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“The Idea of Not Having to Prove Anything in the Way I Needed, That Would Be Really Helpful” – Exploring Adolescents’ and Parents’ Understanding of Youth Participation during Patient-Initiated Brief Admission Enrollment in Psychiatric Inpatient Care
Stockholm University, Faculty of Social Sciences, Department of Social Work.ORCID iD: 0000-0002-1806-3478
(English)In: Article in journal (Refereed) Submitted
Abstract [en]

Enrollment in psychiatric inpatient care represents a pivotal moment in a young person’s life, one that often reverberates through the entire family. This study seeks to illuminate how adolescents and parents navigate youth participation during Patient-Initiated Brief Admission enrollment, shedding light on how such involvement fosters recovery from mental health problems. Drawing on interviews with five adolescents and five parents, the study unpacks the intricate dynamics of participation, with thematic analysis revealing the underlying patterns and complexities. To deepen the understanding, theoretical frameworks of epistemic injustice and ecological systems theory are employed, offering rich perspectives on the interplay of knowledge, power, and the parental role in shaping participatory experiences. The findings reveal that participation is not a static concept but a relational process, rooted in trust and profoundly influenced by adolescents’ ability to articulate their care needs. This capacity emerges as a cornerstone for enhancing meaningful participation and promoting recovery. Moreover, including parents in the enrollment process provides a dual vantage point – highlighting both the benefits and the challenges of inpatient care – while simultaneously enriching the participatory experience. The study underscores that youth participation in inpatient care is inherently dynamic, evolving through relationships with adults and fluctuating in intensity and frequency. Recognizing adolescents as emerging adults, capable of increasing autonomy despite health challenges, is essential to fostering equitable and empowering care. This perspective, crucial during inpatient enrollment, serves as a safeguard against epistemic injustice, ensuring that participation remains a pathway to recovery rather than a barrier.

Keywords [en]
Adolescents, ecological systems theory, epistemic injustice, family-oriented work, mental health recovery, inpatient care, participation, patient-initiated brief admission (PIBA)
National Category
Social Work Psychiatry
Research subject
Social Work
Identifiers
URN: urn:nbn:se:su:diva-240887OAI: oai:DiVA.org:su-240887DiVA, id: diva2:1945113
Available from: 2025-03-17 Created: 2025-03-17 Last updated: 2025-04-02Bibliographically approved
In thesis
1. Recovery-oriented work with adolescents facing complex needs: Exploring participation through the triad of adolescents, parents, and staff in psychiatric inpatient care
Open this publication in new window or tab >>Recovery-oriented work with adolescents facing complex needs: Exploring participation through the triad of adolescents, parents, and staff in psychiatric inpatient care
2025 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The promotion of youth participation in healthcare and welfare services has gained global attention, particularly for those with complex care needs. In 2020, Sweden took a major step toward strengthening youth participation by incorporating the UN Convention on the Rights of the Child (UNCRC, 1989) into national law. Yet, challenges remain in translating these commitments into practice. In mental health care, user involvement is recognized as essential, but structural barriers often limit its realization. Adolescents in psychiatric inpatient care frequently report low participation in treatment decisions, highlighting the need for models that enhance agency and engagement.

This dissertation examines youth participation in Swedish Child and Adolescent Psychiatry (CAP), focusing on the relational dynamics between adolescents, parents, and staff. It explores Patient-Initiated Brief Admission (PIBA), an intervention enabling adolescents to independently initiate short enrollments, thereby promoting autonomy and care accessibility. Grounded in recovery-oriented practices, the dissertation delves into how youth participation is operationalized and understood to influence recovery among adolescents with complex mental health problems. Two theoretical frameworks – epistemic injustice (Fricker, 2007) and ecological systems theory (Bronfenbrenner, 1979) – serve as the main analytical lenses. Epistemic injustice is applied to analyze the credibility and knowledge hierarchies in psychiatric inpatient care, particularly how young people’s lived experiences are valued in clinical decision-making. Ecological systems theory offers a multi-level perspective on participation, considering the broader socio-structural and institutional influences shaping interactions in psychiatric inpatient care.

The research comprises four interrelated qualitative studies: a scoping review of youth recovery literature (study I), and three interview-based studies exploring staff experiences with the implementation of PIBA (study II), staff perspectives on balancing parental involvement with adolescent autonomy (study III), and the views of adolescents and parents on participation during PIBA enrollment and its influence on recovery (study IV).

The findings indicate that youth recovery is a relational and non-linear process, shaped by trust, agency, and identity development. They point to the importance of care environments that can adjust to adolescents’ evolving needs. The results further highlight systemic barriers, including credibility deficits and the ‘admission game’ phenomenon, which can undermine trust and restrict genuine involvement. Staff face challenges in balancing protection and participation, especially where parental involvement is believed to complicate adolescents’ autonomy. While PIBA appears to offer potential for enhancing participation and fostering autonomy, its effectiveness seems dependent on trust-based collaboration among adolescents, parents, and staff, as well as on adequate staff knowledge and support.

Ultimately, the dissertation highlights youth participation as a dynamic, context-sensitive process influenced by supportive ecological systems and balanced with protective structures. It suggests that youth participation in psychiatric inpatient care is shaped by integrated approaches aligning provision, protection, and participation – the three pillars of the UNCRC. Strengthening adolescents’ credibility as knowledge holders appears important in addressing epistemic injustice. Revisiting care models to support collaborative decision-making and integrate recovery-oriented principles with participatory practices emerges as valuable. These insights contribute to developing participatory, recovery-oriented mental health care, with implications for staff training, improved communication, and flexible, youth-centered approaches that support adolescents’ active roles in their recovery.

Place, publisher, year, edition, pages
Stockholm: Department of Social Work, Stockholm University, 2025. p. 154
Series
Stockholm studies in social work, ISSN 0281-2851 ; 48
Keywords
Adolescents, child and adolescent psychiatry (CAP), ecological systems theory, epistemic injustice, mental health, Patient-Initiated Brief Admission (PIBA), participation, recovery, inpatient care
National Category
Social Work Psychiatry
Research subject
Social Work
Identifiers
urn:nbn:se:su:diva-240916 (URN)978-91-8107-200-6 (ISBN)978-91-8107-201-3 (ISBN)
Public defence
2025-06-03, Hörsal 2, Hus 2, Albano, Albanovägen 20 and online via Zoom: https://stockholmuniversity.zoom.us/j/64287536530, Stockholm, 10:00 (Swedish)
Opponent
Supervisors
Available from: 2025-05-09 Created: 2025-04-02 Last updated: 2025-04-23Bibliographically approved

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