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Facing internet fake-medicine and web para-pharmacy in the total absence of official recommendations from medical societies
Univ Hosp Ioannina, Dept Med Oncol, S Niarchos Ave, TK-45500 Ioannina, Greece;PACMeR Athens, Evidence Based Dept, Athens, Greece;Soc Study Clonal Heterogene Neoplasia EMEKEN, Ioannina, Greece.
PACMeR Athens, Evidence Based Dept, Athens, Greece.
Hosp Univ Dexeus, Barcelona, Spain.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centrum för klinisk forskning i Sörmland (CKFD).ORCID iD: 0000-0001-6059-0194
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2019 (English)In: Balkan Union of Oncology. Journal, ISSN 1107-0625, Vol. 24, no 4, p. 1314-1325Article in journal (Refereed) Published
Abstract [en]

Purpose: Internet fake information, parapharmacy and counterfeit drugs are a market of hundreds of billion dollars. Misleading internet data decrease patients' compliance to medical care, promote use of questionable and detrimental practices, and jeopardize patient outcome. This is particularly harmful among cancer patients, especially when pain and nutritional aspects are considered. Provision of Web recommendations for the general audience (patients, relatives, general population) from official medical-providers might be useful to outweigh the detrimental internet information produced by non-medical providers. Methods: 370 oncology and anesthesiology related societies were analyzed. Our objective was to evaluate the magnitude of web-recommendation for cancer cachexia and cancer pain for the general audience provided by official medical organizations' web sites at global level. Results: Magnitude of web-recommendations at global level was surprisingly scant both for coverage and consistency. Seven official medical societies provided updated web-recommendation for cancer cachexia to their patients/family members, and 15 for cancer pain. Scantiness was unrelated by continent, developmental index, oncology tradition, economic-geographic area and society type scrutinized. Conclusions: Patients need expert advice when exposed to fake internet information largely dominated by paramedical market profits. In this era of "new media" the patients' net-education represents a new major educational challenge for medical societies.

Place, publisher, year, edition, pages
IMPRIMATUR PUBLICATIONS , 2019. Vol. 24, no 4, p. 1314-1325
Keywords [en]
cancer, cachexia, counterfeit drugs, internet, para-pharmacy, pain
National Category
Cancer and Oncology
Identifiers
URN: urn:nbn:se:uu:diva-393750ISI: 000481595900001PubMedID: 31646774OAI: oai:DiVA.org:uu-393750DiVA, id: diva2:1369152
Available from: 2019-11-11 Created: 2019-11-11 Last updated: 2019-11-11Bibliographically approved

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