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Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients' Access to Electronic Health Records in 4 European Countries: Framework Evaluation Study
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Participatory eHealth and Health Data Research Group. Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden.ORCID iD: 0000-0002-1209-7714
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Participatory eHealth and Health Data Research Group. Digital Psychiatry, Department of Psychiatry Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, United States.ORCID iD: 0000-0002-0205-1165
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2024 (English)In: Journal of Medical Internet Research, E-ISSN 1438-8871, Vol. 26, article id e55752Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: The NORDeHEALTH project studies patient-accessible electronic health records (PAEHRs) in Estonia, Finland, Norway, and Sweden. Such country comparisons require an analysis of the sociotechnical context of these services. Although sociotechnical analyses of PAEHR services have been carried out in the past, a framework specifically tailored to in-depth cross-country analysis has not been developed.

OBJECTIVE: This study aims to develop and evaluate a method for a sociotechnical analysis of PAEHRs that advances a framework for sociotechnical analysis of eHealth solutions first presented by Sittig and Singh. This first article in a series presents the development of the method and a cross-country comparison of the contextual factors that enable PAEHR access and use.

METHODS: The dimensions of the framework for sociotechnical analysis were thoroughly discussed and extended in a series of workshops with international stakeholders, all being eHealth researchers focusing on PAEHRs. All countries were represented in the working group to make sure that important national perspectives were covered. A spreadsheet with relevant questions related to the studied services and the various dimensions of the sociotechnical framework was constructed and distributed to the 4 participating countries, and the project participants researched various national sources to provide the relevant data for the comparisons in the 10 sociotechnical dimensions.

RESULTS: In total, 3 dimensions were added to the methodology of Sittig and Singh to separate clinical content from features and functions of PAEHRs and demonstrate basic characteristics of the different countries regarding national and regional steering of health care and information and communications technology developments. The final framework contained the following dimensions: metadata; hardware and software computing infrastructure; features and functions; clinical content shared with patients; human-computer interface; people; workflow and communication; the health care organization's internal policies, procedures, and culture; national rules, regulations, and incentives; system measurement and monitoring; and health care system context. The dimensions added during the study mostly concerned background information needed for cross-country comparisons in particular. Several similarities were identified among the compared countries, especially regarding hardware and software computing infrastructure. All countries had, for example, one national access point, and patients are provided a PAEHR automatically. Most of the differences could be identified in the health care system context dimension. One important difference concerned the governing of information and communications technology development, where different levels (state, region, and municipality) were responsible in different countries.

CONCLUSIONS: This is the first large-scale international sociotechnical analysis of services for patients to access their electronic health records; this study compared services in Estonia, Finland, Norway, and Sweden. A methodology for such an analysis was developed and is presented to enable comparison studies in other national contexts to enable future implementations and evaluations of PAEHRs.

Place, publisher, year, edition, pages
JMIR Publications, 2024. Vol. 26, article id e55752
Keywords [en]
EHR, electronic health record, health data, national survey, patient access, patient portal, patient-accessible electronic health record, sociotechnical analysis, web-based medical record, web-based record access
National Category
Information Systems, Social aspects Health Care Service and Management, Health Policy and Services and Health Economy
Research subject
Medical Informatics
Identifiers
URN: urn:nbn:se:uu:diva-537118DOI: 10.2196/55752ISI: 001307085500002PubMedID: 39186760OAI: oai:DiVA.org:uu-537118DiVA, id: diva2:1892624
Part of project
Beyond Implementation of eHealth, Forte, Swedish Research Council for Health, Working Life and Welfare
Funder
NordForsk, 100477Academy of Finland, 352501Academy of Finland, 352503Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-01229Available from: 2024-08-27 Created: 2024-08-27 Last updated: 2024-09-24Bibliographically approved

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Bärkås, AnnikaBlease, CharlotteHägglund, MariaKane, Bridget
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