Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Factors influencing use of telegenetic counseling: perceptions of health care professionals in Sweden
Linköping University, Department of Clinical and Experimental Medicine, Division of Cell Biology. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Center for Diagnostics, Clinical genetics.
Linköping University, Department of Social and Welfare Studies, Division of Nursing Science. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Local Health Care Services in East Östergötland, Department of Internal Medicine in Norrköping.ORCID iD: 0000-0001-7431-2873
Linköping University, Department of Medical and Health Sciences, Division of Community Medicine. Linköping University, Faculty of Medicine and Health Sciences.
Linköping University, Department of Clinical and Experimental Medicine, Division of Cell Biology. Linköping University, Faculty of Medicine and Health Sciences. Region Östergötland, Center for Diagnostics, Clinical genetics.
2019 (English)In: Journal of Community Genetics, ISSN 1868-310X, E-ISSN 1868-6001, Vol. 10, no 3, p. 407-415Article in journal (Refereed) Published
Abstract [en]

Genetic counseling services are increasing in demand and limited in access due to barriers such as lack of professional genetic counselors, vast geographic distances, and physical hurdles. This research focuses on an alternative mode of delivery for genetic counseling in Sweden, in order to overcome some of the mentioned barriers. The aim of this study is to identify factors that influence the implementation and use of telegenetic counseling in clinical practice, according to health care professionals in Southeast Sweden. Telegenetic counseling refers to the use of video-conferencing as a means to provide genetic counseling. Qualitative, semi-structured interviews with 16 genetic counseling providers took place and phenomenographic analysis was applied. Significant excerpts were identified in each transcript, which led to sub-categories that constructed the main findings. Three categories emerged from the data: (1) requirements for optimal use, (2) impact on clinical practice, and (3) patient benefits. Each category consists of two or three sub-categories, in total seven sub-categories. These findings could potentially be used to improve access and uptake of telegenetic counseling in Sweden and in other countries with a similar health care system. This could benefit not only remote patient populations, as described in previous research, but also large family groups and patients experiencing obstacles in accessing genetic counseling, such as those with a psychiatric illness or time constraints, and be a useful way to make genetic counseling available in the new era of genomics.

Place, publisher, year, edition, pages
SPRINGER HEIDELBERG , 2019. Vol. 10, no 3, p. 407-415
Keywords [en]
Genetic counseling; Telegenetic; Implementation
National Category
Medical Ethics
Identifiers
URN: urn:nbn:se:liu:diva-158949DOI: 10.1007/s12687-018-00404-5ISI: 000472908300009PubMedID: 30617812OAI: oai:DiVA.org:liu-158949DiVA, id: diva2:1338182
Note

Funding Agencies|Centre for Rare Diseases Southeast, Linkoping University Hospital, Linkoping, Sweden

Available from: 2019-07-20 Created: 2019-07-20 Last updated: 2019-11-12

Open Access in DiVA

fulltext(487 kB)8 downloads
File information
File name FULLTEXT01.pdfFile size 487 kBChecksum SHA-512
75a0bb56cf3a1a781b4342f67e1d4036d592c2f99ae198e88594b12bb0052715ea610d66958a2dd5fb38ff0974229e2b470db33fb94a88a416841749d0b4cea8
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMed

Search in DiVA

By author/editor
Pestoff, RebeckaJohansson, PeterNilsen, PerGunnarsson, Cecilia
By organisation
Division of Cell BiologyFaculty of Medicine and Health SciencesClinical geneticsDivision of Nursing ScienceDepartment of Internal Medicine in NorrköpingDivision of Community Medicine
In the same journal
Journal of Community Genetics
Medical Ethics

Search outside of DiVA

GoogleGoogle Scholar
Total: 8 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 61 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf