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Parental Involvement in Pediatric Hospital Care-Implications for Clinical Practice and Quality of Care
Uppsala University, Medicinska vetenskapsområdet, Faculty of Medicine, Department of Public Health and Caring Sciences.
2004 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of this thesis was to gain a deeper understanding about parents’ perceptions of quality of care and their own involvement in pediatric hospital care.

Parental involvement in the care of hospitalized children has gained increased attention in recent years. The aim of this thesis was to study parental involvement in pediatric hospital care and investigate its association to the work conditions of pediatric hospital staff.

The first study validated a parent questionnaire that measured parents’ views of the quality of care. The questionnaire measures quality of care by means of eight indices and an overall quality grade. Results showed that the questionnaire demonstrated satisfactory validity and reliability.

Study 2 examined whether there were differences in quality ratings between respondents and non-respondents to the parent questionnaire. The main parent questionnaire was distributed in hospital and a follow-up questionnaire was sent home to a random sample of parents three week after the hospital visit. This study pinpointed a number of difficulties that need to be considered when conducting investigations of non-response.

The third study aimed at gaining a deeper understanding of factors that influence parents’ views of their own involvement in pediatric care. Semi-structured interviews were conducted with parents of chronically ill children. Four themes emerged from the interviews: support, professionalism, work environment and responsibility. Underlying these four themes is a need for a clear communication between staff and parents.

The fourth study examined hospital staff’s perceptions of parental involvement and possible consequences for staff work environment. A questionnaire was sent out to hospital staff at oncology, neurology and surgery units at three university children’s hospitals. Hospital staff on oncology units gave higher ratings to their workplace routines for involving parents in the child’s care, and experienced less work strain from parental demands, compared to staff on the other units.

The results of this thesis indicate a clear association between parental involvement in pediatric care and the work conditions of pediatric hospital staff.

Place, publisher, year, edition, pages
Uppsala: Acta Universitatis Upsaliensis , 2004. , p. 40
Series
Comprehensive Summaries of Uppsala Dissertations from the Faculty of Medicine, ISSN 0282-7476 ; 1326
Keyword [en]
Medicine, pediatric care, parent questionnaire, parental involvement, quality of care, non-response
Keyword [sv]
Medicin
National Category
Dermatology and Venereal Diseases
Identifiers
URN: urn:nbn:se:uu:diva-4010ISBN: 91-554-5884-X (print)OAI: oai:DiVA.org:uu-4010DiVA, id: diva2:164127
Public defence
2004-03-19, Grönwallssalen, ingång 70, Akademiska sjukhuset, Uppsala, 10:15
Opponent
Supervisors
Available from: 2004-02-26 Created: 2004-02-26Bibliographically approved
List of papers
1. Quality of pediatric care: application and validation of an instrument for measuring parent satisfaction with hospital care
Open this publication in new window or tab >>Quality of pediatric care: application and validation of an instrument for measuring parent satisfaction with hospital care
2001 In: International Journal of Quality in Health Care, ISSN 1353-4505, Vol. 13, p. 33-43Article in journal (Refereed) Published
Identifiers
urn:nbn:se:uu:diva-91405 (URN)
Available from: 2004-02-26 Created: 2004-02-26Bibliographically approved
2. A study of non-response in a questionnaire survey of parents´ views of pediatric care
Open this publication in new window or tab >>A study of non-response in a questionnaire survey of parents´ views of pediatric care
2004 In: Journal of Nursing Management, ISSN 0966-0429, Vol. 12, no 1, p. 5-12Article in journal (Refereed) Published
Identifiers
urn:nbn:se:uu:diva-91406 (URN)
Available from: 2004-02-26 Created: 2004-02-26Bibliographically approved
3. A study of parental involvement in pediatric hospital care: implications for clinical practice
Open this publication in new window or tab >>A study of parental involvement in pediatric hospital care: implications for clinical practice
2004 (English)In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 19, no 3, p. 217-223Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Although it has become common practice for parents to stay with their sick child in hospital, most hospitals lack routines and staff guidelines for involving parents in care processes and decisions.

AIM: To gain a deeper understanding of factors that influence parental involvement and to clarify the parental role in the hospital care of chronically ill children.

METHODS: Semistructured interviews with 14 parents of chronically ill children.

RESULTS: Four themes were identified: support, professionalism, work environment, and responsibility. These themes describe the experience and perceptions of parents who regularly spend time in the hospital with their children.

CONCLUSIONS: Clinical practices regarding parental involvement need to be established to optimize the hospital care of chronically ill children.

Keyword
Adaptation; Psychological, Adult, Caregivers/psychology, Child, Child; Hospitalized/psychology, Critical Illness/nursing/psychology, Female, Hospitals; Pediatric/standards, Human, Intensive Care Units; Pediatric/standards, Male, Nurse-Patient Relations, Parent-Child Relations, Parents/psychology, Pediatric Nursing/*standards, Professional-Family Relations, Quality Assurance; Health Care, Questionnaires, Support; Non-U.S. Gov't, Sweden, Time Factors
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:uu:diva-91407 (URN)10.1016/j.pedn.2004.02.005 (DOI)15185252 (PubMedID)
Available from: 2004-02-26 Created: 2004-02-26 Last updated: 2017-12-14Bibliographically approved
4. Hospital staff´s perceptions of parental involvement in pediatric hospital care
Open this publication in new window or tab >>Hospital staff´s perceptions of parental involvement in pediatric hospital care
Manuscript (Other academic)
Identifiers
urn:nbn:se:uu:diva-91408 (URN)
Available from: 2004-02-26 Created: 2004-02-26 Last updated: 2010-01-13Bibliographically approved

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