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Att beskriva livskvalitet hos personer med palliativ vård
University of Gävle, Faculty of Health and Occupational Studies, Department of Caring Science.
University of Gävle, Faculty of Health and Occupational Studies, Department of Caring Science.
2019 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Bakgrund: Då bot inte längre är möjlig påbörjas palliativ vård, vilket handlar om att skapa förutsättningar så att personen med palliativ vård och dennes anhöriga upplever högsta möjliga livskvalitet. Att träffa döende personer och ge dessa omvårdnad är en ofrånkomlig del av sjuksköterskeyrket. Beskrivningar av livskvalitet från personer med palliativ vård är därför en viktig kunskapskälla för sjuksköterskor. Syfte: Syftet med föreliggande studie var att beskriva hur personer med palliativ vård upplever livskvalitet. Metod: En beskrivande litteraturstudie som baserats på 13 vetenskapliga artiklar. Alla inkluderade artiklar hade kvalitativ ansats och söktes fram i databasen PubMed. Huvudresultat: Personer med palliativ vård beskrev att deras tankesätt förändrades efter sjukdomsdebuten. Detta upplevdes som en strategi för att hantera sjukdomen och öka känslan av livskvalitet. Något som ytterligare bidrog positivt till livskvaliteten var att upprätthålla relationer med släkt och vänner samt att få vara omgiven av sin familj. Den främsta orsaken till minskad livskvalitet beskrevs vara när symtom framträdde och när sjukdomen upplevdes styra personens liv. Slutsats: Att drabbas av obotlig sjukdom och få palliativ vård påverkade upplevelsen av livskvalitet. Den kunde både öka och minska under sjukdomsförloppet och att ha en sjuksköterska med helhetssyn på personen med palliativ vård var av stor vikt för bibehållen livskvalitet. 

Abstract [en]

Background: When cure is no longer possible, palliative care begins. Palliative care is about creating conditions so that the person with palliative care and his or her relatives experience the highest possible quality of life. To meet people who are dying and care for them is an inevitable part of the nursing profession. Descriptions of quality of life by persons with palliative care is therefore an important source of knowledge for nurses. Aim: The aim of this study was to describe how persons with palliative care experience quality of life. Method: A descriptive literature review based on 13 scientific articles. All the included articles had a qualitative approach and were found through the PubMed database. Main results: Persons with palliative care described that their mindset changed after the onset of the disease. This was seen as a strategy for managing the disease and to increase the quality of life. Something that further increased the quality of life was to maintain relationships with friends and relatives and to be surrounded by family. The main reason for decreased quality of life was describes as when symptoms appeared and when the disease was experienced to control the persons life. Conclusion: To suffer from an incurable disease and receive palliative care affected the quality of life. The experience of quality of life could both increase and decrease during the course of the disease and having a nurse with a holistic approach towards the person with palliative care was essential to maintain quality of life. 

Place, publisher, year, edition, pages
2019. , p. 41
Keywords [en]
Palliative care, quality of life, patient experience
Keywords [sv]
Palliativ vård, livskvalitet, patientupplevelse
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hig:diva-31254OAI: oai:DiVA.org:hig-31254DiVA, id: diva2:1377066
Subject / course
Nursing
Educational program
Nursing
Supervisors
Examiners
Available from: 2019-12-11 Created: 2019-12-10 Last updated: 2019-12-11Bibliographically approved

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