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Närståendes upplevelser av att leva med en individ som får palliativ vård: En beskrivande litteraturstudie
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences.
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences.
2019 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Bakgrund: I Sverige är 72 000 individer årligen i behov av palliativ vård. Denna vårdform innebär att sjukdomen inte längre kan botas utan enbart lindra symtom för att nå bästa möjliga livskvalitet. Närstående har en viktig roll i palliativ vård genom att bland annat vara ett stöd till den sjuka. Sjuksköterskan bör vid palliativ vård möta symtom från alla dimensioner och se den sjuke som en helhet. Syfte: Syftet är att beskriva närståendes upplevelser av att leva med en individ som får palliativ vård. Metod: En litteraturöversikt som inkluderat 13 studier, funna i Medline via PubMed och Cinahl, med kvalitativ ansats där närståendes upplevelser har beskrivits. Resultat: Tre huvudteman identifierades: Omvårdnad ur närståendeperspektiv, Mötet med personal och Livets slut. Omvårdnad ur närståendeperspektiv berör områden som ökat ansvar, isolering, att göra allt för den man älskar samt skuldkänslor, tvång, oro och uppoffringar. Upplevelserna kring mötet med personal varierade, både positiva och negativa presenteras, där bland annat vårdform, sjuksköterskans bemötande, kunskap och tidigare erfarenheter påverkade resultatet. Livets slut och det kommande avskedet är ofrånkomligt i palliativ vård och de närstående hanterade frågor kring döendet och döden på olika sätt. Slutsats: Närvaron kring döden gav funderingar på närståendes egna existens. Hur de närstående upplevde vårdpersonalens bemötande speglade deras syn på hur den palliativa vården fungerat. I föreliggande studie har många upplevelser beskrivits, däremot finns en begränsad kunskap om hur de närstående hanterar de känslor som uppkommer. De upplevelser som följs genom denna studie kan sammantaget beskrivas som påfrestande men givande.

Abstract [en]

Background: In Sweden, 72,000 individuals are in need of palliative care annually. This type of care means that the disease can no longer be cured but only alleviates symptoms to achieve the best possible quality of life. Family have an important role in palliative care by, among other things, supporting the ill one. Palliative care nurses should face symptom from all dimensions and see the ill one as a unity. Aim: The aim is to describe families experiences of living with an individual who receives palliative care. Method: A literature review that included 13 studies, found in Medline via PubMed and Cinahl, with a qualitative approach, where the experiences of families have been described. Findings: Three main themes were identified: Nursing from a family perspective, The meeting with staff and The end of life. Family nursing concerns areas such as increased responsibility, isolation, doing everything for the one you love, but also guilt, coercion, worry and sacrifice. The experiences surrounding the meeting with staff varied, both positive and negative were presented, where, among other things, the form of care, the nurse's treatment, knowledge and previous experiences affected the result. End of life and resignation are inevitable in palliative care and the families dealt with issues of dying and death in different ways. Conclusion: The present of death gave thoughts about the families own existence. How families experienced the healthcare professional’s treatment reflected their view of the palliative care. In the present study many experiences have been described, however there is a limited knowledge about how the families cope with their feelings. The experiences that are followed in this study can be described as strenuous but worthwhile.

Place, publisher, year, edition, pages
2019. , p. 24
Keywords [en]
Palliative care, Family, Experience
Keywords [sv]
Palliativ vård, Närstående, Upplevelse
National Category
Nursing
Identifiers
URN: urn:nbn:se:hig:diva-29482OAI: oai:DiVA.org:hig-29482DiVA, id: diva2:1306594
Subject / course
Nursing
Educational program
Nursing
Supervisors
Examiners
Available from: 2019-04-25 Created: 2019-04-24 Last updated: 2019-04-25Bibliographically approved

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