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Cancer, a relational disease: exploring the needs of relatives to cancer patients
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Clinical Psychology in Healthcare. (Klinisk psykologi i hälso- och sjukvård)ORCID iD: 0000-0002-6839-3651
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2019 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 14, no 1, article id 1622354Article in journal (Refereed) Published
Abstract [en]

Purpose: In this qualitative interview study we investigated the experiences of family members to cancer patients. Our objective was to explore and to differentiate their needs from the needs of cancer patients.

Methods: Five focus groups and six individual narrative interviews with 17 family members to cancer patients in Sweden were conducted and compared with 19 cancer patient interviews. Our analysis was inspired by classic grounded theory.

Results: Family members to cancer patients expressed own morbidity connected to high stress levels and difficulties in recognizing own stress due to ongoing comparisons with the cancer patient. Family members were trapped in a momentary terror-like situation where they became their sick relative’s safety net. A percieved inability to improve their loved one’s well being contributed to a feeling of guilt. The longing for it all to end was encumbered with shame since the end included possible death.

Conclusions: By recognizing cancer as a disease striking both body and relationships, family members are given precedence over their own struggles, differentiated from the patient’s experiences. We define differences in needs between cancer patients and family members. Family members to cancer patients may be supported in developing balancing strategies towards less stress, increased safety and moments of contentment.

Place, publisher, year, edition, pages
2019. Vol. 14, no 1, article id 1622354
Keywords [en]
Health, family members, carers, cancer care, grounded theory, waiting, safety, momentary contentment, salutogenesis, informal caregiver
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:uu:diva-384018DOI: 10.1080/17482631.2019.1622354ISI: 000468976100001PubMedID: 31122166OAI: oai:DiVA.org:uu-384018DiVA, id: diva2:1318526
Available from: 2019-05-28 Created: 2019-05-28 Last updated: 2019-06-20Bibliographically approved

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