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Familjers erfarenheter av när ett barn vårdas palliativt: En litteraturstudie
Umeå University, Faculty of Medicine, Department of Nursing.
Umeå University, Faculty of Medicine, Department of Nursing.
2019 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Bakgrund: Palliativ vård innebär symtomlindring och förbättring av livskvalité för patienter i livets slutskede samt deras familjer. Då ett barn blir sjukt påverkas alla familjemedlemmar. Familjefokuserad omvårdnad baseras på god relation mellan vårdpersonal och familjemedlemmar och eftersträvar förbättra hela familjens mående.

Syfte: Belysa familjers erfarenheter av när ett barn vårdas palliativt.

Metod: En litteraturanalys utfördes. Sökning gjordes i Cinahl databas. Nio artiklar inkluderades efter granskning enligt Olsson och Sörensen (2011). Artiklarna analyserades enligt Fribergs (2017) femstegsmodell för analys av artiklar.

Resultat: Analysen resulterade i tre huvudkategorier (leva med sjukdomen, deltagande i vård och omvårdnad, relationer förändras). Resultaten visade hur familjer upplever vården samt livet i helhet när barn behandlas palliativt.

Konklusion: Hela familjer påverkades känslomässigt, fysiskt, ekonomiskt. De upplevde skuld, osäkerhet och sorg. Det viktigaste för familjer var att vårda det sjuka barnet. Relationer utanför familjerna åsidosattes. Föräldrar spenderade mycket tid med barnet och hade inte tid för syskon eller varandra. Samtliga familjemedlemmar var i behov av professionell hjälp under hela vårdperioden. Studien strävade bidra till ökad förståelse av familjesituationen hos familjer där ett barn behandlas palliativt.

Abstract [en]

Background: Palliative care focuses on improving quality of life for patients and families in the end-of-life. When a child is ill all family members are affected. Family-focused nursing is based on good relations between healthcare professionals and family to improve the whole family wellbeing.

Aim: To show families experiences when child receives palliative care.

Method: A literature analysis was performed. Searches were made in the Cinahl database. Nine articles were included after grading according to Olsson and Sörensen (2011). Analyzes were conducted based on Friberg's (2017) five-step model.

Results: The analysis resulted in three categories (living with the disease, participation in care, changed relations). The results show families’ experiences of care but also life as a whole.

Conclusion: Family members are affected emotionally and physically. They experienced guilt and uncertainty. The care of the child was most important. Relationships outside the families were ignored. Parents spent a lot of time with the child and didn't have enough time for siblings. Families were in need of professional help through the period. The study seeks to contribute an increased understanding of the family situation in families where a child receives palliative care.

Place, publisher, year, edition, pages
2019. , p. 45
Keywords [en]
Experience, Family, Literature Study, Parents, Palliative Care, Pediatrics, Siblings
Keywords [sv]
Erfarenhet, Familj, Föräldrar, Litteraturstudie, Palliativ vård, Pediatrik, Syskon
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-166563OAI: oai:DiVA.org:umu-166563DiVA, id: diva2:1379940
Educational program
Nursing Programme
Supervisors
Examiners
Available from: 2019-12-17 Created: 2019-12-17 Last updated: 2019-12-17Bibliographically approved

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