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COPD patients need more information about self-management: a cross-sectional study in Swedish primary care
Stockholm Cty Council, Acad Primary Hlth Care Ctr, Stockholm, Sweden;Karolinska Inst, Sect Family Med & Primary Care, NVS, Stockholm, Sweden.
Karolinska Inst, Sect Family Med & Primary Care, NVS, Stockholm, Sweden;Karolinska Inst, Dept Med, Div Clin Epidemiol, Stockholm, Sweden.
Karolinska Inst, Sect Family Med & Primary Care, NVS, Stockholm, Sweden.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Family Medicine and Preventive Medicine.ORCID iD: 0000-0001-8497-7326
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2019 (English)In: Scandinavian Journal of Primary Health Care, ISSN 0281-3432, E-ISSN 1502-7724, Vol. 37, no 4, p. 459-467Article in journal (Refereed) Published
Abstract [en]

Objective: In Sweden, patients with chronic conditions, such as chronic obstructive pulmonary disease (COPD), often receive education at specialized nurse-led clinics at primary health care centers (PHCCs). Identifying patients' needs for information about COPD is the key to individualized care. This study aimed to assess self-reported needs for information about COPD in primary care patients with either moderate (GOLD 2) or severe (GOLD 3) COPD and identify patient characteristics and exacerbation patterns associated with the findings.

Design: A cross-sectional study.

Setting: Twenty-four PHCCs in Stockholm, Sweden.

Subjects: Randomly selected primary care patients with COPD in GOLD stages 2 and 3 (n = 542).

Main outcome measures: The Lung Information Needs Questionnaire (LINQ) was used to assess perceived information needs. Spirometry results and descriptive, self-reported data on patient factors such as exacerbation history, treatment, smoking, weight/height, comorbidities, health care contacts, education and symptoms were collected.

Results: Overall, the greatest reported needs were for information about self-management and diet. GOLD 2 patients (68%) expressed greater needs for information than GOLD 3 patients (32%). We found significant associations between high information needs and patient-related factors such as 'No assigned GP' (OR = 4.32 [95% CI 2.65-7.05]) and 'No contact with COPD nurse in the past 12 months' (OR = 1.83 [95% CI 1.19-2.81]).

Conclusion: COPD patients felt they knew too little about self-management of their disease. Low information needs were strongly associated with continuity in patient-GP consultations and moderately associated with contact with a COPD nurse. These associations were strongest in patients with moderate COPD.

Place, publisher, year, edition, pages
TAYLOR & FRANCIS LTD , 2019. Vol. 37, no 4, p. 459-467
Keywords [en]
Primary care, COPD, self-management, disease information needs, patient education, general practitioners, cluster randomized controlled trial
National Category
Respiratory Medicine and Allergy Health Care Service and Management, Health Policy and Services and Health Economy Nursing
Identifiers
URN: urn:nbn:se:uu:diva-397797DOI: 10.1080/02813432.2019.1684015ISI: 000494905800001PubMedID: 31293197OAI: oai:DiVA.org:uu-397797DiVA, id: diva2:1373383
Funder
Stockholm County Council, LS 1110-1339Stockholm County Council, LS 1301-0078Stockholm County Council, LS 1411-1373AstraZenecaAvailable from: 2019-11-27 Created: 2019-11-27 Last updated: 2019-11-27Bibliographically approved

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