as the HSWs’ integration in the team and their possibility to organize their own work. The HSWs’ work environment also impacted the use of FTI, where time and support from managers was seen as a significant facilitating factor, but which varied between the healthcare contexts. In conclusion, HSWs believed that FTI was a suitable family intervention for families involving dependent children where one family member had a severe illness. For successful initial implementation, strategies should be multi-functional, targeting the care organization and the work environment.

Keywords
Hospital social worker, Implementation, Psychosocial intervention
National Category
Nursing Palliative Medicine and Palliative Care
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
urn:nbn:se:esh:diva-11205 (URN)10.1080/15524256.2024.2364589 (DOI)001262784100001 ()38968160 (PubMedID)
Funder
Swedish Research Council, 2021-00999Forte, Swedish Research Council for Health, Working Life and Welfare, 2021-00260Swedish Cancer Society, 20 0817 Pj 01 HSwedish Childhood Cancer Foundation, TJ2022-0028
Available from: 2025-01-10 Created: 2025-01-10 Last updated: 2025-04-09Bibliographically approved
2. Implementing the Family Talk Intervention among families with a severely ill parent or child with palliative care needs: A longitudinal study of the perspectives of hospital social workers
Open this publication in new window or tab >>Implementing the Family Talk Intervention among families with a severely ill parent or child with palliative care needs: A longitudinal study of the perspectives of hospital social workers
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(English)In: Article in journal (Refereed) Submitted
Abstract [en]

Background: The Family Talk Intervention (FTI) is a psychosocial intervention supporting families where a family member has palliative care needs. This study aimed to evaluate how the Family Talk Intervention (FTI) was implemented over time from the perspective of hospital social workers (HSWs) in their everyday clinical practice among families with a severely ill parent or child in need of palliative care.

Methods: HSWs (n=21) working in adult and children’s care completed a 10-day education where they were trained to use FTI. The education was part of a multifaced implementation strategy involving educational outreach visits, facilitation, clinical implementation meetings, and audit and feedback. The HSWs were then expected to use FTI in their clinical practice to support families with dependent children. To assess if and how FTI was integrated into their daily practice, they were also asked to complete the Swedish version of the Normalization Process Theory Measure (S-NoMAD) on three occasions: on completion of the FTI-education, six months later, and one year later. For the longitudinal analysis of data, Friedman’s test was used.

Results: The HSWs rated the use of FTI high after completing the FTI-education, indicating a positive attitude towards FTI. In the longitudinal analysis, statistically significant changes were seen for two questions in S-NoMAD, where the HSWs’ ratings showed that the FTI became more familiar and normalized over time. Generally, the HSWs’ ratings of S-NoMAD’s main constructs were high and stable over time, indicating a positive view of FTI and its implementation. However, for the single questions, the ratings were slightly more negative to some contextual aspects, such as managerial support and resources.

Conclusion: As results showed, HSW mainly rated different aspects of the implementation process as positive, both from the beginning, but also over time. Therefore, the intervention could be judged to have been implemented as a tool to support families when a parent or a child is severely ill. Contextual factors, involving managerial support and resources were rated lower, indicating the importance of those aspects when introducing interventions into healthcare. The result also indicates that the multifaced implementation strategy supported the HSW’s everyday clinical practice.

Keywords
Implementation, Normalization Process Theory, Psychosocial support, Hospital social worker, Family based intervention
National Category
Nursing Palliative Medicine and Palliative Care
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
urn:nbn:se:esh:diva-11299 (URN)
Note

Publication status in dissertation: Submitted

Title in dissertation: Implementing the Family Talk Intervention among families with a severely ill parent or child with palliative care needs: A longitudinal study of the perspectives of hospital social workers

Available from: 2025-03-10 Created: 2025-03-10 Last updated: 2025-04-09Bibliographically approved

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